What physicians identified as flawed about the ‘system’
Given that physicians routinely write laments about flaws with the healthcare system (Moniz, Lingard, and Watling 2017, 124-5), we anticipated that they would largely point to factors and forces outside the profession as flawed. Instead, we found that physicians most often looked inward—at the culture of medicine itself—when writing about the prevailing challenges compromising their ability to be the kind of professionals they want to be. We identified seven recurring and, at times, overlapping system flaws. Five of these flaws related to the culture of medicine: the failures of communication, the erosive impact of the hidden curriculum, inadequate health advocacy, the frenzied pace of work, and the experience of stigma. Together, flaws related to medical culture accounted for two-thirds of flaws identified. The two remaining flaws addressed (nearly evenly) restrictive institutional practices as well as limited and disparate healthcare resources. Below, we elaborate these themes, beginning with those connected with medicine’s professional culture.
Failures of communication
Issues of communication failure dominated, comprising one-third of total narratives about medical culture. Physicians wrote about how the language entrenched in medicine can erode the physician–patient relationship; how small acts of empathetic verbal and nonverbal communication are undervalued and undertaught; how breaking bad news is often focused on the illness, not the person; and how a lack of communication between peers impedes collaboration. For example, a physician recalled a moment of communication failure—peer-to-peer, physician-patient, and physician-family—during her training as a pediatric oncology fellow: “When she relapsed again, I sat quietly in the family meeting and listened as the bone marrow transplant specialist told her in stark language that she was going to die. I felt steamrolled by other clinicians, some of whom seemed impatient to fix K on a predictable end-of-life care trajectory. The statistics were grim, but I believed that K and her family needed time, first to absorb the news of the relapse and then to reflect on their hopes, goals, and priorities” (Caruso Brown 2017, 2487). Moreover, this physician-writer was, as she put it, “their doctor” (2487)—the one the family built a rapport with and trusted. In this narrative, she therefore grappled not only with her colleagues’ lack of compassion in communicating but also with her own feelings of being “ashamed of having silently allowed the meeting to proceed with such disregard for a patient and a family” (2487). This collection of narratives foregrounding communication failures emphasized the central role that communication plays in shaping the doctor-patient relationship and, in particular, building trust, and called out the impact of poor communication on patient outcomes, quality of care and physician wellness.
The erosive impact of the hidden curriculum
Physicians and medical learners also wrote about the ways that the hidden curriculum— “a set of influences that function at the level of organizational structure and culture” (Hafferty 1998, 404)—erodes patient-centred care and their own wellness.
They wrote about the disconnect between the teaching and enactment of empathy—that repeating concepts in the classroom doesn’t guarantee their practice at the bedside, especially when the culture of medical school encourages detachment in the face of suffering. One medical learner shared this insight stemming from his experiences as a patient before starting medical school and his subsequent reflections following his first year of medical training: “Perhaps the practice of medicine suffers from a tendency to overanalyze, opting to critically evaluate instead of truly understand. As students, we are told that empathy and compassion are traits for us to learn, that they are to be practiced and implemented. The problem is that the patient experience of these concepts is far more subtle than an academic discussion can relate. Countless emotions of the caregiver are intertwined with empathy and compassion, and the incongruence in our system is in how we display those emotions to our patients” (Markwalter 2015, 900). Training for empathy requires more than “a purely academic understanding of these concepts” (899), and physician-writers emphasized that the best lessons about the ‘human side of medicine’ cannot be taught in the classroom but, rather, are learned in practice and through interacting with patients.
