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Listening to the Voices of Native Hawaiian Elders and ‘Ohana Caregivers: Discussions on Aging, Health, and Care Preferences

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Abstract

Native Hawaiians, the indigenous people of Hawai’i, are affected by varying social and health disparities that result in high prevalence of chronic disease, early onset of disability, and shorter life expectancy compared to other ethnic groups in Hawai’i. Six listening meetings were conducted, involving 41 community-dwelling kūpuna (Native Hawaiian elders) and ‘ohana (family) caregivers to investigate health and care preferences that offer the potential for improving well-being in later life for Native Hawaiian elders. As background, we provide three explanatory perspectives and theories—life course perspective, minority stress theory, and historical trauma—that guided the design of this study and provided the study’s context. A number of overarching themes and subthemes were identified, some of which point to universal concerns with age and caregiving (such as challenges and costs associated with growing old and caregiving) and others that are culturally specific (such as influence of culture and social stressors, including discrimination, on health needs and care preferences). Results give further support to the urgency of affordable, accessible, and acceptable programs and policies that can respond to the growing health and care needs of native elders and family caregivers.

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Notes

  1. Taro, or kalo is a staple food that supplies starchy-carbohydrates calories and vitamins and minerals in the diets of kanaka maoli (Hawaiian ancestors) as well as many present-day Hawaiians. According to Dr. Claire Hughes, kalo was viewed as kino lau (body form) of the god Kane (Hughes, C. (2013)). Keeping the gods close. Ka Wai Ola, Mei (May), 30, 5. p.16.

  2. Poi is a highly nutritious starch, somewhat similar to a potato, made by mashing the kalo (taro) plan’s corm, or root. Among Native Hawaiians, it is considered a highly important and sacred part of Hawaiian life.

References

  • Anderson, N. B., Bulatao, R. A., & Cohen, B. (Eds.). (2004). Critical perspectives on racial and ethnic differences in health in later life. Washington DC: National Academies Press.

    Google Scholar 

  • Andrulis, D. P., & Brach, C. (2007). Integrating literacy, culture, and language to improve health care quality for diverse populations. American Journal of Health Behavior, 31(Supplement 1), S122–S133.

    Article  Google Scholar 

  • Apology Act (1993). U.S. Public Law 103–150, 103rd Congress Joint Resolution, November.

  • Barnes, L. L., De Leon, C. F. M., Wilson, R. S., Bienias, J. L., Bennett, D. A., & Evans, D. A. (2004). Racial differences in perceived discrimination in a community population of older Blacks and Whites. Journal of Aging and Health, 16, 315–337.

    Article  Google Scholar 

  • Braun, K., Yee, B., Browne, C., & Mokuau, N. (2004). Native Hawaiian and Pacific Islander elders. In K. E. Whitfield (Ed.), Closing the gap: Improving the health of minority elders in the new millennium. Washington, DC: The Gerontological Society of America.

    Google Scholar 

  • Braun, K. L., Fong, M., Kaanoi, M. E., Kamaka, M. L., & Gotay, C. C. (2005). Testing a culturally appropriate, theory-based intervention to improve colorectal cancer screening among native Hawaiians. Preventive Medicine, 40, 619–627.

    Article  Google Scholar 

  • Braun, K., Browne, C., Ka’opua, L., Kim, B. J., & Mokua, N. (2014). Research on indigenous elders: From positivistic to decolonizing methodologies. The Gerontologist, 54(1), 117–126.

    Google Scholar 

  • Brave Heart, M. Y. H. (1998). The return to the sacred path: healing the historical trauma response among the Lakota. Smith College Studies in Social Work, 68(1), 287–305.

    Article  Google Scholar 

  • Brave Heart, M. Y. H. (1999). Oyate Ptayela: rebuilding the Lakota Nation through addressing historical trauma among Lakota parents. Journal of Human Behavior and the Social Environment, 2(1/2), 109–126.

    Article  Google Scholar 

  • Brondolo, E., Gallo, L. C., & Meyers, H. F. (2009). Race, racism, and health: disparities, mechanisms, and interventions. Journal of Behavioral Medicine, 32(1), 1–8.

