Abstract
The majority of autism research has a deficit focus; however, researchers are beginning to adopt a strength-based approach to understand autism. This study adds to the evolving strengths research by identifying factors that may help or hinder children’s expression of strengths in the home, school, and community environments. Parents of 102 children with autism, aged 5 to 17 years, reported on the factors they perceived enabled their child’s strengths at home, at school, and in the community, as well as the barriers that hindered their child’s strengths in these same settings. Using content analysis, parents’ open-ended responses were coded into a series of subcategories that formed categories of barriers and enablers across each setting. According to parents, supporting children was the greatest enabler of strengths in the home and school environments, while an inclusive and supportive community environment enabled their child’s strengths within the community. Adaptive and well-being barriers had the most impact on strengths at home; social, emotional, and behavioural challenges were the greatest barrier of strengths at school; and attitudes, expectations, and a lack of community understanding hindered children’s use of strengths in the community, according to their parents. Parent identification of the factors that enable or prevent children’s expression of strengths provides possible avenues for intervention to support children to show their strengths at home, at school, and in the community.
Highlights
-
A range of enablers and barriers impacted child’s expression of strengths.
-
Supports, modifications and inclusivity enabled children to show/use their strengths.
-
Child and environmental factors were identified as barriers to children’s strengths.
-
Barriers inform where supports are needed to foster children’s strengths.
Similar content being viewed by others
References
Adams, D., MacDonald, L., & Keen, D. (2019). Teacher responses to anxiety-related behaviours in students on the autism spectrum. Research in Developmental Disabilities, 86, 11–19. https://doi.org/10.1016/j.ridd.2018.12.009.
Adams, D., Young, K., Simpson, K., & Keen, D. (2018). Parent descriptions of the presentation and management of anxiousness in children on the autism spectrum. Autism, 23(4), 980–992. https://doi.org/10.1177/1362361318794031.
Andrews, J., Falkmer, M., & Girdler, S. (2015). Community participation interventions for children and adolescents with a neurodevelopmental intellectual disability: a systematic review. Disability and Rehabilitation, 37(10), 825–833. https://doi.org/10.3109/09638288.2014.944625.
Askari, S., Anaby, D., Bergthorson, M., Majnemer, A., Elsabbagh, M., & Zwaigenbaum, L. (2014). Participation of children and youth with autism spectrum disorder: a scoping review. Review Journal of Autism and Developmental Disorders, 2(1), 103–114. https://doi.org/10.1007/s40489-014-0040-7.
Aspinwall, L. G., & Staudinger, U. M. (2003). A psychology of human strengths: fundamental questions and future directions for a positive psychology. Washington, DC: Americal Psychological Association.
Bae, Y., Chiang, H., & Hickson, L. (2015). Mathematical word problem solving ability of children with autism spectrum disorder and their typically developing peers. Journal of Autism and Developmental Disorders, 45, 2200–2208. https://doi.org/10.1007/s10803-015-2387-8.
Baio, J. (2018). Prevalence of autism spectrum disorder among children aged 8 years—Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States 2014. Surveillance Summaries, 67(6), 1–23.
Baron-Cohen, S., & Wheelwright, S. (1999). ‘Obsessions’ in children with autism or Asperger syndrome. Content analysis in terms of core domains of cognition. The British Journal of Psychiatry, 175, 484–490.
Billstedt, E., Gillberg, C., & Gillberg, C. (2005). Autism after adolescence: population-based 13- to 22-year follow-up study of 120 individuals with autism diagnosed in childhood. Journal of Autism and Developmental Disorders, 35(3), 351–360. https://doi.org/10.1007/s10803-005-3302-5.
Cage, E., Di Monaco, J., & Newell, V. (2018). Experiences of autism acceptance and mental health in autistic adults. Journal of Autism and Developmental Disorders, 48(2), 473–484. https://doi.org/10.1007/s10803-017-3342-7.
Clark, M., & Adams, D. (2020a). The self-identified positive attributes and favourite activities of children on the autism spectrum. Research in Autism Spectrum Disorders. https://doi.org/10.1016/j.rasd.2020.101512.
