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Supporting Autistic College Students: Examining the Mentoring, Organization and Social Support for Autism Inclusion on Campus (MOSSAIC) Program

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Abstract

Recent trends suggest that autistic young adults are increasingly accessing postsecondary education than in years past. However, these students often face unique challenges that negatively impact their college experience resulting in high dropout. The Mentoring, Organization and Social Support for Autism Inclusion on Campus (MOSSAIC) Program is a peer-mentorship college transition program intended to support autistic students with executive functioning, social, and self-advocacy skills. This study investigated the experiences of 13 autistic mentees and 12 non-autistic mentors enrolled in the MOSSAIC program. Program feedback was collected using semi-structured interviews in order to understand student experiences, highlight benefits, and identify areas of improvement. Participants reported a general positive experience and improved skills in the domains of socialization, executive functioning, academic performance, and professional development. The most common suggestion for the program was the inclusion of autistic peer mentors. Mentees noted difficulty relating with non-autistic peers and feeling burdened with the need to educate their mentor on how to support autistic adults. These data provide valuable insight into how colleges can better improve support for autistic college students to ensure postsecondary success. Future peer mentorship programs should consider recruiting neurodiverse mentors from diverse backgrounds to improve congruence between mentor and mentee identities.

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References

  • Accardo, A. L., Kuder, S. J., & Woodruff, J. (2019). Accommodations and support services preferred by college students with autism spectrum disorder. Autism, 23, 574–583.

    Article  PubMed  Google Scholar 

  • AGCAS Disability Task Group. (2014). What happens next? A report on the first destinations of 2014 disabled graduates. Sheffield: AGCAS Disability Task Group.

    Google Scholar 

  • American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Washington, DC: American Psychiatric Association.

    Book  Google Scholar 

  • Americans With Disabilities Act of 1990, Pub. L. No. 101–336, 104 Stat. 328 (1990).

  • Ames, M. E., McMorris, C. A., Alli, L. N., & Bebko, J. M. (2016). Overview and evaluation of a mentorship program for university students with ASD. Focus on Autism and Other Developmental Disabilities, 31, 27–36.

    Article  Google Scholar 

  • Ashbaugh, K., Koegel, R. L., & Koegel, L. K. (2017). Increasing social integration for college students with autism spectrum disorder. Behavioral Development Bulletin, 22, 183.

    Article  PubMed  PubMed Central  Google Scholar 

  • Bailey, K. M., Frost, K. M., Casagrande, K., & Ingersoll, B. (2020). The relationship between social experience and subjective well-being in autistic college students: A mixed methods study. Autism, 24, 1081–1092

  • Baio, J. (2014). Prevalence of Autism Spectrum disorder among children aged 8 years—autism and developmental disabilities monitoring network, 11 sites, United States, 2010. Morbidity and Mortality Weekly Report. Surveillance Summaries, 63(2), 1–22.

    Google Scholar 

  • Barnhill, G. P. (2016). Supporting students with Asperger syndrome on college campuses: Current practices. Focus on Autism and Other Developmental Disabilities, 31, 3–15.

    Article  Google Scholar 

  • Bebko, J. M., Schroeder, J. H., & Ames, M. E. (2011). A mentoring program for students with Asperger and ASDs. Toronto, Ontario: York University.

    Google Scholar 

  • Bene, K., Banda, D. R., & Brown, D. (2014). A meta-analysis of peer-mediated instructional arrangements and autism. Review Journal of Autism and Developmental Disorders, 1, 135–142.

    Article  Google Scholar 

  • Black, M. H., Kuzminski, R., Wang, J., Ang, J., Lee, C., Hafidzuddin, S., & McGarry, S. (2022). Experiences of friendships for individuals on the autism spectrum: A scoping review. Review Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s40489-022-00332-8.

    Article  Google Scholar 

  • Bradley, E. H., Curry, L. A., & Devers, K. J. (2007). Qualitative data analysis for health services research: Developing taxonomy, themes, and theory. Health Services Research, 42, 1758–1772.

    Article  PubMed  PubMed Central  Google Scholar 

  • Brown, K. R., & Coomes, M. D. (2016). A spectrum of support: Current and best practices for students with autism spectrum disorder (ASD) at community colleges. Community College Journal of Research and Practice, 40, 465–479.

    Article  Google Scholar 

  • Cai, R., & Richdale, A. (2016). Educational experiences and needs of higher education students with autism spectrum disorder. Journal of Autism and Developmental Disorders, 46, 31–41.

    Article  PubMed  Google Scholar 

  • Chamberlain, B., Kasari, C., & Rotheram-Fuller, E. (2007). Involvement or isolation? The social networks of children with autism in regular classrooms. Journal of Autism and Developmental Disorders, 37, 230–242.

