Journal of Genetic Counseling

, Volume 22, Issue 4, pp 407–410 | Cite as

Stem Cell Research and Therapy: The Position of the National Society of Genetic Counselors

  • Brianne Kirkpatrick
  • Laura Hercher
  • Flavia Facio
  • Jill Fonda
  • Susan Hahn
  • Julie Sapp
  • Heather Zierhut
  • The Stem Cell Research Task Force on behalf of the Public Policy Committee
Review Article

Abstract

Stem cells’ regenerative capabilities present a unique opportunity to treat human illness and injury. In 2003, the National Society of Genetic Counselors (NSGC) issued a position statement supporting stem cell use in research settings. Almost a decade later, in response to legislative and technological developments within the field of stem cell science, NSGC convened a task force to revisit and update its statement on stem cell research. In doing so, the Task Force developed a new statement reaffirming NSGC’s support for stem cell research and endorsed continued stem cell therapy development. NSGC recognizes that the unique potential of stem cell therapy to treat human disease and injury can be realized only through research on a diverse array of stem cell lines drawn from multiple sources, including embryonic, cord blood, and adult cells. NSGC supports the use of stem cells in research and clinical settings when practices adhere to defined ethical and legal guidelines. Available stem cell lines should reflect our genetically diverse population, and donor recruitment should be without discrimination or coercion and include a thorough and dynamic informed consent process.

Keywords

Stem cell Stem cell research Stem cell therapy Position statement National Society of Genetic Counselors NSGC 

References

  1. National Institutes of Health. (2009a). Federal policy, stem cell information. Retrieved from http://stemcells.nih.gov/policy
  2. National Institutes of Health. (2009b). Stem cell basics, stem cell information. Retrieved from http://stemcells.nih.gov/info/basics
  3. Schwartz, S. D. (2012). Embryonic stem cell trials for macular degeneration: a preliminary report. Lancet, 379(9817), 713–720.PubMedCrossRefGoogle Scholar
  4. Svendsen, C. N. (2008). Dickey amendment. Encyclopedia of Stem Cell Research, 1, 164–166.Google Scholar

Copyright information

© National Society of Genetic Counselors, Inc. 2013

Authors and Affiliations

  • Brianne Kirkpatrick
    • 1
  • Laura Hercher
    • 1
  • Flavia Facio
    • 1
  • Jill Fonda
    • 1
  • Susan Hahn
    • 1
  • Julie Sapp
    • 1
  • Heather Zierhut
    • 1
  • The Stem Cell Research Task Force on behalf of the Public Policy Committee
  1. 1.National Society of Genetic CounselorsChicagoUSA

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