Careful attention to self-care behaviors is crucial to achieving good health outcomes in children and adolescents with type 1 diabetes. Despite the unequivocal research findings that adolescence is a time of poor metabolic control among affected individuals, there have been few prevention efforts geared toward health promotion in this age group. The diabetes education, counseling and information delivery, and evaluation (DECIDE) Program is intended to prevent the deterioration of self-care behaviors often evident during adolescence by intervening during the earlier, more stable time period of preadolescence. This paper describes the foundation for the DECIDE Program and outlines intervention development, current study recruitment, and preliminary program evaluation data. Findings indicate that enrollment into the program is feasible among children and their parents; early feedback suggests that parents and children are also satisfied with their participation. The challenges of conducting randomized controlled trials in health promotion for childhood diabetes are discussed, and ideas are offered for future research directions to improve the integration of child health psychology with public health approaches in this population.
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REFERENCES
American Diabetes Association (2000). Teenagers with Type 1 diabetes: A curriculum for adolescents and families and health professionals. Alexandria, VA: American Diabetes Association.
Anderson, B., Ho, J., Brackett, J., Finkelstein, D., & Laffel, L. (1997). Parental involvement in diabetes management tasks: Relationships to blood glucose monitoring adherence and metabolic control in young adolescents with insulin-dependent diabetes mellitus. Journal of Pediatrics, 130(2), 257–265.
Anderson, B. J., Wolf, F. M., Burkhart, M. T., Cornell, R. G., & Bacon, G. E. (1989). Effects of peer-group intervention on metabolic control of adolescents with IDDM: Randomized outpatient study. Diabetes Care, 12(3), 179–183.
Baranowski, T., Perry, C. L., & Parcel, G. S. (1997). How individuals, environments, and health behavior interact. In K. Glanz, F. M. Lewis, & B. K. Rimer (Eds.), Health behavior and health education: Theory, research, and practice, (2nd ed., pp. 153–178) San Francisco: Jossey-Bass.
Black, M. M. (2002). Society of Pediatric Psychology presidential address: Opportunities for health promotion in primary care. Journal of Pediatric Psychology, 27(7), 637–646.
Boardway, R. H., Delamater, A. M., Tomakowsky, J., & Gutai, J. P. (1993). Stress management training for adolescents with diabetes. Journal of Pediatric Psychology, 18(1), 29–45.
Centers for Disease Control (2005). Retrieved on July 15, 2005 from http://www.cdc.gov.
Centers for Disease Control and Prevention (2004). National diabetes fact sheet: General information and national estimates on diabetes in the United States. Atlanta, GA: Department of Health and Human Services, Centers for Disease Control and Prevention.
Christensen, N. K., Terry, R. D., Wyatt, S., Pichert, J. W., & Lorenz, R. A. (1983). Quantitative assessment of dietary adherence in patients with insulin-dependent diabetes mellitus. Diabetes Care, 6(3), 245–250.
Coyne, J. C., & Anderson, B. J. (1988). The “psychosomatic family” reconsidered: Diabetes in context. Journal of Marital and Family Therapy, 14, 113–123.
Couper, J. J., Taylor, J., Fotheringham, M. J., & Sawyer, M. (1999). Failure to maintain the benefits of home-based intervention in adolescents with poorly controlled type 1 diabetes. Diabetes Care, 22(12), 1933–1937.
Delamater, A. M., Bubb, J., Davis, S. G., Smith, J. A., Schmidt, L., & White, N. H. (1990). Randomized prospective study of self-management training with newly diagnosed diabetic children. Diabetes Care, 13(5), 492–498.
Diabetes Control and Complications Trial Research Group (1994). Effect of intensive diabetes treatment on the development and progression of long-term complications in adolescents with insulin-dependent diabetes mellitus: Diabetes control and complications trial. Journal of Pediatrics, 125(2), 177– 188.
Elkins, P. D., & Roberts, M. C. (1988). Journal of Pediatric Psychology: A content analysis of articles over its first 10 years. Journal of Pediatric Psychology, 13(4), 575–594.
Greco, P., Pendley, J. S., McDonnell, K., & Reeves, G. (2001). A Peer group intervention for adolescents with type 1 diabetes and their best friends. Journal of Pediatric Psychology, 26(8), 485–90.
Grey, M., Boland, E. A., Davidson, M., Li, J., & Tamborlane, W. V. (2000). Coping skills training for youth with diabetes mellitus has long-lasting effects on metabolic control and quality of life. Journal of Pediatrics, 137(1), 107–113.
Harris, M. A., Mertlich, D., & Rothweiler, J. (2001). Parenting children with diabetes. Diabetes Spectrum, 14(4), 182–184.
Holmbeck, G. N. (1994). Adolecence. In V. S. Ramachandran (Ed.), Encyclopedia of human behavior (Vol. 1, pp. 17–28). Orlando, FL: Academic Press.
Holmbeck, G. N. (2002). A developmental perspective on adolescent health and illness: An introduction to the special issues. Journal of Pediatric Psychology, 27(5), 409–416.