In this group of narratives about the erosive impact of the hidden curriculum, physicians also reflected on how the structure and culture of medical school is challenging for trainees who struggle silently with its pressures. For example, one physician reflected on the suicide of a fourth-year medical student at his institution: “Every time students achieve what looks to the rest of us like a successful milestone—getting into a great college, the medical school of their choice, a residency in a competitive clinical specialty—it is to some of them the opening of another door to a haunted house, behind which lie demons, suffocating uncertainty, and unimaginable challenges. Students bravely meet these challenges head-on while we continue to blindly ratchet up our expectations.... [W]e never let up on them—and it’s killing them” (Muller 2017a, 1102). This physician, like others whose narratives we analyzed, pointed to “a culture of performance and achievement” as among the “root causes of this national epidemic of burnout, depression, and suicide” among medical students (1102). This collection of narratives called out the ‘sink or swim’ mentality that pervades the culture of medical education, with high standards of performance, little room to make mistakes, and a lack of attention to student wellbeing.
Inadequate health advocacy
Physicians also reflected on how inadequate health advocacy on their part, at both individual and population levels, perpetuates practices, policies and/or systems that compromise patient-centred care and that disadvantage the health(care) of vulnerable and marginalized populations.
Their narratives emphasized how a lack of advocacy for individual patients may lead to poor diagnostic and prescribing practices—and vice versa—notably with vulnerable populations, minors and those with mental illness. For instance, physicians wrote about how the uniform application of treatment guidelines—rather than attention to individual needs and circumstances—may harm some patients. One narrative focused on the default recommendation or practice of ceasing mental health medications in pregnant women. The physician wrote: “We need to step back and view medication exposure in pregnancy as only one of the many potential risks faced by seriously mentally ill women when they are pregnant. We have a long way to go to provide the care and help these women and their unborn babies need and deserve” (Dossett, Wusirika, and Burt 2017, 30). Physicians understood the need to advocate in the individual patient’s best interests but also recognized the associated challenges when working within or with systems like hospitals or insurance companies. One physician noted: “We need a system that rewards the physician who understands the limitations of guidelines” (Sarosi 2015, 563).
Physicians’ narratives also emphasized that a lack of advocacy at the population level reinforces health disparities. In one narrative, a physician confronted his own political inaction in advocating for underserved patients: “Should my desire for apolitical professionalism outweigh the needs of black patients who die as a result of collective inaction? Should I allow policy leaders to perpetuate racial disparities in access to care, while Black Lives Matter protesters are shot in the street? And why should I be so reluctant to outwardly promote an agenda of health care expansion, simply because it may be interpreted as favoring one political party over another? My typical response to these questions is, unfortunately, silence” (O’Connor 2016, 2170). When a patient encounter placed racial disparities at the forefront of this physician’s practice, he was left questioning the limits and responsibilities of his role. A unique aspect of this physician’s writing is the way he appears to shoulder blame so personally, directing it inward and calling out his own privileging of apoliticism over advocacy, rather than pointing to the broader culture of medicine.
The frenzied pace of work
In their narratives, physicians considered how medicine’s frenzied pace constrains their ability to interact meaningfully with patients (despite their desire to do so), limits their opportunities for a social or family life, and contributes to burnout. Physicians reflected on the demands and sacrifices of a career in medicine and, as one physician described it, the “fine and costly line” that they walk between love of family and dedication to the job: “Will they one day understand the reason for all those missed moments, or will they resent me for it?” (Waxman 2017, 752). Furthermore, physicians’ patient load and number of tasks on any given day are overwhelming, particularly for trainees, and the time available to complete these tasks conflicts with the time needed to ask deeper questions of patients that lead to better diagnoses and/or treatment and that build rapport and trust. When ‘task’ trumps ‘patient,’ as physicians lamented it often does, then patient-centred care dwindles. A physician described such a moment: “This would have been the time to ask him the questions that it hadn’t been possible to ask when he first arrived, to ask him what his life was like before he was in the hospital. Where did he sleep at night? What demons drove him to drink so much? Were there any demons that drove him to drink? Did he want to quit? But I didn’t do that. Instead, I rushed in, checked his vital signs, listened quickly to his lungs, and asked briefly whether he needed anything. I remembered my tasks, checked my boxes, and kept moving” (Gregg 2017, 1442).
