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Children with Special Health Care Needs: Impact of Health Care Expenditures on Family Financial Burden

Journal of Child and Family Studies volume 19, pages 79–89 (2010)Cite this article

Abstract

We investigated the relationship between health care expenditures for Special Health Care Needs (SHCN) children and family perception of financial burden. Using 2005/2006 National Survey of Children with Special Health Care Needs data, a multivariate logistic regression model was used to estimate the relationship between the SHCN child’s health care expenditure and perceived financial burden, while controlling for family and child characteristics. Our analysis suggests that health care expenditures for a SHCN child of $250 and more are associated with family perception of financial burden. In addition, families with lower socioeconomic status also perceived financial burden at lower level of expenditures. Members of the health care team who treat children with SHCN have an important role in understanding and assessing family financial burden as part of the care delivery to the child and the family. Our study reinforces the need to treat the whole family as the unit of care, especially when caring for children with special health care needs.

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Acknowledgments

This publication was made possible by Grant Number T32NR008856 from the National Institute of Nursing Research (NINR). Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the National Institute of Nursing Research, National Institutes of Health.

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Authors and Affiliations

  1. School of Nursing, University of North Carolina, Chapel Hill, Carrington Hall, CB 7460, Chapel Hill, NC, 27599-7460, USA

    Lisa C. Lindley & Barbara A. Mark

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  1. Lisa C. Lindley
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  2. Barbara A. Mark
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Correspondence to Lisa C. Lindley.

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Lindley, L.C., Mark, B.A. Children with Special Health Care Needs: Impact of Health Care Expenditures on Family Financial Burden. J Child Fam Stud 19, 79–89 (2010). https://doi.org/10.1007/s10826-009-9286-6

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  • DOI: https://doi.org/10.1007/s10826-009-9286-6

Keywords

  • Children with special health care needs
  • Financial burden
  • National Survey of Children with Special Health Care Needs
  • Family centered care
  • Health expenditures