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Social and Gendered Readings of Illness Narratives

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Abstract

This essay recognizes that the interactions that define medical care are problematic and that narrative is invoked to overcome these strains. Being grounded in science, medicine, too, might be influenced by a particular world-view that arose in the natural philosophy of the Scientific Revolution. If narrative responds to this sort of medicine, it may retain traces of this mindset. A feminist approach responds to this viewpoint and may used beneficially to analyze both the story of medicine and the stories within medicine. Tensions discussed from this perspective are those between sickness and health and those between patient and provider; also questioned are suitable form(s) of narrative and whose narratives are valued. Suggestions for broadening narrative to address these issues include letting the body speak for itself, overcoming the power differential in the patient/provider interaction and using standpoints to foster a more equal and just medical system.

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References

  • Anzaldua, Gloria. 2007. Borderlands/La Frontera. San Franciso:Aunt Lute Press.

    Google Scholar 

  • Bartels, Emily. 2009. “Outside the Box: Surviving Survival.” Literature and Medicine 28 (2): 237–252.

    Google Scholar 

  • Benatar, Soloman B., Donald M. Berwick et al. 1999. “A Shared Statement of Ethical Principles for Those Who Shape and Give Health Care.” Ann. Internal Med. 130 (2): 134–147.

    Google Scholar 

  • Bernard, Claude. 1957. An Introduction to the Study of Experimental Medicine. New York: Dover Publications.

    Google Scholar 

  • Bordieu, Pierre and Loic Wacquant. 1992. An Invitation to Reflexive Sociology. Chicago: University of Chicago Press.

    Google Scholar 

  • Bordo, Susan. 1999. “Selections from The Flight to Objectivity.” In Feminist Interpretation of Rene Descartes, edited by Susan Bordo, 48–69. University Park PA: Penn State University Press.

    Google Scholar 

  • Burney, Fanny, 1811. “Olde Tyme Mastectomy.” Accessed on May 19, 2013. http://wesclark.com/jw/mastectomy.html.

  • Charon, Rita. 2006a. Narrative Medicine: Honoring the Stories of Illness. Oxford and New York: Oxford University Press.

    Google Scholar 

  • ———. 2006b. “Narrative Medicine: A Model for Empathy, Reflection, Profession and Trust.” Journal of the American Medical Association 286:1897–1902.

    Article  Google Scholar 

  • Collins, Patricia Hill. 2004. “Comment on ‘Hekman’s Truth and Method: Feminist Standpoint Theory Revisited’: Where’s the Power?” In The Feminist Standpoint Theory Reader: Intellectual and Political Controversies, edited by Sandra Harding, 103–126. New York and London: Routledge.

    Google Scholar 

  • Dackerman, Susan. 2011. Prints and the Pursuit of Knowledge in Early Modern Europe. New Haven: Yale University Press.

    Google Scholar 

  • DasGupta, Sayantani, 2008. “The Art of Medicine: Narrative Humility.” The Lancet 371:980–981.

    Article  Google Scholar 

  • Das Gupta, Sayantani and Marcia Hurst. 2007. Stories of Illness and Healing: Women Write their Bodies. Kent, OH: Kent University Press.

    Google Scholar 

  • DeShazer, Mary K. 2009. “Cancer Narratives and an Ethics of Commemoration: Susan Sontag, Annie Liebovitz and David Rieff.” Literature and Medicine 28:215–236.

    Google Scholar 

  • Duden, Barbara. 1991. The Woman Beneath the Skin: A Doctor’s Patients in Eighteenth-Century Germany. Cambridge: Harvard University Press.

    Google Scholar 

  • Ehrenreich, Barbara and Dierdre English. 2005. For Her Own Good: Two Centuries of the Experts’ Advice to Women. New York: Anchor Books.

    Google Scholar 

  • Farmer, Paul. 2003. Patholgies of Power: Health, Human Rights, and the New War on the Poor. Berkeley and Los Angeles: Unuversity of California Press.

    Google Scholar 

  • Fleck, Ludwik. 1979. Genesis and Development of a Scientific Fact. Chicago: University of Chicago Press.

    Google Scholar 

  • Foucault, Michel. 1994. The Birth of the Clinic. New York: Vintage Books.

    Google Scholar 

  • Frank, Arthur. 1995. The Wounded Storyteller; Body, Illness and Ethics. Chicago and NY: Chicago University Press.

    Book  Google Scholar 

  • Frosch, D. 2012. “Authoritarian Physicians and Patients’ Fear of Being Labeled Difficult.” Health Affairs 31:1030–1038.

    Article  Google Scholar 

  • Garden, Rebecca. 2007. “The Problem of Empathy: Medicine and the Humanities.” New Literary History 38:551–567.

    Article  Google Scholar 

  • Green, Monica. 2008. Making Women’s Medicine Masculine: The Rise of Male Authority in Pre-Modern Gynaecology. Oxford: Oxford University Press.

    Google Scholar 

  • Greenhalgh, Trisha and Brian Hurwitz. 1999. “Why Study Narrative?” British Medical Journal 318: 48–50.

    Article  Google Scholar 

  • Halpern, Jodi. 2003. “What is Clinical Empathy?” J. Gen. Inter. Med. 18:670-674.

    Article  Google Scholar 

  • Harding, Sandra. 1991. Whose Science? Whose Knowledge; Thinking from Women’s Lives. Ithaca NY: Cornell University Press.

    Google Scholar 

  • Haraway, Donna. 1989. Primate Visions: Gender, Race and Nature in the World of Modern Science. New York and London: Routledge.