    Article  Google Scholar 

  • Browne, C., Mokuau, N., & Braun, K. (2009). Adversities and resiliencies in the lives of Native Hawaiian elders. Social Work, 54, 253–261.

    Article  Google Scholar 

  • Browne, C., Braun, K., Ka’opua, L., Kim, B. J., & Mokuau, N. (2013). Issues in mixed method research in aging with racial/ethnic minorities. Seoul, South Korea: Oral presentation at the International Association of Gerontology & Geriatrics (IAGG).

    Google Scholar 

  • Bushnell, O. (1993). The fits of civilization: Germs and genocide in Hawai’i. Honolulu, Hawai’i: University of Hawai’i.

    Google Scholar 

  • Clark, R. (2004). Significance of perceived racism: Toward understanding ethic group disparities in health, the later years. In N. B. Anderson, R. A. Bulatao, & B. Cohen (Eds.), Critical perspectives on racial and ethnic differences in health in later life (pp. 540–566). Washington, DC: National Academies Press.

    Google Scholar 

  • Curry, L., Nembhard, I., & Bradley, E. (2009). Key issues in outcome research: qualitative and mixed methods provide unique contributions to outcome research. Circulation, 119, 1442–1452.

    Article  Google Scholar 

  • Dilworth Anderson, P., Williams, I., & Gibson, B. (2002). Issues of race, ethnicity and culture in caregiving research: a 20-year review (1980–2000). Gerontologist, 42, 237–256.

    Article  Google Scholar 

  • Elder, G. (1994). Time, human agency, and social change: perspectives on the life course. Social Psychology Quarterly, 57, 4–15.

    Article  Google Scholar 

  • Fingerman, K., VanderDrifr, L., Dotterer, A., Birditt, K., & Zarit, S. (2011). Support to aging parents and grown children in Black and White families. Gerontologist, 51(4), 441–452.

    Article  Google Scholar 

  • Fong, M., Braun, K., & Tsark, J. (2003). Improving Native Hawaiian health through community based participatory research. Californian Journal of Health Promotion, 1, 136–148.

    Google Scholar 

  • Galama, T. J., & Van Kippersluis, H. (2010). A theory of socioeconomic disparities in health over the life cycle. Working paper. California: Rand Center for the Study of Aging, Labor and Population.

    Google Scholar 

  • Halfon, N., & Hochstein, M. (2002). Life course health development: an integrated framework for developing health, policy and research. Millbank Quarterly, 80, 433–479.

    Article  Google Scholar 

  • Hatch, S. L. (2005). Conceptualizing and identifying cumulative adversity and protective resources: implications for understanding health inequities. Journals of Gerontology: Social Sciences, 60B, S130–S-134.

    Article  Google Scholar 

  • Hausmann, L., Kressin, N., Hanusa, B., & Ibrahim, S. (2010). Perceived racial discrimination in health care and its association with patients’ healthcare experiences: Does the measure matter? Ethnicity & Disease, 20(1), 40–47.

    Google Scholar 

  • Israel, B. A. (2000). Community based participatory research: Principles, rational and policy recommendations. In L. R. O’Fallon, F. L. Tyson, & A. Deary (Eds.), Successful models of community based participatory research (pp. 16–22). Washington, DC: National Institutes of Health.

    Google Scholar 

  • Jackson, D. D., & Chapleski, E. E. (2000). Not traditional, not assimilated: elderly American Indians and the notion of cohort’. Journal of Cross-Cultural Gerontology, 15(3), 229–259.

    Article  Google Scholar 

  • Jang, Y., Chiriboga, D., Kim, G., & Rhew, S. (2010). Perceived discrimination in older Korean Americans. Asian American Journal of Psychology, 1(1), 129–135.

    Article  Google Scholar 

  • Jervis, L. L., Jackson, M. Y., & Manson, S. M. (2002). Need for, availability of, and barriers to the provision of long-term care services for older American Indians. Journal of Cross Cultural Gerontology, 17, 295–311.

