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Development and Validation of the Pediatric Diabetes Routines Questionnaire for Adolescents

  • Jessica S. Pierce
  • Sara S. Jordan
  • Randolph C. Arnau
Article

Abstract

This study describes the development and psychometric evaluation of an adolescent self-report version of the Pediatric Diabetes Routines Questionnaire (PDRQ:A), a measure of diabetes-specific routines for youth with type 1 diabetes, and further validation of the parent-version (PDRQ:P) in an adolescent sample. Participants included 120 parent–adolescent dyads (ages 12–17) and an additional 24 parents who completed measures of diabetes-specific adolescent routines, general adolescent routines, diabetes self-care, and family support of youth diabetes care. The PDRQ:P/A demonstrated good internal consistency, test–retest reliability, and parent–child agreement, and adequate validity coefficients. Confirmatory factor analysis supported a one-factor model. Promising results were obtained. The PDRQ:P/A is a clinically feasible parent- and self-report measure that can provide valuable information regarding how frequently adolescents engage in their diabetes management tasks in a consistent manner. Addition of an adolescent report format will enhance the utility of the measure for clinical and research use.

Keywords

Type 1 diabetes Routines Questionnaire Psychometrics Adolescents 

Notes

Funding

This research did not receive any specific grant from funding agencies in the public, commercial, or not-for-profit sectors.

Compliance with Ethical Standards

Conflict of interest

Author Jessica S. Pierce has received funding from National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases (Grant #: 1DP3DK108198-01). Authors Sara S. Jordan and Randolph C. Arnau declare no conflicts of interest.

Ethical Approval

All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.

Informed Consent

Informed consent was obtained from all individual participants included in the study.

