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Iceland—Genetic Counseling Services

  • Genetic Counseling: A Global Perspective
  • Published:
Journal of Genetic Counseling

Abstract

This brief report aims to give an overview of the history and current status of clinical genetics services in Iceland and specific genetic counseling considerations for Iceland’s population. Presently, there are two part time medical geneticists and one full time genetic counselor with an MSc education from Cardiff, within the Department of Genetic and Molecular Medicine, based in Iceland’s only tertiary healthcare facility, Landspitali, the National University Hospital. An oncologist (20 %) also contributes to the cancer genetic counseling service. In addition, a pediatric medical geneticist has a 25 % appointment at the Children’s Hospital. No other health care organization offers genetic counseling, and there are no private genetic counseling services.

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References

  • Arnason, E. (2003). Genetic heterogeneity of Icelanders. [Research Support, Non-U.S. Gov’t]. Annals of Human Genetics, 67(Pt 1), 5–16.

    Article  PubMed  CAS  Google Scholar 

  • Eurogentest (Producer) (2010). Recommendations for genetic counselling related to genetic testing. Retrieved from http://www.eurogentest.org/fileadmin/templates/eugt/pdf/guidelines_of_GC_final.pdf.

  • Green, R. C., Berg, J. S., Grody, W. W., Kalia, S. S., Korf, B. R., Martin, C. L., et al. (2013). ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing. Genetics in Medicine, 15(7), 565–574.

    Article  PubMed  CAS  Google Scholar 

  • Gulcher, J., Helgason, A., & Stefansson, K. (2000). Genetic homogeneity of Icelanders. [Comment Letter]. Nature Genetics, 26(4), 395.

    Article  PubMed  CAS  Google Scholar 

  • Helgason, A., Sigureth Ardottir, S., Nicholson, J., Sykes, B., Hill, E. W., Bradley, D. G., et al. (2000). Estimating Scandinavian and Gaelic ancestry in the male settlers of Iceland. American Journal of Human Genetics, 67(3), 697–717.

    Article  PubMed  CAS  Google Scholar 

  • Iceland, S. (2012). Iceland in figures 2012.

  • Iceland.is. (2012). Promote Iceland. Retrieved July 7th, 2012, from http://www.iceland.is/the-big-picture/quick-facts/.

  • Jonsdottir, B., Bergsteinsson, H., & Baldursson, O. (2008). Cystic fibrosis–review. [Review]. Læknablađiđ, 94(12), 831–837.

    PubMed  Google Scholar 

  • Leifsdottir, G., Benedikz, J. E., Johannesson, G., Jonsson, J. J., & Sveinbjornsdottir, S. (2005). Prevalence of myotonic dystrophy in Iceland. Læknablađiđ, 91(11), 829–834.

    PubMed  Google Scholar 

  • McHugh, D., Cameron, C. A., Abdenur, J. E., Abdulrahman, M., Adair, O., Al Nuaimi, S. A., et al. (2011). Clinical validation of cutoff target ranges in newborn screening of metabolic disorders by tandem mass spectrometry: a worldwide collaborative project. Genetics in Medicine, 13(3), 230–254.

    Article  PubMed  Google Scholar 

  • Palsdottir, A., Helgason, A., Palsson, S., Bjornsson, H. T., Bragason, B. T., Gretarsdottir, S., et al. (2008). A drastic reduction in the life span of cystatin C L68Q carriers due to life-style changes during the last two centuries. [Research Support, Non-U.S. Gov’t]. PLoS Genetics, 4(6), e1000099.

    Article  PubMed  Google Scholar 

  • Physicians, R. C. O. (2013). Consultant physicians working with patients, online update (5th ed.). London: RCP.

    Google Scholar 

  • Stefansdottir, V., Johannsson, O. T., Skirton, H., Tryggvadottir, L., Tulinius, H., & Jonsson, J. J. (2013). The use of genealogy databases for risk assessment in genetic health service: a systematic review. Journal of Community Genetics, 4(1), 1–7.

    Article  PubMed  Google Scholar 

  • Sub-Committee, T. C. G. (2005). Clinical standards for a Genetics Unit. USA.

  • Tourism, transport and IT 2011. (2006). Iceland: Statice.

  • Tryggvadottir, L., Olafsdottir, E. J., Gudlaugsdottir, S., Thorlacius, S., Jonasson, J. G., Tulinius, H., et al. (2003). BRCA2 mutation carriers, reproductive factors and breast cancer risk. Breast Cancer Research, 5(5), R121–R128.

    Google Scholar 

  • Tulinius, H. (2011). Multigenerational information: the example of the Icelandic Genealogy Database. Methods in Molecular Biology, 675, 221–229.

    Article  PubMed  Google Scholar 

  • Þ., P. (2004). Framtíðin á fasteignamarkaði. Reykjavík, Iceland: KB banki.

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Correspondence to Vigdis Stefansdottir.

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Stefansdottir, V., Arngrimsson, R. & Jonsson, J.J. Iceland—Genetic Counseling Services. J Genet Counsel 22, 907–910 (2013). https://doi.org/10.1007/s10897-013-9640-0

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  • DOI: https://doi.org/10.1007/s10897-013-9640-0

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