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Where Does Hope Lie? The Dialectical Tensions Between Hopes and Expectations of Vocational Transition Planning from the Perspectives of Autistic Young Adults, Parents, and Practitioners

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Abstract

The post-secondary transition for autistic youth is a complex process, with hopes and expectations serving as malleable mediators often overlooked in research and practice. Career awareness, exploration, and counseling services play a critical role in facilitating vocational transition, but the vocational hopes and expectations of autistic youth and their parents are often disregarded. This study aims to explore these aspirations and their impact on the vocational transition process, seeking to harmonize elements to better align with the needs of autistic youth and their families. This study used a focus group design involving group interviews with three participant groups: autistic transition-aged youth, parents, and practitioners. The findings reveal five key themes: 1) Accepting Disability or Constrained by Ableism: Resisting Marginalization, 2) Finding the Sweet Spot: Are Parents and Youth’s Expectations Too High or Too Low, 3) Market Forces at Work–Finding a Meaningful Vocational Path in a Capitalist Society, 4) Despite Meticulous Planning, there is a Disconnect Between Needs and Resources, and 5) The Hills and Valleys of Finding Resilience. Navigating the multifaceted landscape of vocational transition planning for autistic youth necessitates a collaborative and flexible approach. Identified tensions serve as opportunities for growth and transformation. Recognizing and addressing system shortcomings is crucial for informed decision-making. Challenges extend beyond individual circumstances, reflecting broader systemic issues, and identifying these gaps allows for a comprehensive understanding of available resources, cultivating a basis of hope as uncertainties are addressed.

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References

  • Bandura, A. (1986). Social foundations of thought and action: A social cognitive theory. Prentice Hall.

  • Bishop, E. C., & Willis, K. (2014). Without hope everything would be doom and gloom’: Young people talk about the importance of hope in their lives. Journal of Youth Studies, 17(6), 778–793.

    Article  Google Scholar 

  • Braun, V., & Clarke, V. (2021). Thematic analysis: A practical guide. Sage.

  • Carter, E. W., Brock, M. E., & Trainor, A. A. (2014). Transition assessment and planning foryouth with severe intellectual and developmental disabilities. The Journal of Special Education, 47(4), 245–255. https://doi.org/10.1177/00224669124562

    Article  Google Scholar 

  • Carver, C. S., & Scheier, M. F. (2014). Dispositional optimism. Trends in Cognitive Sciences, 18(6), 293–299.

    Article  PubMed  PubMed Central  Google Scholar 

  • Chen, J., Cohn, E. S., & Orsmond, G. I. (2019). Parents’ future visions for their autistic transition-age youth: Hopes and expectations. Autism, 23(6), 1363–1372. https://doi.org/10.1177/1362361318812141

    Article  PubMed  Google Scholar 

  • Congressional Research Service (2020). Impact of the Recession on Medicaid. https://crsreports.congress.gov/product/pdf/IF/IF11686

  • Curtiss, S. L., Lee, G. K., Chun, J., Lee, H., Kuo, H. J., & Ami-Narh, D. (2021). Autistic young adults’, parents’, and practitioners’ expectations of the transition to adulthood. Career Development and Transition for Exceptional Individuals, 44(3), 174–185. https://doi.org/10.1177/2165143420967662

    Article  Google Scholar 

  • Dipeolu, A., Hargrave, S., Leierer, S. J., Tineo, Y. A. C., Longoria, A., & Escalante, M. (2022). Dysfunctional career thoughts and the sophomore slump among students with learning disabilities. Journal of Career Development, 49(4), 862–874. https://doi.org/10.1177/08948453211000130

    Article  Google Scholar 

  • Dudovitz, R. N., Chung, P. J., Nelson, B. B., & Wong, M. D. (2017). What do you want to be when you grow up? Career aspirations as a marker for adolescent well-being. Academic Pediatrics, 17(2), 153–160.

    Article  PubMed  PubMed Central  Google Scholar 

  • Flesaker, K., & Larsen, D. (2012). To offer hope you must have hope: Accounts of hope for reintegration counsellors working with women on parole and probation. Qualitative Social Work, 11(1), 61–79.

