Skip to main content
Log in

What is a Good Mother of Children with Autism? A Cross-Cultural Comparison Between the U.S. and Japan

  • Original Article
  • Published:
Journal of Autism and Developmental Disorders Aims and scope Submit manuscript

Abstract

This study compared the characteristics of ‘good mothers’ of children with ASD (Autism Spectrum Disorder) as perceived by mothers of children with ASD in two countries—the U.S. and Japan. Grounded in the theory of culturally-influenced construal of the self, we hypothesized that U.S. mothers would prioritize fostering self-reliance and advocating for their child’s well-being while Japanese mothers would prioritize maintaining close and harmonious relationships with their child. We conducted semi-structured interviews with 52 U.S. and 51 Japanese mothers of children with ASD about the characteristics of a good mother of a child with ASD (GMA) and characteristics of a good mother in general (GMG) and compared the frequencies of ‘good mother’ categories emerging from thematic analysis. Mothers of children with ASD in both countries viewed guiding children as the most important characteristic for both GMG and GMA. As hypothesized, U.S mothers tended to emphasize a mother’s active role in advocating for her children, getting her child services and intervention, and educating herself about ASD. In contrast, Japanese mothers tended to value a mother’s ability to accept her child, know her child well, and provide adequate support for her child based on a child-oriented perspective. The mother’s role of advocating for her child and educating herself emerged more frequently in responses regarding GMA than GMG in the U.S. sample. The study revealed cultural differences in characterization of GMA, suggesting that more indirect models of instruction may be effective for different cultural groups.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Similar content being viewed by others

References

  • Abidin, R. R. (1995). Manual for the parenting stress index. Psychological Assessment Resources.

  • Blum, L. M. (2007). Mother-blame in the Prozac nation: Raising kids with invisible disabilities. Gender and Society, 21(2), 202–226. http://www.jstor.org/stable/27640959.

    Article  Google Scholar 

  • Brock, S. (2014). The impact of good mothering ideology on identity perception for mothers of children with disabilities. Hecate, 40(1), 20–35.

    Google Scholar 

  • Burke, M., Rossetti, Z., & Li, C. (2022). The efficacy and impact of a special education legislative advocacy program among parents of children with disabilities. Journal of Autism and Developmental Disorders, 52(7), 3271–3279. https://doi.org/10.1007/s10803-021-05258-4.

    Article  PubMed  Google Scholar 

  • Centers for Disease Control and Prevention (CDC) (2021). Autism Spectrum Disorder. Data & Statistics. Retrieved from https://www.cdc.gov/ncbddd/autism/data.html.

  • Clarke, V., & Braun, V. (2016). Thematic analysis. In E. Lyons, & A. Coyle (Eds.), Analyzing Qualitative Data in Psychology (2nd ed., pp. 84–103). Sage.

  • Dong, S., Dubas, J. S., Deković, M., Verhoeven, M., & Wang, Z. (2023). To excel and to be happy: Parenting behaviors, parenting stress, and sociocultural contexts in Dutch and urban Chinese families. Early Childhood Research Quarterly, 62, 139–149. https://doi.org/10.1016/j.ecresq.2022.08.004.

    Article  Google Scholar 

  • Eidome, S. (2020). An evaluation of the visiting advocacy project for children in residential care: Considerations based upon the results of interviews with children and staff. Japanese Journal of Child and Family Welfare, 20, 53–66.

    Google Scholar 

  • Flanagan, P. J., McGrath, M. M., Meyer, E. C., & Garcia Coll, C. T. (1995). Adolescent development and transitions to motherhood. Pediatrics, 96(2 Pt 1), 273–277. https://doi.org/10.1542/peds.96.2.273.

    Article  PubMed  Google Scholar 

  • Frederick, A., Leyva, K., & Lavin, G. (2019). The double edge of legitimacy: How women with disabilities interpret good mothering. Social Currents, 6(2), 163–176. https://doi.org/10.1177/2329496518797839.

    Article  Google Scholar 

  • Freeman, S., & Kasari, C. (2013). Parent-child interactions in autism: Characteristics of play. Autism: The International Journal of Research and Practice, 17(2), 147–161. https://doi.org/10.1177/1362361312469269.