Clark, M., & Adams, D. (2020b). Parent perspectives of what helps or hinders their child on the autism spectrum to manage their anxiety. Clinical Psychologist. https://doi.org/10.1111/cp.12223.
Clark, M., Adams, D., Roberts, J., & Westerveld, M. (2019). How do teachers support their students on the autism spectrum in Australian primary schools? Journal of Research in Special Educational Needs. https://doi.org/10.1111/1471-3802.12464.
Clark, M., Barbaro, J., & Dissanayake, C. (2019). Parent and teacher ratings of social skills, peer play and problem behaviours in children with Autism Spectrum Disorder. International Journal of Disability, Development and Education. https://doi.org/10.1080/1034912X.2019.1662891.
Colavita, V., Luthra, N., & Perry, A. (2014). Strengths and challenges of children with a developmental disability: a qualitative analysis of parent perceptions. Journal of Developmental Disabilities, 20(3), 80–87.
Cridland, E. K., Jones, S. C., Caputi, P., & Magee, C. A. (2013). Being a girl in a boys’ world: investigating the experiences of girls with autism spectrum disorders during adolescence. Journal of Autism and Developmental Disorders, 44(6), 1261–1274. https://doi.org/10.1007/s10803-013-1985-6.
Crowe, T. (1993). Time use of mothers with young children: the impact of a child’s disability. Developmental Medicine, 35(7), 621–630. https://doi.org/10.1111/j.1469-8749.1993.tb11700.x.
De Los Reyes, A., Augenstein, T. M., Wang, M., Thomas, S. A., Drabick, D. A. G., Burgers, D. E., & Rabinowitz, J. (2015). The validity of the multi-informant approach to assessing child and adolescent mental health. Psychological Bulletin, 141(4), 858–900. https://doi.org/10.1037/a0038498.
Dey, I. (1993). Qualitative data analysis: a user friendly guide for social scientists. New York: Taylor and Francis.
Doobay, A. F., Foley-Nicpon, M., Ali, S. R., & Assouline, S. G. (2014). Cognitive, adaptive, and psychosocial differences between high ability youth with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 44(8), 2026–2040. https://doi.org/10.1007/s10803-014-2082-1.
Gray, K. M., Keating, C. M., Taffe, J. R., Brereton, A. V., Einfeld, S. L., Reardon, T. C., & Tonge, B. J. (2014). Adult outcomes in autism: community inclusion and living skills. Journal of Autism and Developmental Disorders, 44(12), 3006–3015. https://doi.org/10.1007/s10803-014-2159-x.
Griffith, G. M., Totsika, V., Nash, S., & Hastings, R. P. (2012). ‘I just don’t fit anywhere’: support experiences and future support needs of individuals with Asperger syndrome in middle adulthood. Autism, 16(5), 532–546. https://doi.org/10.1177/1362361311405223.
Howlin, P., Moss, P., Savage, S., & Rutter, M. (2013). Social outcomes in mid- to later adulthood among individuals diagnosed with autism and average nonverbal IQ as children. Journal of the American Academy of Child and Adolescent Psychiatry, 52(6), 572–581. e571. https://doi.org/10.1016/j.jaac.2013.02.017.
Humphrey, N., & Symes, W. (2013). Inclusive education for pupils with autistic spectrum disorders in secondary mainstream schools: Teacher attitudes, experience and knowledge. International Journal of Inclusive Education, 17(1), 32–46. https://doi.org/10.1080/13603116.2011.580462.
Individuals with Disabilities Education Act. (2004). https://ies.ed.gov/ncser/pdf/pl108-446.pdf.
Ikeda, E., Hinckson, E., & Krageloh, C. (2014). Assessment of quality of life in children and youth with autism spectrum disorder: a critical review. Quality of Life Research, 23(4), 1069–1085. https://doi.org/10.1007/s11136-013-0591-6.
Jarbrink, K., Fombonne, E., & Knapp, M. (2003). Measuring the parental, service and cost impacts of children with autistic spectrum disorder: a pilot study. Journal of Autism and Developmental Disorders, 33(4), 395–402.