    Google Scholar 

  • ———. 1991. Simians, Cyborgs, and Women: The Reinvention of Nature. New York and London: Routledge.

    Google Scholar 

  • Helle, Anita. 2011. “When the Photograph Speaks.” Literature and Medicine 29:297–324.

    Article  Google Scholar 

  • Hess, David J. 1997. Science Studies: An Advanced Introduction. New York: New York University Press.

    Google Scholar 

  • Holmes, Frederick L. 1967. “Origins of the Concept of the Milieu Interieur.” In Claude Bernard and Experimental Medicine, edited by Francisco Grande and Maurice B. Visscher, 179–191. Cambridge: Schenkman Publishing Company, Inc.

    Google Scholar 

  • Hubbard, Ruth. 1990. The Politics of Women’s Biology. New Brunswick: Rutgers University Press.

    Google Scholar 

  • Judson, Horace F. 1979. The Eighth Day of Creation; The Makers of the Revolution in Biology. New York: Simon and Schuster.

    Google Scholar 

  • Kagan, H. Lee. 2012. “E.R.: Port-au-Prince.” New York Times Magazine, January 15, 58.

  • Kay, Lily E. 1993. The Molecular Vision of Life: Caltech, the Rockefeller Foundation and the Rise of the New Biology. New York: Oxford University Press.

    Google Scholar 

  • ———. 2000. Who Wrote the Book of Life: A History of the Genetic Code. Stanford CA: Stanford University Press.

    Google Scholar 

  • Keller, Evelyn F. 1985. Reflections on Gender and Science. New York and New Haven: Yale University Press.

    Google Scholar 

  • ———. 1992. Secrets of Life, Secrets of Death: Essays on Language, Gender and Science. New York and London: Routledge.

    Google Scholar 

  • ———. 1995. Refiguring Life: Metaphors of Twentieth-Century Biology. New York: Columbia University Press.

    Google Scholar 

  • ———. 2000. The Century of the Gene. Cambridge and London: Harvard University Press.

    Google Scholar 

  • Kuhn, Thomas. 1970. The Structure of Scientific Revolutions. Chicago: University of Chicago Press.

    Google Scholar 

  • Latour, Bruno. 1988. Science in Action. Cambridge: Harvard University Press.

    Google Scholar 

  • Latour, Bruno and Steve Woolgar. 1986. Laboratory Life. Princeton: Princeton University Press.

    Google Scholar 

  • Liebovitz, Annie. 2006. A Photographer’s Life, 1990–2005. New York: Random House.

    Google Scholar 

  • Lorde, Audrey. 1980. The Cancer Journals. San Francisco, Aunt Lute Books.

    Google Scholar 

  • Mackenzie, Catriona. 2010. “Conceptions of Autonomy and Conceptions of the Body in Bioethics.” In Feminist Bioethics: At the Center, On the Margins, edited by Jackie Leach Scully, Laura E. Baldwin-Ragaven and Petya Fitzpatrick, 71–90. Baltimore: The Johns Hopkins University Press.

    Google Scholar 

  • Merchant, Carolyn. 1980. The Death of Nature: Women, Ecology and the Scientific Revolution. New York: Harper and Row.

    Google Scholar 

  • Morris, David B. 1991. The Culture of Pain. Berkeley: University of California Press.

    Google Scholar 

  • Proctor, Robert N. 1995. Cancer Wars: How Politics Shapes What We Know and Don’t Know About Cancer. New York: Basic Books.

    Google Scholar 

  • Qualtere-Burcher, Paul. 2009. “The Just Distance: Narrativity, Singularity and Relationality as the Source of a New Biomedical Principal.” The Journal of Clinical Ethics 20:299–308.

    Google Scholar 

  • Rieff, David, 2008. Swimming in a Sea of Death: A Son’s Memoir. New York: Simon and Schuster.

    Google Scholar 

  • Shapin, Steven, 1996. The Scientific Revolution. Chicago and London: Chicago University Press.

    Book  Google Scholar 

  • Shapin, Steven and S. Schaeffer. 1989. Leviathan and the Air Pump: Hobbes, Boyle and the Experimental Life. Princeton: Princeton University Press.

    Google Scholar 

  • Sontag, Susan. 1990. Illness as Metaphor and AIDS and Its Metaphors. New York: Picador.

    Google Scholar 

  • Starr, Paul. 1982. The Social Transformation of American Medicine. New York: Basic Books.

    Google Scholar 

  • Tervalon, Melanie and Jann Murray-Garcia. 1998. “Cultural Humility versus Cultural Competence: A Critical Distinction in Defining Physician Training Outcomes in Multicultural Education.” J. Health Care for the Poor and Underserved 9:117–235.

    Article  Google Scholar 

  • Virtanen, Reino, 1960. Claude Bernard and His Place in the History of Ideas. Lincoln: University of Nebraska Press.

    Google Scholar 

  • Wear, Delese and Julie M. Altman. 2005. “The Limits of Narrative: Medical Student Resistance to Confronting Inequality and Oppression in Literature and Beyond. Medical Education 39:1056–1065.

    Article  Google Scholar 

Download references

Acknowledgments

The author acknowledges the kind and cogent comments of David Bleich and Laura Ackerman Smoller.

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Correspondence to Muriel Lederman.

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Lederman, M. Social and Gendered Readings of Illness Narratives. J Med Humanit 37, 275–288 (2016). https://doi.org/10.1007/s10912-014-9289-1

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