References

  1. Agarwal, S., Jawad, A. F., & Miller, V. A. (2015). A multivariate model exploring the predictive value of demographic, adolescent, and family factors on glycemic control in adolescents with type 1 diabetes. Pediatric Diabetes.  https://doi.org/10.1111/pedi.12331.PubMedPubMedCentralGoogle Scholar
  2. American Diabetes Association. (2017). Standards of medical care in diabetes—2017. Diabetes Care, 40, 386–390.  https://doi.org/10.2337/dc14-S014.Google Scholar
  3. American Diabetes Association. (n.d.). The diabetes advisor: Hypoglycemia. Retrieved from https://professional.diabetes.org/sites/professional.diabetes.org/files/media/hypoglycemia.pdf. Accessed 20 Mar 2018.
  4. Anderson, B., Auslander, W. F., Jung, K. C., Miller, J. P., & Santiago, J. V. (1990). Assessing family sharing of diabetes responsibilities. Journal of Pediatric Psychology, 15(4), 477–492.CrossRefPubMedGoogle Scholar
  5. Betz, C. L., & Redclay, G. (2005). An exploratory study of future plans and extracurricular activities of transition-age youth and young adults. Issues in Comprehensive Pediatric Nursing, 28(1), 33–61.  https://doi.org/10.1080/01460860590916753.CrossRefPubMedGoogle Scholar
  6. Brown, T. A. (2006). Confirmatory factor analysis for applied research. New York: Guilford Press.Google Scholar
  7. Bureau of Labor Statistics. U.S. Department of Labor. (2017). Employment and unemployment among youth summary. Retrieved September 29, 2017, from https://www.bls.gov/news.release/youth.nr0.htm.
  8. Crespo, C., Santos, S., Canavarro, M. C., Kielpikowski, M., Pryor, J., & Féres-Carneiro, T. (2013). Family routines and rituals in the context of chronic conditions: A review. International Journal of Psychology.  https://doi.org/10.1080/00207594.2013.806811.PubMedGoogle Scholar
  9. Fiese, B., Winter, M., Anbar, R., Howell, K, & Poltrock, S. (2008). Family climate of routine asthma care: Associating perceived burden and mother-child interaction patterns to child well-being. Family Process, 47(1), 63–79.  https://doi.org/10.1111/j.1545-5300.2008.00239.x.CrossRefPubMedGoogle Scholar
  10. Fiese, B. H., Wamboldt, F. S., & Anbar, R. D. (2005). Family asthma management routines: Connections to medical adherence and quality of life. Journal of Pediatrics.  https://doi.org/10.1016/j.jpeds.2004.08.083.Google Scholar
  11. Greening, L., Stoppelbein, L., Konishi, C., Jordan, S. S., & Moll, G. (2007). Child routines and youths’ adherence to treatment for type 1 diabetes. Journal of Pediatric Psychology, 32(4), 437–447.  https://doi.org/10.1093/jpepsy/jsl029.CrossRefPubMedGoogle Scholar
  12. Hilliard, M. E., Wu, Y. P., Rausch, J., Dolan, L. M., & Hood, K. K. (2013). Predictors of deteriorations in diabetes management and control in adolescents with type 1 diabetes. Journal of Adolescent Health, 52(1), 28–34.  https://doi.org/10.1016/j.jadohealth.2012.05.009.CrossRefPubMedGoogle Scholar
  13. Hollingshead, A. B. (1975). A four-factor index of social status. New Haven, CT: Yale University Sociology Department.Google Scholar
  14. Hood, K. K., Butler, D. A., Anderson, B. J., & Laffel, L. M. B. (2007). Updated and revised diabetes family conflict scale. Diabetes Care, 30(7), 1764–1769.  https://doi.org/10.2337/dc06-2358.CrossRefPubMedPubMedCentralGoogle Scholar
  15. Hu, L. T., & Bentler, P. M. (1999). Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling, 6(1), 1–55.  https://doi.org/10.1080/10705519909540118.CrossRefGoogle Scholar
  16. Lewin, A. B., Geffken, G. R., Heidgerken, A. D., Duke, D. C., Novoa, W., Williams, L. B., & Storch, E. A. (2005). The diabetes family behavior checklist: A psychometric evaluation. Journal of Clinical Psychology in Medical Settings, 12(4), 315–322.  https://doi.org/10.1007/s10880-005-7817-x.CrossRefGoogle Scholar
  17. Lewin, A. B., LaGreca, A. M., Geffken, G. R., Williams, L. B., Duke, D. C., Storch, E. A., & Silverstein, J. H. (2009). Validity and reliability of an adolescent and parent rating scale of type 1 diabetes adherence behaviors: The self-care inventory (SCI). Journal of Pediatric Psychology, 34(9), 999–1007.  https://doi.org/10.1093/jpepsy/jsp032.CrossRefPubMedPubMedCentralGoogle Scholar
  18. Lord, J. H., Young, M. T., Gruhn, M. A., Grey, M., Delamater, A. M., & Jaser, S. S. (2015). Effect of race and marital status on mothers’ observed parenting and adolescent adjustment in youth with type 1 diabetes. Journal of Pediatric Psychology, 40(1), 132–143.  https://doi.org/10.1093/jpepsy/jsu078.CrossRefPubMedGoogle Scholar
