|
Positive factors and sources of support
|
40
|
27.6
|
|
Helpfulness of the charity
|
13
|
9.0
|
|
Feeling connected to others with CFS/ME
|
7
|
4.8
|
|
Receiving correspondence from the charity
|
6
|
4.1
|
|
Charity acting as advocate for young people with CFS/ME
|
3
|
2.1
|
|
Support from family
|
2
|
1.4
|
|
Being able to access education
|
2
|
1.4
|
|
Appreciating the small things in life
|
1
|
.7
|
|
Wanting more interaction with others with CFS/ME as a source of support
|
6
|
4.1
|
|
Experiences with diagnoses and treatment
|
33
|
22.8
|
|
Dismissive or disbelieving health professionals
|
6
|
4.1
|
|
Lack of knowledge of CFS/ME in healthcare professionals
|
6
|
4.1
|
|
Given confusing advice or information
|
5
|
3.4
|
|
Negative experiences from healthcare professionals
|
4
|
2.8
|
|
Positive experiences of treatment
|
3
|
2.1
|
|
Would like more information about treatments and how to access them
|
3
|
2.1
|
|
Not enough medical help being provided
|
2
|
1.4
|
|
Difficult to access help or treatment
|
2
|
1.4
|
|
Lack of trust in medical profession
|
1
|
.7
|
|
Need for joined-up working by healthcare professionals
|
1
|
.7
|
|
The lived experience of having CFS/ME
|
32
|
22.1
|
|
Impact of CFS/ME symptoms on everyday activities
|
7
|
4.8
|
|
Fluctuating nature of CFS/ME symptoms
|
6
|
4.1
|
|
Difficulties accessing education
|
5
|
3.4
|
|
Comorbidity
|
4
|
2.8
|
|
Negative impacts of CFS/ME
|
3
|
2.1
|
|
CFS/ME is more than just fatigue
|
3
|
2.1
|
|
CFS/ME as part of identity
|
2
|
1.4
|
|
Chronicity of fatigue
|
1
|
.7
|
|
Loss of independence
|
1
|
.7
|
|
Lack of awareness of CFS/ME and resulting stigma
|
15
|
10.4
|
|
Lack of awareness of CFS/ME
|
11
|
7.6
|
|
Negativity from other people with CFS/ME
|
3
|
2.1
|
|
Stereotyping of CFS/ME
|
1
|
.7
|
|
Link between CFS/ME symptoms and other variables
|
13
|
9
|
|
Factors linked with onset of CFS/ME symptoms
|
7
|
4.8
|
|
External factors impacting on symptoms
|
2
|
1.4
|
|
Low mood or anxiety as a consequence of CFS/ME symptoms
|
2
|
1.4
|
|
Need for more research to increase understanding of CFS/ME
|
2
|
1.4
|
|
Course and prognosis of CFS/ME
|
12
|
8.3
|
|
Feeling better
|
7
|
4.8
|
|
Comparison to life before CFS/ME
|
2
|
1.4
|
|
CFS/ME does not last forever
|
1
|
.7
|
|
Gradual improvement
|
1
|
.7
|
|
Feeling hopeful
|
1
|
.7
|