    Article  Google Scholar 

  • John, R. (1988). The Native American family. In C. H. Mindel, R. Habenstein, & R. Wright Jr. (Eds.), Ethnic families in America (3rd ed., pp. 325–363). New York: Elsevier.

    Google Scholar 

  • Ka’opua, L. (2008). Developing a culturally-responsive breast cancer screening promotion with Native Hawaiian women in churches. Health and Social Work, 33, 169–177.

    Article  Google Scholar 

  • Ka’opua, L., Braun, K., Browne, C., Mokuau, N., & Park, C. (2011a). Why are native Hawaiians underrepresented in Hawai’i’s older adult population? Exploring social and behavioral factors of longevity. Journal of Aging Research. doi:10.4061/2011/701232. Article ID 701232.

    Google Scholar 

  • Ka’opua, L. S., Park, S. H., Ward, M. E., & Braun, K. L. (2011b). Testing the feasibility of a culturally tailored breast cancer screening intervention with Native Hawaiian women in rural churches. Health and Social Work, 36(1), 55–65.

    Article  Google Scholar 

  • Ka’opua, L.S., Diaz, T., Park, S.H. & Braun, K.L. (2013). Colorectal cancer screening at the nexus of HIV, minority statuses, and cultural safety. (Accepted by American Journal of Health Education).

  • Kaholokula, J. K., Nacapoy, A. H., & Dang, K. (2009). Social justice as a public health imperative for Kanaka Maoli. AlterNative, 5, 117–137.

    Google Scholar 

  • Korn, L., Logsdon, R., Polissar, N., Gomez-Beloz, A., Waters, T., & Ryser, R. (2009). A randomized trial of CAM therapy for stress reduction in American Indian and Alaskan native family caregivers. Gerontologist, 49(3), 368–377.

    Article  Google Scholar 

  • Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer.

    Google Scholar 

  • Lehning, A. J., & Austin, M. J. (2010). Long-term care in the United States: policy themes and promising practices. Journal of Gerontological Social Work, 53(1), 43–63.

    Article  Google Scholar 

  • Lewis, J. (2011). Successful aging through the eyes of Alaska Native elders: What it means to be an elder in Bristol Bay. Gerontologist, 51, 540–549.

    Article  Google Scholar 

  • Like, A. (2005). Native Hawaiian elders. Honolulu: Alu Like.

    Google Scholar 

  • Look, M. A., Kaholokula, J. K. A., Carvahlo, A., Seto, T. B., & de Silva, M. (2012). Developing a culturally based cardiac rehabilitation program: the HELA study. Progress in Community Health Partnerships: Research, Education, and Action, 6(1), 103.

    Article  Google Scholar 

  • Mau, M. K., Sinclair, K. I., Saito, E. P., Kau’i, N. B., & Kaholokula, J. K. A. (2009). Cardiometabolic health disparities in native Hawaiians and other Pacific Islanders. Epidemiologic Reviews, 31(1), 113–129.

    Article  Google Scholar 

  • Meyer, I. H. (2003). Prejudice, social stress and mental health in lesbian, gay and bisexual populations: conceptual issues and research evidence. Psychological Bulletin, 129(5), 674–697.

    Article  Google Scholar 

  • Mokuau, N. (2011). Culturally-based solutions to preserve the health of Native Hawaiians. Journal of Ethnic & Cultural Diversity in Social Work, 20, 98–113.

    Article  Google Scholar 

  • Mokuau, N., & Braun, K. (2007). Family support for Native Hawaiian women with breast cancer. Journal of Cancer Education, 22(3), 191–196.

    Article  Google Scholar 

  • Mokuau, N., & Tauiliili, P. (2011). Families with Native Hawaiian and Samoan Roots. In Lynch & M. Hanson (Eds.), Developing cross cultural competence: A guide for working with young children and their families (4th ed., pp. 365–391). Baltimore, MD: Brookes Publishing Company.