    Article  PubMed  Google Scholar 

  • Gau, S. S., Chou, M. C., Lee, J. C., Wong, C. C., Chou, W. J., Chen, M. F., Soong, W. T., & Wu, Y. Y. (2010). Behavioral problems and parenting style among Taiwanese children with autism and their siblings. Psychiatry and Clinical Neurosciences, 64(1), 70–78. https://doi.org/10.1111/j.1440-1819.2009.02034.x.

    Article  PubMed  Google Scholar 

  • Gill, J., & Liamputtong, P. (2011). Being the mother of a child with Asperger’s syndrome: Women’s experiences of stigma. Health Care for Women International, 32(8), 708–722. https://doi.org/10.1080/07399332.2011.555830.

    Article  PubMed  Google Scholar 

  • Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Dsorders, 43(3), 629–642. https://doi.org/10.1007/s10803-012-1604-y.

    Article  Google Scholar 

  • Hays, S. (1996). The cultural contradictions of motherhood. Yale University Press.

  • Hess, R. D., & Azuma, H. (1991). Cultural support for schooling: Contrasts between Japan and the United States. Educational Researcher, 20(9), 2–12. https://doi.org/10.2307/1176242.

    Article  Google Scholar 

  • Hirschler-Guttenberg, Y., Golan, O., Ostfeld-Etzion, S., & Feldman, R. (2015). Mothering, fathering, and the regulation of negative and positive emotions in high-functioning preschoolers with autism spectrum disorder. Journal of Child Psychology and Psychiatry and Allied Disciplines, 56(5), 530–539. https://doi.org/10.1111/jcpp.12311.

    Article  PubMed  Google Scholar 

  • Hosokawa, M. (2022). Advocating for children with special needs as a clinical psychologist: Educational program for teachers in early childhood education and care. Bulletin of Seinan Gakuin University Studies in Human Sciences, 17(2), 19–33.

    Google Scholar 

  • Ishii-Kuntz, M., Makino, K., Kato, K., & Tsuchiya, M. (2004). Japanese fathers of preschoolers and their involvement in child care. Journal of Marriage and Family, 66, 779–791. http://www.jstor.org/stable/3600227.

    Article  Google Scholar 

  • Kamei, A. (2013). Perceptions and experiences of mothers who have children with Autism Spectrum Disorders: Cross-cultural studies from the US and Japan. [Doctoral thesis, The University of North Carolina at Greensboro].

  • Kawasaki, A. (2015). Relationship between the ideal nursery school teacher and emotional labour. Journal of the Faculty of Sociology Ryutsu Keizai University, 25(2), 37–47.

    Google Scholar 

  • Kim, K. M., & Hwang, S. K. (2018). Being a ‘good’ mother: Immigrant mothers of disabled children. International Social Work, 62(4), 1–15. https://doi.org/10.1177/0020872818769707.

    Article  Google Scholar 

  • Landry, S. H., & Loveland, K. A. (1988). Communication behaviors in autism and developmental language delay. Journal of Child Psychology and Psychiatry and Allied Disciplines, 29(5), 621–634. https://doi.org/10.1111/j.1469-7610.1988.tb01884.x.

    Article  PubMed  Google Scholar 

  • Landsman, G. H. (1998). Reconstructing motherhood in the age of perfect babies: Mothers of infants and toddlers with disabilities. Signs, 24, 69–99.

    Article  Google Scholar 

  • Lilley, R. (2011). Maternal intimacies: Talking about autism diagnosis. Australian Feminist Studies, 26, 207–224. https://doi.org/10.1080/08164649.2011.574600.

    Article  Google Scholar 

  • Markus, H. R., & Kitayama, S. (1991). Culture and the self: Implications for cognition, emotion, and motivation. Psychological Review, 98, 224–253. https://doi.org/10.1037/0033-295X.98.2.224.

    Article  Google Scholar 

  • McKeever, P., & Miller, K. L. (2004). Mothering children who have disabilities: A bourdieusian interpretation of maternal practices. Social Science & Medicine, 59(6), 1177–1191. https://doi.org/10.1016/j.socscimed.2003.12.023.

