The Catalonian Expert Patient Programme for Chagas Disease: An Approach to Comprehensive Care Involving Affected Individuals

Abstract

The Catalonian Expert Patient Programme on Chagas disease is a initiative, which is part of the Chronic Disease Programme. It aims to boost responsibility of patients for their own health and to promote self-care. The programme is based on nine sessions conducted by an expert patient. Evaluation was focusing in: habits and lifestyle/self-care, knowledge of disease, perception of health, self-esteem, participant satisfaction, and compliance with medical follow-up visits. Eighteen participants initiated the programme and 15 completed it. The participants were Bolivians. The 66.7 % of them had been diagnosed with chagas disease in Spain. The 100 % mentioned that they would participate in this activity again and would recommend it to family and friends. The knowledge about disease improve after sessions. The method used in the programme could serve as a key strategy in the field of comprehensive care for individuals with this disease.

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Acknowledgments

We would like to thank the Catalonian Institute of Health for entrusting us with the challenge of implementing the first Catalonian Expert Patient Programme® on a neglected tropical disease like Chagas disease. We would also like to thank the World Health Organization Department of control of Neglected Tropical Diseases for supporting our initiative, and all the individuals affected by the disease for sharing and exchanging their knowledge with us. Estefa Choque collaborated in the adaptations of the language of the guidelines, support of the expert patient and observation in the groups.

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Correspondence to Isabel Claveria Guiu.

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This project is the first article that explains results and methodology of peer education for people affected by a Chagas disease in a non-endemic country.

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Claveria Guiu, I., Caro Mendivelso, J., Ouaarab Essadek, H. et al. The Catalonian Expert Patient Programme for Chagas Disease: An Approach to Comprehensive Care Involving Affected Individuals. J Immigrant Minority Health 19, 80–90 (2017). https://doi.org/10.1007/s10903-016-0345-y

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Keywords

  • Expert patient
  • Chagas disease
  • Comprehensive care
  • Chronic disease