    Google Scholar 

  • Mokuau, N., Browne, C., & Braun, K. (1998). Na kupuna in Hawai’i: a review of social and health status, service use and the importance of value-based interventions. Pacific Health Dialog, 5, 282–289.

    Google Scholar 

  • Mokuau, N., Braun, K., & Daniggelis, E. (2012). Building family capacity for Native Hawaiian women with breast cancer. Health and Social Work, 37(4), 216–224.

    Article  Google Scholar 

  • Moy, K. L., Sallis, J. F., & Tanjasiri, S. P. (2010). Culturally-specific physical activity measures for Native Hawaiian and Pacific Islanders. Hawaii Medical Journal, 69(5 Suppl 2), 21–24.

    Google Scholar 

  • National Alliance for Caregiving & AARP. (2004). Caregiving in the U.S. Bethesda, MD: National Alliance for Caregiving and AARP.

    Google Scholar 

  • NCAI Policy Research Center and MSU Center for Native Health Partnerships. (2012). Walk softly and listen carefully: Building research relationships with tribal communities. Washington, DC, and Bozeman, MT: NCAI.

    Google Scholar 

  • Panapasa, S., Mau, M. K., Williams, D. R., & McNally, J. W. (2010). Mortality patterns of native Hawaiians across their lifespan. 1990–2000. American Journal of Public Health, 111(10), 2304–2310.

    Google Scholar 

  • Pascoe, E. A., & Richman, L. S. (2009). Perceived discrimination and health: a meta-analytic review. Psychological Bulletin, 135, 531–554.

    Article  Google Scholar 

  • Pearlin, L. I. (1999). The stress process revisited. In Handbook of the sociology of mental health (pp. 395–415). Springer US.

  • Pearlin, L. I., Schieman, S., Fazio, E. M., & Meersman, S. C. (2005). Stress, health, and the life course: some conceptual perspectives. Journal of Health and Social Behavior, 46, 205–219.

    Article  Google Scholar 

  • Robison, J., Fortinsky, R., Kleppinger, A., Shugrue, N., & Porter, M. (2009). A broader view of family caregiving: effects of caregiving and caregiver conditions on depressive symptoms, health, work, and social isolation. The Journals of Gerontology, Series B Social Sciences, 64B(6), 788–798. doi:10.1093/geronb/gbp015.

    Article  Google Scholar 

  • Scharlach, A. E., Kellam, R., Ong, N., Baskin, A., Goldstein, C., & Fox, P. (2006). Cultural attitudes and caregiver service use: lessons from focus groups with racially and ethnically diverse family caregivers. Journal of Gerontological Social Work, 47, 133–155.

    Article  Google Scholar 

  • Segerstrom, S. C., & Miller, G. E. (2004). Psychological stress and the human immune system: a meta-analytic study of 30 years of inquiry. Psychological Bulletin, 13–0, 601–630.

    Article  Google Scholar 

  • Singleton, K., & Krause, E. (2010). Understanding cultural and linguistic barriers to health literacy. Kentucky Nurse, 58(4), 6–9.

    Google Scholar 

  • Son, J., Erno, A., Shea, D. G., Femia, E. E., Zarit, S. H., & Stepehnk, M. A. (2007). The caregiver stress process and health outcomes. Journal of Aging and Health, 19, 871–887.

    Article  Google Scholar 

  • Sotero, M. M. (2006). A conceptual model of historical trauma: implications for public health practice and research. Journal of Health Disparities Research and Practice, 1(1), 93–108. Retrieved from: http://papers.ssrn.com/so13/papers.cfm?abstract_id=1350062.

    Google Scholar 

  • State of Hawai’i, Department of Health, Executive Office on Aging (2013). Profile of successful aging among Hawai’i’s older adults. Retrieved from: http://www.Hawaiiadrc.org/Portals/AgencySite/2013Aging.pdf.

  • Strauss, A., & Corbin, J. (1990). Grounded theory methodology: An overview. In N. Denzin & Y. Lincoln (Eds.), Handbook of qualitative research (pp. 273–285). Thousand Oaks, CA: Sage.