    Article  Google Scholar 

  • Meirsschaut, M., Warreyn, P., & Roeyers, H. (2011). What is the impact of autism on mother–child interactions within families with a child with autism spectrum disorder? Autism Research, 4, 358–367. https://doi.org/10.1002/aur.217.

    Article  PubMed  Google Scholar 

  • Ministry of Health, Labour, and, & Welfare (2021). 2021 kokumin seikatsu kiban cyousa no gaiyou [2021 Overview of the National Survey of Living Standards in Japan]. Retrieved from https://www.mhlw.go.jp/toukei/saikin/hw/k-tyosa/k-tyosa21/dl/12.pdf.

  • Mori, K., & Oishi, F. (2021). A concept analysis of nursing advocacy in cancer nursing. Journal of Japanese Society of Cancer Nursing, 35, 57–69.

    Google Scholar 

  • Nakagawa, K., Nezu, A., & Shishikura, K. (2007). Perceptions of the caregiving role among mothers of children with severe motor and intellectual disabilities and their impact on the mothers’ well-being. Japanese Journal of Social Welfare, 48(2), 30–42.

    Google Scholar 

  • Nakamichi, K., Takahashi, M., Sunagami, F., & Iwata, M. (2022). The relationship between child-centered teaching attitudes in childcare centers and the socio-emotional development of Japanese toddlers. Early Childhood Research Quarterly, 59, 162–171. https://doi.org/10.1016/j.ecresq.2021.11.014.

    Article  Google Scholar 

  • Nakata, S. (2008). A qualitative analysis of social needs in preschool teacher training. Journal of Chugoku Gakuen University, 7, 121–129.

    Google Scholar 

  • Narama, M., Kanematsu, Y., Araki, A., Maru, M., Nakamura, N., Takeda, J., Shirahata, N., & Kudo, M. (1999). Investigation of reliability and suitability of the Japanese parenting stress index (PSI) [Japanese]. Child Health Research, 58, 610–616.

    Google Scholar 

  • Ohinata, M. (2015). Boseishinwa no wana [The traps of the maternal love myth]. Nihon Hyoron-sya.

  • Ougihara, T. (2022). Measuring adherence to maternal love in university students using a two-factor model: Differences in gender and students’ majors. Journal of Home Economics of Japan, 73(10), 597–603.

    Google Scholar 

  • Porter, N., & Loveland, K. A. (2019). An integrative review of parenting stress in mothers of children with autism in Japan. International Journal of Disability Development and Education, 66(3), 249–272. https://doi.org/10.1080/1034912X.2018.1439159.

    Article  Google Scholar 

  • Porter, N., & Tanabe, K. (2023). The Mimamoru Approach in contemporary Japanese parenting magazines: Strategies for disciplining young children. Early Childhood Education Journal, 51, 1241–1252. https://doi.org/10.1007/s10643-022-01370-x.

    Article  Google Scholar 

  • Porter, N., Loveland, K., Yamane, T., Morimoto, K., & Posey, Y. (2021). Parenting stress in mothers of preschool children with autism: A comparison between Japan and the U.S. using a qualitative analysis. The Japanese Journal of Autism Spectrum, 19(1), 23–31.

    Google Scholar 

  • Porter, N., Loveland, K. A., Saroukhani, S., Posey, Y., Morimoto, K., & Rahbar, M. H. (2022). Severity of child autistic symptoms and parenting stress in mothers of children with Autism Spectrum Disorder in Japan and USA: Cross-cultural differences. Autism Research and Treatment. https://doi.org/10.1155/2022/7089053.

    Article  Google Scholar 

  • Qodariah, S., & Puspitasari, N. R. (2016). Correlation between patience and coping strategy of mothers with autistic children. International Journal of Social Science and Humanity, 6(12), 919–922. https://doi.org/10.18178/ijssh.2016.6.12.773.

    Article  Google Scholar 

  • Rothbaum, F., Pott, M., Azuma, H., Miyake, K., & Weisz, J. (2000). The development of close relationships in Japan and the United States: Paths of symbiotic harmony and generative tension. Child Development, 71(5), 1121–1142. https://doi.org/10.1111/1467-8624.00214.