    Article  PubMed  Google Scholar 

  • Chin, D., & Kameoka, V. A. (2019). Mentoring asian american scholars: Stereotypes and cultural values. American Journal of Orthopsychiatry, 89, 337.

    Article  PubMed  Google Scholar 

  • Dean, M., Harwood, R., & Kasari, C. (2017). The art of camouflage: Gender differences in the social behaviors of girls and boys with autism spectrum disorder. Autism, 21, 678–689. https://doi.org/10.1177/1362361316671845.

    Article  PubMed  Google Scholar 

  • Demetriou, E. A., Lampit, A., Quintana, D. S., Naismith, S. L., Song, Y. J. C., Pye, J. E., et al. (2018). Autism spectrum disorders: A meta-analysis of executive function. Molecular Psychiatry, 23, 1198–1204. https://doi.org/10.1038/mp.2017.75.

    Article  PubMed  Google Scholar 

  • Dipeolu, A. O., Storlie, C., & Johnson, C. (2014). Transition to college and students with high functioning autism spectrum disorder: Strategy considerations for school counselors. Journal of School Counseling, 12, n11.

    Google Scholar 

  • Gelbar, N. W., Smith, I., & Reichow, B. (2014). Systematic review of articles describing experience and supports of individuals with autism enrolled in college and university programs. Journal of Autism and Developmental Disorders, 44, 2593–2601.

    Article  PubMed  Google Scholar 

  • Gerhardt, P. F., & Lainer, I. (2011). Addressing the needs of adolescents and adults with autism: A crisis on the horizon. Journal of Contemporary Psychotherapy, 41, 37–45.

    Article  Google Scholar 

  • Gillespie-Lynch, K., Bublitz, D., Donachie, A., Wong, V., Brooks, P. J., & D’Onofrio, J. (2017). For a long time our voices have been hushed”: Using student perspectives to develop supports for neurodiverse college students. Frontiers in Psychology, 8, 544.

    Article  PubMed  PubMed Central  Google Scholar 

  • Gobbo, K., & Shmulsky, S. (2014). Faculty experience with college students with autism spectrum disorders: A qualitative study of challenges and solutions. Focus on Autism and Other Developmental Disabilities, 29, 13–22.

    Article  Google Scholar 

  • Gurbuz, E., Hanley, M., & Riby, D. M. (2019). University students with autism: The social and academic experiences of university in the UK. Journal of Autism and Developmental Disorders, 49, 617–631.

    Article  PubMed  Google Scholar 

  • Hamilton, J., Stevens, G., & Girdler, S. (2016). Becoming a mentor: The impact of training and the experience of mentoring university students on the autism spectrum. Plos One, 11, e0153204. https://doi.org/10.1371/journal.pone.0153204.

    Article  PubMed  PubMed Central  Google Scholar 

  • Hastwell, J., Harding, J., Martin, N., & Baron-Cohen, S. (2013). Asperger Syndrome Student Project, 2009-12: Final project report, June 2013. University of Cambridge.

  • Hillier, A., Ryan, J., Donnelly, S. M., & Buckingham, A. (2019). Peer mentoring to prepare high school students with autism spectrum disorder for college. Advances in Neurodevelopmental Disorders, 3, 411–422.

    Article  Google Scholar 

  • Hsieh, H. F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288. https://doi.org/10.1177/1049732305276687.

    Article  PubMed  Google Scholar 

  • Jackson, S. L., Hart, L., Brown, J. T., & Volkmar, F. R. (2018). Brief report: Self-reported academic, social, and mental health experiences of post-secondary students with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48, 643–650.

    Article  PubMed  PubMed Central  Google Scholar 

  • Koegel, L. K., Ashbaugh, K., Koegel, R. L., Detar, W. J., & Regester, A. (2013). Increasing socialization in adults with Asperger’s syndrome. Psychology in the Schools, 50, 899–909.

    Article  Google Scholar 

  • Kolb, D. A. (2014). Experiential learning: Experience as the source of learning and development. FT press.

  • Laugeson, E. A., & Frankel, F. (2011). Social skills for teenagers with developmental and autism spectrum disorders: The PEERS treatment manual. Routledge.

  • Lei, J., Calley, S., Brosnan, M., Ashwin, C., & Russell, A. (2020). Evaluation of a transition to university programme for students with autism spectrum disorder. Journal of Autism and Developmental Disorders, 50, 2397–2411.

    Article  PubMed  Google Scholar 

  • Littlefield, C. (2010). Students with Asperger’s Syndrome Transitioning to Postsecondary Education: What are the Common Issues? Rochester Institute of Technology.