    Google Scholar 

  • Thrasher, A. D., Clay, O. J., Ford, C. L., & Stewart, A. L. (2012). Theory-guided selection of discrimination measures for racial/ethnic health disparities research among older adults. Journal of Aging and Health, 24(6), 1018–1043.

    Article  Google Scholar 

  • Tsark, J.U., Blaisdell, R.K., & Aluli, N.E. (Guest Eds). (1998). The health of Native Hawaiians [special Issue]. Pacific Health Dialog, 5: 228–404.

  • Turner-Goins, R., Garroutte, E. M., Leading Fox, S., Geiger, S. D., & Manson, S. (2011a). Theory and practice in participatory research: lessons from the native elder care study. Gerontologist, 51(3), 285–294.

    Article  Google Scholar 

  • Turner-Goins, R., Spender, S. M., McGuire, L. S., Goldberg, J., Wen, Y., & Handerson, J. A. (2011b). Adult caregiving among American Indians: the role of cultural values. Gerontologist, 51(3), 310–320.

    Article  Google Scholar 

  • US Census (2010). 2010 Census Briefs, The Native Hawaiian and Other Pacific Islander Population: 2010. (Http://www.census.gov/prod/cen2010/briefs/c2010br-12.pdf).

  • U.S. Department of Health and Human Services. (2010). Healthy people 2020. Washington, DC: U.S. Government Printing Office.

    Google Scholar 

  • U.S. Department of Health and Human Services, Office of Minority Health. National Standard for Cultural and Linguistic Appropriate Services (CLAS).(2013). Washington, DC: Department of Health and Human Services Office of Minority Health (Office of Minority Health, 2013).

  • Williams, D. R., & Mohammed, S. A. (2009). Discrimination and racial disparities in health: evidence and needed research. Journal of Behavioral Medicine, 32(1), 20–47.

    Article  Google Scholar 

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Acknowledgments

We gratefully acknowledge the support of our community partners: the State of Hawai‘i Executive Office on Aging; ALU LIKE, Inc.; the Native Hawaiian Health Care Systems on the island of Hawai‘i (Hui Mālama Ola Nā ‘Oiwi) and Moloka‘i (Na Pu‘uwai); and the County Offices on Aging—the Hawai‘i Office on Aging, the Kaua‘i Agency of Elderly Affairs, and the Moloka‘i (satellite) Office of the Maui County Office of Aging. We also thank the members of our Joint Advisory Council, composed of the Native Advisory Council and the Partner Organizations Advisory Council: The Honorable Daniel K. Akaka, Ms. Nalei Akina, Ms. Deborah Arendale, Dr. J. Kuhio Asam, Dr. Elizabeth Bethea, Dr. Kekuni Blaisdell, Dr. Claire Hughes, Dr. J. Keawe’aimoku Kaholokula, Dr. Shawn Malia Kana’iaupuni, Sister Alicia Damien Lau, Dr. Wesley Lum, Ms. Elizabeth Meahl, Mr. Alan Parker, Ms. Kealoha Takahashi, and Ms. Cheryl Vasconcellos. Additionally, three graduate students in the Myron B. Thompson School of Social Work assisted us with this study: Ms. Georgia Clariza, Ms. Shelly Muneoka, and Ms. Eryn Nakamura. We are grateful for their contributions.

Funding

This project was supported, in part, by the US Administration on Aging, Department of Health and Human Services, Washington, D.C. 20201 by grant number to Hā Kūpuna National Resource Center for Native Hawaiian Elders (90OI0006/01). Grantees undertaking projects under government sponsorship are encouraged to express freely their findings and conclusions. Points of view or opinions do not, therefore, necessarily represent official government policy.

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Correspondence to Colette V. Browne.

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Browne, C.V., Mokuau, N., Ka’opua, L.S. et al. Listening to the Voices of Native Hawaiian Elders and ‘Ohana Caregivers: Discussions on Aging, Health, and Care Preferences. J Cross Cult Gerontol 29, 131–151 (2014). https://doi.org/10.1007/s10823-014-9227-8

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