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Table 6 Table illustrating inductive content analysis of open-ended comments, including frequency of occurrence of each category and over-arching themes

From: Psychological and demographic factors associated with fatigue and social adjustment in young people with severe chronic fatigue syndrome/myalgic encephalomyelitis: a preliminary mixed-methods study

Category n %
Positive factors and sources of support 40 27.6
Helpfulness of the charity 13 9.0
Feeling connected to others with CFS/ME 7 4.8
Receiving correspondence from the charity 6 4.1
Charity acting as advocate for young people with CFS/ME 3 2.1
Support from family 2 1.4
Being able to access education 2 1.4
Appreciating the small things in life 1 .7
Wanting more interaction with others with CFS/ME as a source of support 6 4.1
Experiences with diagnoses and treatment 33 22.8
Dismissive or disbelieving health professionals 6 4.1
Lack of knowledge of CFS/ME in healthcare professionals 6 4.1
Given confusing advice or information 5 3.4
Negative experiences from healthcare professionals 4 2.8
Positive experiences of treatment 3 2.1
Would like more information about treatments and how to access them 3 2.1
Not enough medical help being provided 2 1.4
Difficult to access help or treatment 2 1.4
Lack of trust in medical profession 1 .7
Need for joined-up working by healthcare professionals 1 .7
The lived experience of having CFS/ME 32 22.1
Impact of CFS/ME symptoms on everyday activities 7 4.8
Fluctuating nature of CFS/ME symptoms 6 4.1
Difficulties accessing education 5 3.4
Comorbidity 4 2.8
Negative impacts of CFS/ME 3 2.1
CFS/ME is more than just fatigue 3 2.1
CFS/ME as part of identity 2 1.4
Chronicity of fatigue 1 .7
Loss of independence 1 .7
Lack of awareness of CFS/ME and resulting stigma 15 10.4
Lack of awareness of CFS/ME 11 7.6
Negativity from other people with CFS/ME 3 2.1
Stereotyping of CFS/ME 1 .7
Link between CFS/ME symptoms and other variables 13 9
Factors linked with onset of CFS/ME symptoms 7 4.8
External factors impacting on symptoms 2 1.4
Low mood or anxiety as a consequence of CFS/ME symptoms 2 1.4
Need for more research to increase understanding of CFS/ME 2 1.4
Course and prognosis of CFS/ME 12 8.3
Feeling better 7 4.8
Comparison to life before CFS/ME 2 1.4
CFS/ME does not last forever 1 .7
Gradual improvement 1 .7
Feeling hopeful 1 .7
  1. Over-arching themes are in shown in bold type. The total frequency of occurrences for all categories under one theme were summed to obtain a total n and percentage for each theme, which are shown in bold next to each category