  • Locke, J., Harker, C., Karp, L., & Kratz, H. (2017). Autism spectrum disorders in childhood. In T. Gulotta, & G. Blau (Eds.), Handbook of childhood behavioral issues: Evidence based approaches to Prevention and Treatment (pp. 301–318). George Routledge Publishing.

  • Lucas, R., & James, A. I. (2018). An evaluation of specialist mentoring for university students with autism spectrum disorders and mental health conditions. Journal of Autism and Developmental Disorders, 48, 694–707.

    Article  PubMed  Google Scholar 

  • Maenner, M. J., Warren, Z., Williams, A. R., et al. (2023). Prevalence and characteristics of autism spectrum disorder among children aged 8 years—Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2020. MMWR Surveillance Summaries, 72, 1–14. https://doi.org/10.15585/mmwr.ss7202a1.

  • MacLeod, A., & Green, S. (2009). Beyond the books: Case study of a collaborative and holistic support model for university students with Asperger syndrome. Studies in Higher Education, 34, 631–646.

    Article  Google Scholar 

  • Morris, I. F., Matta, C., & Fung, L. K. (2022). A scoping review of peer mentoring programs for autistic college students. Review Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s40489-022-00325-7.

    Article  Google Scholar 

  • Myrvold, R., Kang-Yi, K., Frederick, K., Nehilla, L., Schoffer Closson, J., & Locke, J. (2021). Understanding the Experiences of Autistic College students: An exploratory mixed-methods analysis. International Journal of Autism & Related Disabilities, 4, 1–11.

    Google Scholar 

  • Ness, B. M. (2013). Supporting self-regulated learning for college students with Asperger syndrome: Exploring the “Strategies for College Learning” model. Mentoring & Tutoring: Partnership in Learning, 21, 356–377.

  • Owora, A. H., Salaam, N., Leed, R., Bergen-Cico, S. H., Jennings-Bey, D., El, T., & Lane, A. H., S. D (2018). Culturally congruent mentorship can reduce disruptive behavior among elementary school students: Results from a pilot study. Pilot and Feasibility Studies, 4, 1–8.

    Article  Google Scholar 

  • Pellicano, E., Lawson, W., Hall, G., Mahony, J., Lilley, R., Heyworth, M., & Yudell, M. (2022). I knew she’d get it, and get Me”: Participants’ perspectives of a participatory Autism Research Project. Autism in Adulthood, 4, 120–129.

    Article  PubMed  Google Scholar 

  • Quintrell, N., & Westwood, M. (1994). The influence of a peer-pairing program on international students’ first year experience and use of student services. Higher Education Research and Development, 13, 49–58.

    Article  Google Scholar 

  • Retherford, K. S., & Schreiber, L. R. (2015). Camp Campus: College preparation for adolescents and young adults with high-functioning autism, Asperger syndrome, and other social communication disorders. Topics in Language Disorders, 35, 362–385.

    Article  Google Scholar 

  • Roberts, N., & Birmingham, E. (2017). Mentoring university students with ASD: A mentee-centered approach. Journal of Autism and Developmental Disorders, 47, 1038–1050.

    Article  PubMed  Google Scholar 

  • Roux, A. M., Shattuck, P. T., Rast, J. E., Rava, J. A., Edwards, A. D., Wei, X., & Yu, J. W. (2015). Characteristics of two-year college students on the autism spectrum and their support services experiences. Autism Research and Treatment, 2015.

  • Sanford, C., Newman, L., Wagner, M., Cameto, R., Knokey, A. M., & Shaver, D. (2011). The Post-High School Outcomes of Young adults with disabilities up to 6 years after High School: Key findings from the National Longitudinal Transition Study-2 (NLTS2). NCSER 2011–3004. National Center for Special Education Research.

  • Sarrett, J. C. (2018). Autism and accommodations in higher education: Insights from the autism community. Journal of Autism and Developmental Disorders, 48, 679–693.

    Article  PubMed  Google Scholar 

  • Schindler, V., Cajiga, A., Aaronson, R., & Salas, L. (2015). The experience of transition to college for students diagnosed with Asperger’s disorder. The Open Journal of Occupational Therapy, 3, 2.

    Article  Google Scholar 

  • Shattuck, P. T., Narendorf, S. C., Cooper, B., Sterzing, P. R., Wagner, M., & Taylor, J. L. (2012). Postsecondary education and employment among youth with an autism spectrum disorder. Pediatrics, 129, 1042–1049.

    Article  PubMed  PubMed Central  Google Scholar 

  • Shmulsky, S., Gobbo, K., & Donahue, A. (2015). Groundwork for success: A College Transition Program for students with ASD. Journal of Postsecondary Education and Disability, 28, 235–241.