Johnson, E., & Hastings, R. P. (2002). Facilitating factors and barriers to the implementation of intensive home-based behavioural intervention for young children with autism. Child: Care, Health and Development, 28, 123–129.
Jones-Smith, E. (2013). Spotlighting the strengths of every single student: why U.S. schools need a new, strengths-based approach. Santa Barbara, CA: ProQuest Centre.
Kinnear, S. H., Link, B. G., Ballan, M. S., & Fischbach, R. L. (2016). Understanding the experience of stigma for parents of children with autism spectrum disorder and the role stigma plays in families’ lives. Journal of Autism and Developmental Disorders, 46(3), 942–953. https://doi.org/10.1007/s10803-015-2637-9.
Klin, A., Saulnier, C. A., Sparrow, S. S., Cicchetti, D. V., Volkmar, F. R., & Lord, C. (2006). Social and communication abilities and disabilities in higher functioning individuals with autism spectrum disorders: the Vineland and the ADOS. Journal of Autism and Developmental Disorders, 37(4), 748–759. https://doi.org/10.1007/s10803-006-0229-4.
Kolko, D. J., & Kazdint, A. E. (1993). Emotional/behavioral problems in clinic and nonclinic children: correspondence among child, parent and teacher reports. Journal of Child Psychology and Psychiatry, 34(6), 991–1006.
Lanou, A., Hough, L., & Powell, E. (2011). Case studies on using strengths and interests to address the needs of students with autism spectrum disorders. Intervention in School and Clinic, 47(3), 175–182. https://doi.org/10.1177/1053451211423819.
Matthys, W., Maassen, G., Cuperus, J., & van Engeland, H. (2001). The assessment of the situational specificity of children’s problem behaviour in peer–peer context. Journal of Child Psychology and Psychiatry, 42(3), 413–420. https://doi.org/10.1111/1469-7610.00734.
Mercier, C., Mottron, L., & Belleville, S. (2000). A psychosocial study on restricted interests in high-functioning persons with pervasive developmental disorders. Autism, 4(4), 406–425.
Mitchell, G. E., & Locke, K. D. (2015). Lay beliefs about autism spectrum disorder among the general public and childcare providers. Autism, 19(5), 553–561. https://doi.org/10.1177/1362361314533839.
Neely-Barnes, S., Hall, H., Roberts, R., & Graff, C. (2011). Parenting a child with an autism spectrum disorder: public perceptions and parental conceptualizations. Journal of Famiy Social Work, 14(3), 208–225. https://doi.org/10.1080/10522158.2011.571539.
Oliver, M. (1996). Understanding disability: from theory to practice. Basingstoke: Macmillan.
Owren, T., & Stenhammer, T. (2013). Neurodiversity: accepting autistic difference. Learning Disability Practice, 16(4), 32–37.
Pellicano, L., Bolte, S., & Stahmer, A. (2018). The current illusion of educational inclusion. Autism, 22(4), 386–387. https://doi.org/10.1177/1362361318766166.
Prince-Embury, S., & Saklofske, D. (2016). Resilience in children, adolescents and adults: translating research into practice. New York: Springer.
Roberts, R., Beadle‐Brown, J., Beadle‐Brown, J., & Youell, D. (2011). Promoting social inclusion for children and adults on the autism spectrum—reflections on policy and practice. Tizard Learning Disability Review, 16(4), 45–52. https://doi.org/10.1108/13595471111172840.
Russell, G., Kapp, S. K., Elliott, D., Elphick, C., Gwernan-Jones, R., & Owens, C. (2019). Mapping the autistic advantage from the accounts of adults diagnosed with autism: a qualitative study. Autism Adulthood, 1(2), 124–133. https://doi.org/10.1089/aut.2018.0035.
Russell, G., Mandy, W., Elliott, D., White, R., Pittwood, T., & Ford, T. (2019). Selection bias on intellectual ability in autism research: a cross-sectional review and meta-analysis. Molecular Autism, 10, 9. https://doi.org/10.1186/s13229-019-0260-x.
