Managing Fatigue in Parents with Multiple Sclerosis
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The purpose of this study was to examine fatigue and how it affects the lives of families with Multiple Sclerosis (MS). The overarching goal was to determine ways to better support parents who are experiencing MS fatigue. Qualitative surveys were used to collect data from 181 participants on the impacts of MS and parenting over a 3-month time period. Findings include three themes: (1) Description of Fatigue, focused on the intense definition and description of how fatigue is experienced by participants; (2) Fatigue Impacts Parenting, described the views of parental challenges; and (3) Managing Fatigue, centered on the methods used by participants to control their fatigue. Discussion of findings, conclusions, and recommendations for practice for social workers and future studies are presented.
KeywordsFatigue Multiple sclerosis Spoon theory Parenting Chronic illness
D.H.L. designed and executed the study, assisted with data analysis and wrote the paper. A.R.W. collaborated with the design, data analysis, and writing of the study.
This study was funded by a grant from the Multiple Sclerosis Foundation (#598345).
Compliance with Ethical Standards
Conflict of Interest
The authors declare that they have no conflict of interest.
All procedures performed in studies involving human participants were in accordance with the ethical standards of Western Kentucky University and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.
Informed consent was obtained from all individual participants included in the study.
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