    Google Scholar 

  • Siew, C. T., Mazzucchelli, T. G., Rooney, R., & Girdler, S. (2017). A specialist peer mentoring program for university students on the autism spectrum: A pilot study. PloS one, 12, e0180854.

  • Smith, J. M., Kataoka, S. H., Segovia, F. R., Osuna, A., Arriaga, I., Garcia, C. D., & Linares, D. E. (2021). Communities speak up: Supporting the K-12 School Transitions of students with autism. Multiple Voices, 21, 55–77.

    Google Scholar 

  • Stahmer, A. C., Schreibman, L., & Cunningham, A. B. (2011). Toward a technology of treatment individualization for young children with autism spectrum disorders. Brain Research, 1380, 229–239.

    Article  PubMed  Google Scholar 

  • Thile, E. L., & Matt, G. E. (1995). The ethnic mentor undergraduate program: A brief description and preliminary findings. Journal of Multicultural Counseling and Development, 23, 116–126.

    Article  Google Scholar 

  • Thompson, C., Falkmer, T., Evans, K., Bölte, S., & Girdler, S. (2018). A realist evaluation of peer mentoring support for university students with autism. British Journal of Special Education, 45, 412–434.

    Article  Google Scholar 

  • Thompson, C., McDonald, J., Kidd, T., Falkmer, T., Bölte, S., & Girdler, S. (2020). I don’t want to be a patient”: Peer mentoring partnership fosters communication for autistic university students. Scandinavian Journal of Occupational Therapy, 27, 625–640.

    Article  PubMed  Google Scholar 

  • VanBergeijk, E., Klin, A., & Volkmar, F. (2008). Supporting more able students on the autism spectrum: College and beyond. Journal of Autism and Developmental Disorders, 38, 1359–1370.

    Article  PubMed  Google Scholar 

  • Van Hees, V., Moyson, T., & Roeyers, H. (2015). Higher education experiences of students with autism spectrum disorder: Challenges, benefits and support needs. Journal of Autism and Developmental Disorders, 45, 1673–1688.

    Article  PubMed  Google Scholar 

  • Vincent, J., Potts, M., Fletcher, D., Hodges, S., Howells, J., Mitchell, A., & Ledger, T. (2017). I think autism is like running on Windows while everyone else is a Mac’: Using a participatory action research approach with students on the autistic spectrum to rearticulate autism and the lived experience of university. Educational Action Research, 25, 300–315.

    Article  Google Scholar 

  • Ward, D., & Webster, A. (2018). Understanding the lived experiences of university students with autism spectrum disorder (ASD): A phenomenological study. International Journal of Disability Development and Education, 65, 373–392.

    Article  Google Scholar 

  • Wei, X., Wagner, M., Hudson, L., Yu, J. W., & Javitz, H. (2016). The effect of transition planning participation and goal-setting on college enrollment among youth with autism spectrum disorders. Remedial and Special Education, 37xs, 3–14.

    Article  Google Scholar 

  • Wei, X., Wagner, M., Hudson, L., Yu, J. W., & Shattuck, P. (2015). Transition to adulthood: Employment, education, and disengagement in individuals with autism spectrum disorders. Emerging Adulthood, 3, 37–45.

    Article  Google Scholar 

  • Wei, X., Yu, J. W., Shattuck, P., McCracken, M., & Blackorby, J. (2013). Science, technology, engineering, and mathematics (STEM) participation among college students with an autism spectrum disorder. Journal of Autism and Developmental Disorders, 43, 1539–1546.

    Article  PubMed  PubMed Central  Google Scholar 

  • White, S. W., Elias, R., Capriola-Hall, N. N., Smith, I. C., Conner, C. M., Asselin, S. B., & Mazefsky, C. A. (2017). Development of a college transition and support program for students with autism spectrum disorder. Journal of Autism and Developmental Disorders, 47, 3072–3078.

    Article  PubMed  PubMed Central  Google Scholar 

  • White, S. W., Elias, R., Salinas, C. E., Capriola, N., Conner, C. M., Asselin, S. B., & Getzel, E. E. (2016). Students with autism spectrum disorder in college: Results from a preliminary mixed methods needs analysis. Research in Developmental Disabilities, 56, 29–40.

    Article  PubMed  PubMed Central  Google Scholar 

  • Zafft, C., Hart, D., & Zimbrich, K. (2004). College career connection: A study of youth with intellectual disabilities and the impact of postsecondary education. Education and Training in Developmental Disabilities, 39, 45–53.

    Google Scholar 

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Locke, J., Osuna, A., Myrvold, R.J. et al. Supporting Autistic College Students: Examining the Mentoring, Organization and Social Support for Autism Inclusion on Campus (MOSSAIC) Program. J Autism Dev Disord (2023). https://doi.org/10.1007/s10803-023-05969-w

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