Sabapathy, T., Madduri, N., Deavenport-Saman, A., Zamora, I., Schrager, S., & Vanderbilt, D. (2017). Parent-reported strengths in children with autism spectrum disorders at the time of an interdisciplinary diagnostic evaluation. Journal of Developmental and Behavioural Pediatrics, 38(3), 181–186.
Sasson, N. J., Faso, D. J., Nugent, J., Lovell, S., Kennedy, D. P., & Grossman, R. B. (2017). Neurotypical peers are less willing to interact with those with autism based on thin slice judgments. Scientific Reports, 7, 40700. https://doi.org/10.1038/srep40700.
Sawyer, M. G., Bittman, M., La Greca, A. M., Crettenden, A. D., Harchak, T. F., & Martin, J. (2009). Time demands of caring for children with autism: What are the implications for maternal mental health? Journal of Autism and Developmental Disorders, 40(5), 620–628. https://doi.org/10.1007/s10803-009-0912-3.
Simpson, K., Adams, D., Bruck, S., & Keen, D. (2019). Investigating the participation of children on the autism spectrum across home, school, and community: a longitudinal study. Child: Care, Health and Development. https://doi.org/10.1111/cch.12679.
Simpson, K., Keen, D., Adams, D., Alston-Knox, C., & Roberts, J. (2018). Participation of children on the autism spectrum in home, school, and community. Child: Care, Health and Development, 44(1), 99–107. https://doi.org/10.1111/cch.12483.
Spiker, M. A., Lin, C. E., Van Dyke, M., & Wood, J. J. (2012). Restricted interests and anxiety in children with autism. Autism, 16(3), 306–320. https://doi.org/10.1177/1362361311401763.
Teti, M., Cheak-Zamora, N., Lolli, B., & Maurer-Batjer, A. (2016). Reframing autism: young adults with autism share their strengths through photo-stories. Journal of Pediatric Nursing, 31(6), 619–629. https://doi.org/10.1016/j.pedn.2016.07.002.
Totsika, V., Hastings, R. P., Emerson, E., Berridge, D. M., & Lancaster, G. A. (2011). Behavior problems at 5 years of age and maternal mental health in autism and intellectual disability. Journal of Abnorm Child Psychology, 39(8), 1137–1147. https://doi.org/10.1007/s10802-011-9534-2.
van Heijst, B. F. C., & Geurts, H. M. (2014). Quality of life in autism across the lifespan: a meta-analysis. Autism, 19(2), 158–167. https://doi.org/10.1177/1362361313517053.
Winter-Messiers, M. (2007). From tarantulas to toilet brushes. Understanding the special interest areas of children and youth with Asperger syndrome. Remedial and Special Education, 28(3), 140–152.
Zhou, T., & Yi, C. (2014). Parenting styles and parents’ perspectives on how their own emotions affect the functioning of children with autism spectrum disorders. Family Process, 53(1), 67–79. https://doi.org/10.1111/famp.12058.
Acknowledgements
We would like to thank parents for their time, participation and support of the current research.
Author Contributions
M.C.: designed and executed the study, analysed the data and wrote the paper. D.A.: collaborated with the design of the study, the analyses and the write-up.
Author information
Authors and Affiliations
Corresponding author
Ethics declarations
Conflict of Interest
The authors declare that they have no conflict of interest.
Ethical Approval
All procedures performed in studies involving human participants were in accordance with the ethical standards of the National Statement of Ethical Conduct in Human Research. This study was approved by the Griffith University Human Research Ethics Committee.
Informed Consent
Participation in this research was voluntary and Informed Consent was obtained from all participants.
Additional information
Publisher’s note Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.
Supplementary information
Rights and permissions
About this article
Cite this article
Clark, M., Adams, D. Parent-Reported Barriers and Enablers of Strengths in their Children with Autism. J Child Fam Stud 29, 2402–2415 (2020). https://doi.org/10.1007/s10826-020-01741-1
Published:
Issue Date:
DOI: https://doi.org/10.1007/s10826-020-01741-1