    Article  Google Scholar 

  • Holmes, L. G., Kirby, A. V., Strassberg, D. S., & Himle, M. B. (2018). Parent expectations and preparatory activities as adolescents with ASD transition to adulthood. Journal of Autism and Developmental Disorders, 48, 2925–2937. https://doi.org/10.1007/s10803-018-3545-6

    Article  PubMed  PubMed Central  Google Scholar 

  • Hong, P. Y. P., & Choi, S. (2013). The employment hope scale: Measuring an empowerment pathway to employment success. International Journal of Psychology Research, 8(3).

  • Jung, Y. H., Kang, S. H., Park, E. C., & Jang, S. Y. (2022). Impact of the acceptance of disability on self-esteem among adults with disabilities: A four-year follow-up study. International Journal of Environmental Research and Public Health, 19(7), 3874. https://doi.org/10.3390/ijerph19073874

    Article  PubMed  PubMed Central  Google Scholar 

  • Kenny, M. E., Walsh-Blair, L. Y., Blustein, D. L., Bempechat, J., & Seltzer, J. (2010). Achievement motivation among urban adolescents: Work hope, autonomy support, and achievement-related beliefs. Journal of Vocational Behavior, 77(2), 205–212.

    Article  Google Scholar 

  • Kimball, E. W., Moore, A., Vaccaro, A., Troiano, P. F., & Newman, B. M. (2016). College students with disabilities redefine activism: Self-advocacy, storytelling, and collective action. Journal of Diversity in Higher Education, 9(3), 245–260. https://doi.org/10.1037/dhe0000031

    Article  Google Scholar 

  • Kirby, A. V. (2016). Parent expectations mediate outcomes for young adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 46, 1643–1655. https://doi.org/10.1177/001440290707300305

    Article  PubMed  Google Scholar 

  • Kirby, A. V., Feldman, K. J. C., Hoffman, J. M., Diener, M. L., & Himle, M. B. (2020). Transition preparation activities and expectations for the transition to adulthood among parents of autistic youth. Research in Autism Spectrum Disorders, 78, 101640. https://doi.org/10.1016/j.rasd.2020.101640

    Article  Google Scholar 

  • Koenig, T., & Spano, R. (2006). Professional hope in working with older adults. J Soc & Soc Welfare, 33, 25.

    Google Scholar 

  • Leung, K. K., Silvius, J. L., Pimlott, N., Dalziel, W., & Drummond, N. (2009). Why health expectations and hopes are different: The development of a conceptual model. Health Expectations, 12(4), 347–360.

    Article  PubMed  PubMed Central  Google Scholar 

  • Lopez, B., & Keenan, L. (2014). Barriers to employment in autism: Future challenges to implementing the adult Autism Strategy. Autism Research Network, Department of Psychology, University of Portsmouth.

  • Lowy, R., Lee, C. E., Abowd, G. D., & Kim, J. G. (2023). Building causal agency in autistic students through iterative reflection in collaborative transition planning. Proceedings of the ACM on Human-Computer Interaction, 7(CSCW2), 1–26. https://doi.org/10.1145/3610037

    Article  Google Scholar 

  • Mazzotti, V. L., Rowe, D. A., Kwiatek, S., Voggt, A., Chang, W. H., Fowler, C. H., & Test, D. W. (2021). Secondary transition predictors of postschool success: An update to the research base. Career Development and Transition for Exceptional Individuals, 44(1), 47–64. https://doi.org/10.1177/21651434209597

    Article  Google Scholar 

  • Ne’eman, A., & Maestas, N. (2023). How has COVID-19 impacted disability employment? Disability and Health Journal, 16(2), 101429. https://doi.org/10.1016/j.dhjo.2022.101429

    Article  PubMed  Google Scholar 

  • Niles, S. G., Yoon, H., Balin, E., & Amundson (2010). Using a hope-centered model of career development in challenging times. Turkish Psychological Counseling and Guidance Journal, 4(34), 101–108.

