Our purpose for this study was to investigate how parents of children with Autism Spectrum Disorder (ASD) rate their child’s quality of life (QOL). We began by developing a parent proxy-report QOL assessment instrument with subscales and then distributed it statewide to parents of children with ASD. The scale demonstrated strong internal consistency with a full-scale Cronbach’s alpha of .835. Our results indicated that 0% of the parents rated their child as having a poor QOL, 66% rated their child as having a good QOL, and 16% rated their child as having an excellent QOL. Our results support the notion that QOL can be assessed in early childhood to develop and ensure effective programing across the lifespan for an individual with ASD.
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All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional review board and/or the national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.
We obtained informed consent for this web-based survey research by including an introductory paragraph on a web page that contained (a) the elements of required consent and (b) a link to the survey site for those individuals who voluntarily desired to participate.
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Cholewicki, J., Drasgow, E. & Chezan, L.C. Parental Perception of Quality of Life for Children with Autism Spectrum Disorder. J Dev Phys Disabil 31, 575–592 (2019). https://doi.org/10.1007/s10882-019-09660-w
- Quality of life
- Autism Spectrum Disorder