  19. Markowitz, J. T., Garvey, K. C., & Laffel, L. M. B. (2015). Developmental changes in the roles of patients and families in type 1 diabetes management. Current Diabetes Reviews, 11(4), 231–238.CrossRefPubMedPubMedCentralGoogle Scholar
  20. Markson, S., & Fiese, B. (2000). Family rituals as a protective factor for children with asthma. Journal of Pediatric Psychology, 25(7), 471–479.  https://doi.org/10.1093/jpepsy/25.7.471.CrossRefPubMedGoogle Scholar
  21. Mellin, A. E., Neumark-Sztainer, D., Patterson, J., & Sockalosky, J. (2004). Unhealthy weight management behavior among adolescent girls with type I diabetes mellitus: The role of familial eating patterns and weight-related concerns. Journal of Adolescent Health, 35, 278–289.  https://doi.org/10.1016/j.jadohealth.2003.10.006.CrossRefPubMedGoogle Scholar
  22. Meyer, K. J. (2008). Development and validation of the Adolescent Routines Questionnaire: Parent and self-report. Unpublished doctoral dissertation, Louisiana State University, Baton Rouge. Retrieved from http://etd.lsu.edu/docs/available/etd-11062008130552/unrestricted/Meyer_diss.pdf. Accessed 20 Mar 2018.
  23. Muthén, L. K., & Muthén, B. O. (2007). Mplus user’s guide (5th ed.). Los Angeles: Muthén & Muthén.Google Scholar
  24. Pierce, J. S., & Jordan, S. S. (2012). Development and evaluation of the Pediatric Diabetes Routines Questionnaire. Children’s Health Care, 41(1), 56–77.  https://doi.org/10.1080/02739615.2012.643290.CrossRefGoogle Scholar
  25. Rausch, J., Hood, K. K., Delamater, A., Shroff Pendley, J., Rohan, J. M., Reeves, G., … Drotar, D. (2012). Changes in treatment adherence and glycemic control during the transition to adolescence in type 1 diabetes. Diabetes Care, 35, 1219–1224.CrossRefPubMedPubMedCentralGoogle Scholar
  26. Schafer, L. C., Glasgow, R. E., McCaul, K. D., & Dreher, M. (1983). Adherence to IDDM regimens: Relationship to psychosocial variables and metabolic control. Diabetes Care, 6(5), 493–498.  https://doi.org/10.2337/diacare.6.5.493.CrossRefPubMedGoogle Scholar
  27. Schafer, L. C., McCaul, K. D., & Glasgow, R. E. (1986). Supportive and nonsupportive family behaviors: Relationships to adherence and metabolic control in persons with type I diabetes. Diabetes Care, 9(2), 179–185.  https://doi.org/10.2337/diacare.9.2.179.CrossRefPubMedGoogle Scholar
  28. Schreier, H. M. C., & Chen, E. (2010). Longitudinal relationships between family routines and biological profiles among youth with asthma. Health Psychology, 29(1), 82–90.  https://doi.org/10.1037/a0018311.CrossRefPubMedGoogle Scholar
  29. Vesco, A. T., Anderson, B., Laffel, L., Dolan, L. M., Ingerski, L. M., & Hood, K. K. (2010). Responsibility sharing between adolescents with type 1 diabetes and their caregivers: Importance of adolescent perceptions on diabetes management and control. Journal of Pediatric Psychology, 35(11), 68–1177.Google Scholar
  30. Wasserman, R. M., Hilliard, M. E., Schwartz, D. D., & Anderson, B. J. (2015). Practical strategies to enhance executive functioning and strengthen diabetes management across the lifespan. Current Diabetes Reports, 15(8), 52.  https://doi.org/10.1007/s11892-015-0622-5.CrossRefPubMedGoogle Scholar
  31. Weinger, K., Butler, H. A., Welch, G. W., & La Greca, A. M. (2005). Measuring diabetes self-care: A psychometric analysis of the Self-Care Inventory-revised with adults. Diabetes Care, 28(6), 1346–1352.  https://doi.org/10.2337/diacare.28.6.1346.CrossRefPubMedPubMedCentralGoogle Scholar
  32. Wiebe, S., Guyatt, G., Weaver, B., Matijevic, S., & Sidwell, C. (2003). Comparative responsiveness of generic and specific quality-of-life instruments. Journal of Clinical Epidemiology, 56(1), 52–60.CrossRefPubMedGoogle Scholar
  33. Wysocki, T. (1993). Associations among teen-parent relationships, metabolic control, and adjustment to diabetes in adolescents. Journal of Pediatric Psychology, 18(4), 441–452.  https://doi.org/10.1093/jpepsy/18.4.441.CrossRefPubMedGoogle Scholar

Copyright information

© Springer Science+Business Media, LLC, part of Springer Nature 2018

Authors and Affiliations

  • Jessica S. Pierce
    • 1
  • Sara S. Jordan
    • 2
  • Randolph C. Arnau
    • 2
  1. 1.Center for Healthcare Delivery ScienceNemours Children’s HospitalOrlandoUSA
  2. 2.Department of PsychologyUniversity of Southern MississippiHattiesburgUSA

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