    Google Scholar 

  • Pillay, Y., & Brownlow, C. (2017). Predictors of successful employment outcomes for adolescents with autism spectrum disorders: A systematic literature review. Review Journal of Autism and Developmental Disorders, 4, 1–11. https://doi.org/10.1007/s40489-016-0092-y

    Article  Google Scholar 

  • Pillay, Y., Brownlow, C., & March, S. (2022). Transition approaches for autistic young adults: A case series study. Plos One, 17(5), e0267942. https://doi.org/10.1371/journal.pone.0267942

    Article  PubMed  PubMed Central  Google Scholar 

  • Povenmire-Kirk, T., Diegelmann, K., Crump, K., Schnorr, C., Test, D., Flowers, C., & Aspel, N. (2015). Implementing CIRCLES: A new model for interagency collaboration in transition planning. Journal of Vocational Rehabilitation, 42(1), 51–65. https://doi.org/10.3233/JVR-140723

    Article  Google Scholar 

  • Powers, K., Geenen, S., & Powers, L. E. (2009). Similarities and differences in the transition expectations of youth and parents. Career Development for Exceptional Individuals, 32(3), 132–144. https://doi.org/10.1177/0885728809346302

    Article  Google Scholar 

  • Raymaker, D. M., Sharer, M., Maslak, J., Powers, L. E., McDonald, K. E., Kapp, S. K., Moura, I., Wallington, A. F., & Nicolaidis, C. (2023). [I] don’t wanna just be like a cog in the machine: Narratives of autism and skilled employment. Autism, 27(1), 65–75. https://doi.org/10.1177/1362361322108081

    Article  PubMed  Google Scholar 

  • Roux, A., Rast, J. E., Anderson, K. A., & Shattuck, P. T. (2017). National Autism indicators Report: Developmental Disability services and outcomes in Adulthood. Life Course Outcomes Program, A.J. Drexel Autism Institute, Drexel University.

  • Saldaña, J. (2021). The coding manual for qualitative researchers (4th ed.). Sage. https://doi.org/10.1207/s15327965pli1304_01

  • Saleh, M., & Karhan, A. (2021). Employment of youth and young adults with disabilities in a recovering economy: Lessons from the great recession and Considerations for policymakers today Center for Advancing Policy on Employment for Youth (CAPE-Youth). https://capeyouth.org/wp-content/uploads/sites/9/2021/04/CAPE-Youth_COVID_Brief.pdf

  • Snyder, C. R. (2002). Hope theory: Rainbows in the mind. Psychological Inquiry, 13(4), 249–275. Snyder, C. R., Irving, L. M., & Anderson, J. R. (1991). Hope and health. Handbook of social and clinical psychology: The Health Perspective, 162, 285–305.

  • Super, D. E. (1974). Career counseling in an industrial society. Canadian Journal of Counselling and Psychotherapy, 8(4).

  • Super, D. E. (1980). A life-span, life-space approach to career development. Journal of Vocational Behavior, 16(3), 282–298.

    Article  Google Scholar 

  • Taylor, J. L., & Seltzer, M. M. (2011). Employment and post-secondary educational activities for young adults with autism spectrum disorders during the transition to adulthood. Journal of Autism and Developmental Disorders, 41, 566–574. https://doi.org/10.1007/s10803-010-1070-3

    Article  PubMed  PubMed Central  Google Scholar 

  • Tesfaye, R., Courchesne, V., Mirenda, P., Mitchell, W., Nicholas, D., Singh, I., & Elsabbagh, M. (2023). Autism voices: Perspectives of the needs, challenges, and hopes for the future of autistic youth. Autism, 27(4), 1142–1156.

    Article  PubMed  Google Scholar 

  • Wagner, M., Newman, L., Cameto, R., Levine, P., Marder, C., & Malouf, D. (2007). Perceptions and expectations of youth with disabilities. A Special Topic Report of Findings from the National Longitudinal Transition Study-2 (NLTS2): (608012011-001) [dataset]. https://doi.org/10.1037/e608012011-001

    Article  Google Scholar 

  • Will, M. (1983). OSERS programming for the transition of youth with disabilities: Bridges from school to working life.

  • Zhu, X., Wang, K., Cai, Z., Cai, C., & Yang, Y. (2023). Acceptance of disability and proactive career behavior. In Academy of Management Proceedings (Vol. 2023, No. 1, p. 14691). Briarcliff Manor, NY 10510: Academy of Management.

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Correspondence to Jina Chun.

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We use identity first language or the phrase “on the autism spectrum” as these were preferred by the majority of our autistic participants.

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Chun, J., Curtiss, S.L., Richard, C. et al. Where Does Hope Lie? The Dialectical Tensions Between Hopes and Expectations of Vocational Transition Planning from the Perspectives of Autistic Young Adults, Parents, and Practitioners. J Autism Dev Disord (2024). https://doi.org/10.1007/s10803-024-06348-9

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