This group of narratives focused on the day-to-day fatigue that physicians experience on the job, and the ways that the volume of work and the long hours contributed to burnout, dissatisfaction and general despair among physicians. One physician reflected on a rotation during his internship when “days were a frantic blur, a whirlwind of activity, endless scut lists that I never seemed to get to the bottom of” (Muller 2017b, 907). About the impact of this period in his training, he wrote: “I survived because the rotation eventually played itself out. I had held my breath long enough to make it to the end of that long, dark tunnel. That was rock bottom for me: hopeless and helpless with something that I only later recognized as the desire to die in order to escape from what seemed at the time to be a fate worse than death” (907).
The experience of stigma
The final flaw related to the culture of medicine was stigma. Physicians wrote about how stereotypes and biases about race, addiction, and disability pervade medical culture and affect both physicians and patients. The stigma—and silence—around mental health and addiction within the profession contributes to burnout and self-harm or suicide. To illustrate, one physician with a history of depression, suicidal ideation, and alcoholism commented that he “often felt branded, tarnished, and broken in a system that still embroiders a scarlet letter on the chest of anyone with a mental health condition” (Hill 2017, 1103). He shared this lesson from his own “recovery journey” (1103): “It’s ironic that mental health conditions are so stigmatized in the medical profession, given that physicians long fought to categorize them as medical diagnoses. Why do medical institutions tolerate the fact that more than half their personnel have signs or symptoms of burnout? When mental health conditions come too close to us, we tend to look away—or to look with pity, exclusion, or shame. We may brand physicians who’ve had mental health conditions, while fostering environments that impede their ability to become and remain well” (1104). Implicit biases further contribute to health disparities and shape the treatment pathways for patients with mental illness, addiction or disability, often manifesting in substandard treatment or serious harm. In reference to disability, one physician wrote: “Jean faced attitudinal barriers: clinicians’ attitudes led them to assume that Jean couldn’t handle chemotherapy, which they did not confirm before making treatment decisions” (Rosland 2015, 2229). Thus, implicit biases as well as stereotypes rooted in faulty assumptions about race, addiction and disability pervade medical culture and affect both the practice of medicine and relations between peers in subtle and overt ways.
Restrictive institutional practices
Physicians wrote about how institutional practices, such as staffing, service delivery or discharge guidelines, are inflexible and not patient centred. Narratives in this grouping drew attention to the unintended effects of institutional practices and policies on the quality of care that patients receive as well as on physicians’ wellbeing. About weekend staffing practices, one physician-turned-family caregiver noted that “[f]rom the physician’s perspective, weekends in the hospital are all about coverage” (Klass 2015, 402). She went on to share this insight about the “comfortless landscape” she experienced as a caregiver on weekends: “But when your parent or child is sick and scared, it can be shocking to hear, over and over, about the ways that weekends are slower and things don’t get done. The sick person’s calendar is marked out in difficult days and sleepless nights, or in agonizing hours, but it takes no notice of days of the week, makes no distinction between time and overtime” (403). Such a lack of patient-centredness in institutional practices may reflect what one physician described as a shift over the last decade where “our collective attention has turned away from relational aspects of medical care and been replaced by a greater emphasis on transactional aspects” (Sinsky 2017, 600). In this view, the values of “relationship, continuity, broad competence, and satisfaction” give way to a system of patient care that is “increasingly fragmented and shift-oriented” (600). One physician wrote: “Physicians have always served patients, but we’ve also started to serve the systems around us—hospital systems, information technology systems, and, especially, the great amorphous ‘health care system.’ The systems stake their own claim to taking care of patients” (Clark 2016, 872). Institutional practices that privilege efficiency or finances over humanistic care erode the physician-patient relationship and lead to feelings of dissatisfaction among physicians who experience a disconnect between their professional values and institutional priorities. Writing about the practice of transmitting test results electronically to patients, one physician noted: “As we allow ourselves to become more distant from our patients—acting merely as technicians or proceduralists—we abdicate our role as humanitarian physicians. And as the chasm between physician and patient widens, we ourselves become more disengaged, frustrated, and disappointed with our careers” (Friedman 2016, 2276). Here, the physician’s choice of words—“as we allow ourselves”—positioned him at the centre of the flawed system, rather than lamenting a system that he was an outsider to.
