Generating a Social Movement Online Community through an Online Discourse: The Case of Myalgic Encephalomyelitis
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Online communities, created and sustained by people sharing and discussing texts on the internet, play an increasingly important role in social health movements. In this essay, we explore a collective mobilization in miniature through an in-depth analysis of two satiric texts from an online community for people with myalgic encephalomyelitis (ME). By blending a sociological analysis with a rhetorical exploration of these texts, our aim is to grasp the discursive generation of a social movement online community set up by sufferers themselves to negotiate and contest the dominating biomedical perception of their condition.
KeywordsOnline research Chronic illness Fatigue/exhaustion Interdisciplinary research Discourse analysis
The authors disclosed receipt of the following financial support for the research, authorship, and publication of this article: The Norweigan Research Council, Research Program of Health and Care Sciences (grant no. 212978 and 204324).
- Aronowitz, Robert A. 1998. Making Sense of Illness: Science, Society and Disease. Cambridge: Cambridge University Press.Google Scholar
- Bakhtin, Mikhail M. 1981. The Dialogic Imagination. Austin: University of Texas Press.Google Scholar
- Brenu, Ekua W., Lotti Tajouri, Kevin J. Ashton, Donald R. Staines and Sonya Marshall-Gradisnik. 2013. “Chronic Fatigue Syndrome/Myalgic Encephalomyelitis and Parallels with Autoimmune Disorders.” In Genes and Autoimmunity, edited by Spaska Angelova Stanilova, 205–35. InTech. doi: 10.5772/53440.
- Brurberg, Kjetil G., Marita S. Fønhus, Lillebeth Larun, Signe Flottorp, and Kirsti Malterud. 2014. “Case Definitions for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME): Asystematic Review.” BMJ Open 4. doi:10.1136/bmjopen-2013-003973.Google Scholar
- de Wolfe, Patricia. 2009. “ME: The Rise and Fall of Media Sensation.” Medical Sociology Online 4:2-13.Google Scholar
- della Porta, Donatella and Mario Diani. 2006. Social Movements: An Introduction. Malden: Blackwell Publishing.Google Scholar
- European ME Alliance. 2014. “About Us.” http://www.euro-me.org/about.htm.
- Fairclough, Norman. 2013. Critical Discourse Analysis: The Critical Study of Language. New York: Routledge.Google Scholar
- Foucault, Michael. 1980. Power/Knowledge. New York: Pantheon.Google Scholar
- Holberg, Ludvig. 1722/2012. Comedies by Holberg; Jeppe of the Hill, The Political Thinker, Erasmus Montanus. General Books LLC: www.general-ebooks.com.Google Scholar
- Invest in ME. 2008. “Norway Establishes ME Centre.” Accessed March 15, 2016. http://www.investinme.org/IIME%20Newsletter%20Dec%2008.htm.
- Iser, Wolfgang. 1974. The Implied Reader: Patterns of Communication in Prose Fiction from Bunyan to Beckett. Baltimore: Johns Hopkins University Press.Google Scholar
- Jutel, Annemarie D. 2011. Putting a Name to it. Diagnosises in Contemporary Society. Baltimore: Johns Hopkins University Press.Google Scholar
- Kuipers, G. 2015. Good Humour, Bad Taste: A Sociology of the Joke. Berlin:Walter de Gruyter GmbH & Co KG.Google Scholar
- Ministry of Justice and Public Security 2013. “Lov om opphavsrett til åndsverk (åndsverkloven)” [The Copyright Act]. Accessed March 15, 2016. http://lovdata.no/dokument/NL/lov/1961-05-12-2.
- Norwegian Statistics. 2015. Bruk av IKT i husholdningene, 2015, 2. kvartal [Use of IKT in households, 2015, 2. quarter]. Accessed March 15, 2016. http://ssb.no/ikthus. https://www.ssb.no/teknologi-og-innovasjon/statistikker/ikthus/aar/2015-10-01.
- Shifman, L. 2007. “Humor in the Age of Digital Reproduction: Continuity and Change in Internet-based Comic Texts.” International Journal of Communication 23:187-209.Google Scholar