    Article  PubMed  Google Scholar 

  • Ryan, S., & Runswick-Cole, K. (2008). Repositioning mothers: Mothers, disabled children and disability studies. Disability & Society, 23(3), 199–210. https://doi.org/10.1080/09687590801953937.

    Article  Google Scholar 

  • Sasayama, D., Kuge, R., Toibana, Y., & Honda, H. (2021). Trends in Autism Spectrum disorder diagnoses in Japan, 2009 to 2019. JAMA Network Open, 4(5), e219234. https://doi.org/10.1001/jamanetworkopen.2021.9234.

    Article  PubMed  PubMed Central  Google Scholar 

  • Sato, N., Araki, A., Ito, R., & Ishigaki, K. (2015). Exploring the beliefs of Japanese mothers caring for a child with disabilities. Journal of Family Nursing, 21(2), 232–260. https://doi.org/10.1177/1074840715586551.

    Article  PubMed  Google Scholar 

  • Sharpe, D. L., & Baker, D. L. (2007). Financial issues associated with having a child with autism. Journal of Family and Economic Issues, 28(2), 247–264. https://doi.org/10.1007/s10834-007-9059-6.

    Article  Google Scholar 

  • Sousa, A. C. (2011). From refrigerator mothers to warrior-heroes: The cultural identity transformation of mothers raising children with intellectual disabilities. Symbolic Interaction, 34(2), 220–243. https://doi.org/10.1525/si.2011.34.2.220.

    Article  Google Scholar 

  • van Ijzendoorn, M. H., Rutgers, A. H., Bakermans-Kranenburg, M. J., Swinkels, S. H., van Daalen, E., Dietz, C., Naber, F. B., Buitelaar, J. K., & van Engeland, H. (2007). Parental sensitivity and attachment in children with autism spectrum disorder: Comparison with children with mental retardation, with language delays, and with typical development. Child Development, 78(2), 597–608. https://doi.org/10.1111/j.1467-8624.2007.01016.x.

    Article  PubMed  Google Scholar 

  • You, H. K., & McGraw, L. A. (2011). The intersection of motherhood and disability: Being a good Korean mother to an imperfect child. Journal of Comparative Family Studies, 42(4), 579–598. http://www.jstor.org/stable/41604469.

    Article  Google Scholar 

  • Zaidman-Zait, A., Mirenda, P., Duku, E., Szatmari, P., Georgiades, S., Volden, J., Zwaigenbaum, L., Vaillancourt, T., Bryson, S., Smith, I., Fombonne, E., Roberts, W., Waddell, C., Thompson, A., & Pathways in ASD Study Team. (2014). Examination of bidirectional relationships between parent stress and two types of problem behavio in children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 44, 1908–1917. https://doi.org/10.1007/s10803-014-2064-3.

    Article  PubMed  Google Scholar 

Download references

Acknowledgements

This work was supported by the Social Science Research Council Abe Fellowship and a generous donation from Landmark Charities.

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Noriko Porter.

Ethics declarations

Ethical Approval

This study was performed in line with the principles of the Declaration of Helsinki. Approval was granted by the ethics committee of the University of Texas Health Science Center, Houston.

Informed Consent

Informed consent was obtained from all participants in the study.

Conflict of Interest

The authors have no conflicts of interest to declare that are relevant to the content of this article.

Additional information

Publisher’s Note

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Rights and permissions

Springer Nature or its licensor (e.g. a society or other partner) holds exclusive rights to this article under a publishing agreement with the author(s) or other rightsholder(s); author self-archiving of the accepted manuscript version of this article is solely governed by the terms of such publishing agreement and applicable law.

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Porter, N., Loveland, K.A., Honda, H. et al. What is a Good Mother of Children with Autism? A Cross-Cultural Comparison Between the U.S. and Japan. J Autism Dev Disord (2024). https://doi.org/10.1007/s10803-023-06232-y

Download citation

  • Accepted:

  • Published:

  • DOI: https://doi.org/10.1007/s10803-023-06232-y

Keywords

Navigation