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Psychological Needs and Services in a Pediatric Multidisciplinary Celiac Disease Clinic

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Abstract

This study aims to describe the psychological needs in children with celiac disease (CD) and to examine the feasibility of psychological consultation in a multidisciplinary clinic. Participants (N = 69) included children with CD and their parents who completed a pre-clinic mental health survey and a 30-min psychological consultation as part of a multidisciplinary clinic (including gastroenterology, nutrition, education, neurology, and neuropsychology). Quantitative and qualitative analyses examined psychological needs, experiences, and satisfaction. The psychologist identified clinically significant symptoms and provided referrals in 49% of children. There were no significant differences by time since CD diagnosis. During the psychology consultation, families discussed emotional adjustment, impact on life and physical well-being, and management of the gluten-free diet. Parents reported high levels of satisfaction from the clinic visit. We identified frequent psychological needs in pediatric CD. The multidisciplinary approach may be a feasible model for specialized, optimal treatment in this population.

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Acknowledgements

Dr. Katherine Kelly provided expert consultation on qualitative and mixed methodology. We would like to thank our patient families participating in this study for their time and willingness to share their experiences, all of whom made this study possible. We would also like to acknowledge our entire Celiac Disease Clinic team, including support staff, educators, and clinicians.

Funding

This study was funded by the Global Autoimmune Institute.

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Authors and Affiliations

  1. Children’s National Hospital, Washington, DC, USA

    Shayna Coburn, Meredith Rose, Randi Streisand, Maegan Sady, Margaret Parker, William Suslovic, Vanessa Weisbrod, Benny Kerzner & Ilana Kahn

  2. George Washington School of Medicine, Washington, DC, USA

    Shayna Coburn, Randi Streisand, Maegan Sady, Benny Kerzner & Ilana Kahn

  3. Attn: Gastroenterology, Children’s National Hospital, 111 Michigan Ave NW, Washington, DC, 20010, USA

    Shayna Coburn

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  1. Shayna Coburn
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Correspondence to Shayna Coburn.

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Conflicts of interest

Shayna Coburn, Meredith Rose, Randi Streisand, Maegan Sady, Margaret Parker, William Suslovic, Vanessa Weisbrod, Benny Kerzner, and Ilana Kahn declare that they have no conflict of interest.

Human and Animal Rights

Approval to conduct this study was obtained from the Institutional Review Board and data collection procedures followed the Declaration of Helsinki code of ethics by the World Medical Association.

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Coburn, S., Rose, M., Streisand, R. et al. Psychological Needs and Services in a Pediatric Multidisciplinary Celiac Disease Clinic. J Clin Psychol Med Settings 27, 433–443 (2020). https://doi.org/10.1007/s10880-019-09673-9

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  • DOI: https://doi.org/10.1007/s10880-019-09673-9

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