Limited and disparate healthcare resources
Physicians, in their narratives, also explored how resource limitations and disparities impact the quality of care, especially for marginalized populations. They wrote about how inadequate access to health care resources—such as specialist and general practitioners, medications, screening, and other lifesaving technologies—persists in many communities. While underdeveloped countries have the fewest resources to distribute, resource limitations and disparities persist in the developed world too. Moreover, physicians wrote about how specific populations are more greatly impacted by resource limitations and disparities than others, either because of geography (i.e., rural or northern communities or the Global South), specialized needs (i.e., those with mental illness or disability or older adults), or both. As an example, an oncologist reflected on the impact of a lack of mental health resources in rural communities in the United States: “Her death left me with feelings of profound failure. What good were targeted therapies when her coexisting mental illness prevented her from taking them? And I had been unable to palliate her suffering until her very last days of life.... I could not provide [effective] care because I lacked the tools and training to overcome the barrier of mental illness” (Lycette 2016, 2221). This quote exemplifies what many narratives communicated—that resource limitations and disparities contribute to distress and burnout for physicians who struggle to provide minimal standards of care in resource-strapped settings. Physicians wrote about times when they found themselves in stressful situations and settings where their ability to provide quality medical care and to cultivate meaningful doctor-patient relationships was limited. In such times, the focus was on basic health care, not building relationships, not patient-centredness, and not humanistic care.
How physicians perceived their own agency to change the flawed ‘system’
Most physicians positioned themselves as insiders to the flawed system they wrote about (e.g., as members of a professional culture that stigmatizes addiction among its own) (Hill 2017, 1103-4) rather than as outsiders to it (e.g., as supporting a patient in navigating a ‘flawed’ health insurance system) (Campbell 2017, 1953-4). In a majority of narratives, physicians expressed agency—individual foremost and then collective—to bring about change. This sense of agency was most prominent when writing about flaws related to the professional culture of medicine, notably communication failures, the hidden curriculum, and stigma. Physicians often pointed to the ways the profession is not living up to its ideals and took the position that they could—and should—do something about it, starting with individual acts of resistance or change. In one narrative, a first-year resident described her decision to linger at the bedside of a patient with an impending cancer diagnosis rather than be on time for morning report: “Over the past 3 hours, you’ve placed more than 50 orders, answered 17 pages, listened to 14 hearts and 28 lungs, talked to countless patients, nurses, residents, and social workers, but you realize that this is the only real doctoring you’ll do today. These are the 60 seconds that will matter” (Singh 2017, 2317). Amid the frenzied pace of the clinic, this “overworked, self-doubting, burned out” resident made a choice to prioritize the patient (2317).
Conversely, physicians were most apt to position themselves as outsiders to the flawed system when writing about resource limitations and disparities. Physicians were also most apt to express a complicity or powerlessness when writing about restrictive institutional practices that prioritize economics and efficiency over patient-centred care as well as resource limitations and disparities that may call for broader administrative or socio-political change. For example, one “fly-in physician” (Jegen 2017, E782) serving remote northern Canada wrote this about a rushed patient encounter:
In my rush and exasperation to get to my flight, I explained that I still had booked patients to see and a flight at 5 pm, and simply could not see her for this today. I gave Dora the option of seeing the female nurse or to be booked with the next doctor in one month. Dora kept crying and then said, ‘But you are the doctor and you’re right here.’ This stopped me in my tracks. I do not remember the last time that I felt that …. feeling that I was so deeply in the wrong. I am the doctor. I was right there. (E783)
Here, the physician’s sense of shame reflects the struggle between a culturally-influenced sense of personal responsibility to ‘show up’ for the patient and broader system issues that were largely outside the physician’s control.