Abstract
Recent advances in syndromic identification have resulted in genetic counselors providing services to increasing numbers of people with intellectual disability (ID) and their families. However, from the standpoint of professionals who support people with ID, genetic counselors are on the periphery of the extensive ID social service system. Reasons for this, based on a review of historical circumstances, definitional differences funding and a divergence of approaches, are critically presented and discussed. A model is offered that would allow for a closer working relationship and an integrated team approach that includes genetic counselors.
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Simon, E.W. Are Genetic Counselors and the Social Service System for People with Intellectual Disability Reaching Rapprochement?. J Genet Counsel 21, 777–783 (2012). https://doi.org/10.1007/s10897-012-9525-7
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DOI: https://doi.org/10.1007/s10897-012-9525-7