Ingersoll, G. M., Orr, D. P., Herrold, A. J., & Golden, M. P. (1986). Cognitive maturity and self-management among adolescents with insulin-dependent diabetes mellitus. Journal of Pediatrics, 108(4), 620–623.
Johnson, S. B. (1992). Methodological issues in diabetes research: Measuring adherence. Diabetes Care, 15(11), 1658– 1667.
Johnson, S. B. (1995). Insulin-dependent diabetes mellitus in childhood. In M. Roberts (Ed.), Handbook of pediatric psychology, (2nd ed., pp. 263–285). New York: Guilford.
Johnson, S. B., Freund, A., Silverstein, J., Hansen, C. A., & Malone, J. (1990). Adherence-health status relationships in childhood diabetes. Health Psychology, 9(5), 606–631.
Johnson, S. B., Silverstein, J., Rosenbloom, A., Carter, R., & Cunningham, W. (1986). Assessing daily management in childhood diabetes. Health Psychology, 5(6), 545–564.
Juvenile Diabetes Research Foundation (2004). Retrieved on February, 15, 2005 from http://www.jdrf.org/index.cfm.
Kazak, A. E., Simms, S., Barakat, L., Hobbie, W., Foley, B., Golomb, V., et al. (1999). Surviving cancer competently intervention program (SCCIP): a cognitive-behavioral and family therapy intervention for adolescent survivors of childhood cancer and their families. Family Process, 38(2), 175–191.
La Greca, A. M., Auslander, W. F., Greco, P., Spetter, D., Fisher, E. B., Jr., & Santiago, J. V. (1995). I get by with a little help from my family and friends: Adolescents' support for diabetes care. Journal of Pediatric Psychology, 20(4), 449–476.
LaPorte, R., & Cruickshanks, K. (1985). Incidence and risk factors for insulin-dependent diabetes. In M. Harris & R. Hamman (Eds.), Diabetes in America (NIH Publication No. 95–1468, pp. III:1–2). Bethesda, MD: National Institutes of Health.
Madsen, S. D., Roisman, G. I., & Collins, W. A. (2002). The intersection of adolescent development and intensive intervention: Age-related psychosocial correlated of treatment regimens in the diabetes control and complications trial. Journal of Pediatric Psychology, 27(5), 451–459.
National Institute of Child Health and Human Development. (2003). Family Management of Childhood Diabetes (Type 1): Clinical Sites. Available at http://grants.nih.gov/grants/guide/notice-files/NOT-HD-03-007.html.
Orem, D. E. (1985). A concept of self-care for the rehabilitation client. Rehabilitation Nursing, 10(3), 33–36.
Patrick, K., Sallis, J. F., Prochaska, J. J., Lydston, D. D., Calfas, K. J., Zabinski, M. F., et al. (2001). A multicomponent program for nutrition and physical activity change in primary care: PACE+ for adolescents. Archives of Pediatric Adolescent Medicine, 155(8), 940–946.
Ratner, H., Gross, L., Casas, J., & Castells, S. (1990). A hypnotherapeutic approach to the improvement of compliance in adolescent diabetics. American Journal of Clinical Hypnosis, 32(3), 154–159.
Rose, M. I., Firestone, P., Heick, H. M., & Faught, A. K. (1983). The effects of anxiety management training on the control of juvenile diabetes mellitus. Journal of Behavioral Medicine, 6(4), 381–395.
Satin, W., La Greca, A. M., Zigo, M. A., & Skyler, J. S. (1989). Diabetes in adolescence: effects of multifamily group intervention and parent simulation of diabetes. Journal of Pediatric Psychology, 14(2), 259–275.
Senecal, C., Nouwen, A., & White, D. (2000). Motivation and dietary self-care in adults with diabetes: are self-efficacy and autonomous self-regulation complementary or competing constructs? Health Psychology, 19(5), 452–457.
Williams, P. G., Holmbeck, G. N., & Greenley, R. N. (2002). Adolescent health psychology. Journal of Consulting and Clinical Psychology, 70(3), 828–842.
Weissberg-Benchell, J., Glasgow, A. M., Tynan, W. D., Wirtz, P., Turek, J., & Ward, J. (1995). Adolescent diabetes management and mismanagement. Diabetes Care, 18(1), 77–82.
Wysocki, T., Harris, M. A., Greco, P., Bubb, J., Danda, C. E., & Harvey, L. M. (2000). Randomized, controlled trial of behavior therapy for families of adolescents with insulin-dependent diabetes mellitus. Journal of Pediatric Psychology, 25(1), 23–33.
ACKNOWLEDGMENTS
This research was supported by grants DK062161 from the National Institute of Diabetes and Digestive and Kidney Diseases (to R.S.) and grant 5-MO1-RR-020359-01 (to CNMC).
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Streisand, R., Mednick, L. Development of the Diabetes Education, Counseling, Information Delivery and Evaluation (DECIDE) Program: A Health Promotion Intervention For Preadolescents with Type 1 Diabetes. J Clin Psychol Med Settings 13, 180–190 (2006). https://doi.org/10.1007/s10880-006-9019-6
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DOI: https://doi.org/10.1007/s10880-006-9019-6