Abstract
Teenage siblings of children with autism spectrum disorder (ASD) are at risk of worse mental health outcomes than their peers, yet there have been few interventions focused on improving their psychosocial wellbeing. This study explored the acceptability of an 8-session virtual group mind-body resiliency intervention for teen siblings of children with ASD. We used mixed methods to assess quantitative and qualitative survey results. Participants reported that the intervention had the right amount of sessions (88%), structure (74%), and duration (89%). Most participants felt comfortable during sessions (74%), found it helpful to learn mind-body exercises (74%), and that the intervention helped in coping with stress (71%). Though participants were satisfied with the opportunity to meet peers, they desired more social connection.
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References
Althoff, C. E., Dammann, C. P., Hope, S. J., & Ausderau, K. K. (2019). Parent-Mediated Interventions for Children With Autism Spectrum Disorder: A Systematic Review. American Journal of Occupational Therapy, 73(3), 7303205010p1–7303205010p13. https://doi.org/10.5014/ajot.2019.030015
American Psychiatric Association (2018). What Is Autism Spectrum Disorder? https://www.psychiatry.org/patients-families/autism/what-is-autism-spectrum-disorder
American Psychological Association (2018). Stress in America: Generation Z. Stress in America™ Survey
Anderson, M., & Jiang, J. (2018, May 31). Teens, Social Media & Technology 2018. Pew Research Center: Internet, Science & Tech. https://www.pewresearch.org/internet/2018/05/31/teens-social-media-technology-2018/
Ayala, G. X., & Elder, J. P. (2011). Qualitative methods to ensure acceptability of behavioral and social interventions to the target population. Journal of Public Health Dentistry, 71(Suppl 1), 69–79. https://doi.org/10.1111/j.1752-7325.2011.00241.x
Bentenuto, A., Mazzoni, N., Giannotti, M., Venuti, P., & de Falco, S. (2021). Psychological impact of Covid-19 pandemic in Italian families of children with neurodevelopmental disorders. Research in Developmental Disabilities, 109, 103840. https://doi.org/10.1016/j.ridd.2020.103840
Brouzos, A., Vassilopoulos, S. P., & Tassi, C. (2017). A Psychoeducational Group Intervention for Siblings of Children With Autism Spectrum Disorder. The Journal for Specialists in Group Work, 42(4), 274–298. https://doi.org/10.1080/01933922.2017.1350230
Calkins, H. (2021). Online therapy is here to stay.Https://Www.Apa.Org. https://www.apa.org/monitor/2021/01/trends-online-therapy
Campbell, M., Fitzpatrick, R., Haines, A., Kinmonth, A. L., Sandercock, P., Spiegelhalter, D., & Tyrer, P. (2000). Framework for design and evaluation of complex interventions to improve health. BMJ, 321(7262), 694–696. https://doi.org/10.1136/bmj.321.7262.694
Caspi, J. (2012). Sibling Aggression: Assessment and Treatment. aspx?direct=true&db=nlebk&AN=390307&site=eds-live&scope=site: Springer Publishing Company. https://login.treadwell.idm.oclc.org/login?url=https://search.ebscohost.com/login.
Czajkowski, S. M., Powell, L. H., Adler, N., Naar-King, S., Reynolds, K. D., Hunter, C. M. … Charlson, M. E. (2015). From ideas to efficacy: The ORBIT model for developing behavioral treatments for chronic diseases. Health Psychology: Official Journal of the Division of Health Psychology, American Psychological Association, 34(10), 971–982. https://doi.org/10.1037/hea0000161
Donaldson, A. L. (2015). Siblings of Children with ASD: Promoting Social Communication. Perspectives on Language Learning and Education, 22(1), 31–38. https://doi.org/10.1044/lle22.1.31
Fish, J., Brimson, J., & Lynch, S. (2016). Mindfulness Interventions Delivered by Technology Without Facilitator Involvement: What Research Exists and What Are the Clinical Outcomes? Mindfulness, 7(5), 1011–1023. https://doi.org/10.1007/s12671-016-0548-2
Gettings, S., Franco, F., & Santosh, P. J. (2015). Facilitating support groups for siblings of children with neurodevelopmental disorders using audio-conferencing: A longitudinal feasibility study. Child and Adolescent Psychiatry and Mental Health, 9(1), 8. https://doi.org/10.1186/s13034-015-0041-z
Granat, T., Nordgren, I., Rein, G., & Sonnander, K. (2012). Group intervention for siblings of children with disabilities: A pilot study in a clinical setting. Disability and Rehabilitation, 34(1), 69–75. https://doi.org/10.3109/09638288.2011.587087
Griffith, G. M., Hastings, R. P., & Petalas, M. A. (2014). Fathers’ and mothers’ ratings of behavioral and emotional problems in siblings of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 44(5), 1230–1235. https://doi.org/10.1007/s10803-013-1969-6
Hafstad, G. S., Sætren, S. S., Wentzel-Larsen, T., & Augusti, E. M. (2020). Longitudinal Change in Adolescent Mental Health During the COVID-19 Outbreak – A Prospective Population-Based Study of Teenagers in Norway (SSRN Scholarly Paper ID 3727297). Social Science Research Network. https://doi.org/10.2139/ssrn.3727297
Hsieh, H. F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288. https://doi.org/10.1177/1049732305276687
Iannuzzi, D., Fell, L., Luberto, C., Goshe, B. M., Perez, G., Park, E. … Traeger, L. (2021). Challenges and Growth: Lived Experience of Adolescents and Young Adults (AYA) with a Sibling with ASD. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-021-05135-0
Jones, E. A., Fiani, T., Stewart, J. L., Neil, N., McHugh, S., & Fienup, D. M. (2020). Randomized controlled trial of a sibling support group: Mental health outcomes for siblings of children with autism. Autism, 24(6), 1468–1481. https://doi.org/10.1177/1362361320908979
Koukouriki, E. (2021). Quality of life in neurotypical siblings of children with an autism spectrum disorder: Detecting children at risk. European Psychiatry, 64(S1), S636–S636. https://doi.org/10.1192/j.eurpsy.2021.1689
Kuhlthau, K. A., Luberto, C. M., Traeger, L., Millstein, R. A., Perez, G. K., Lindly, O. J. … Park, E. R. (2020). A Virtual Resiliency Intervention for Parents of Children with Autism: A Randomized Pilot Trial. Journal of Autism and Developmental Disorders, 50(7), 2513–2526. https://doi.org/10.1007/s10803-019-03976-4
Leedham, A. T., Thompson, A. R., & Freeth, M. (2020). A thematic synthesis of siblings’ lived experiences of autism: Distress, responsibilities, compassion and connection. Research in Developmental Disabilities, 97, 103547. https://doi.org/10.1016/j.ridd.2019.103547
Liang, Z., Mazzeschi, C., & Delvecchio, E. (2021). The Impact of Parental Stress on Italian Adolescents’ Internalizing Symptoms during the COVID-19 Pandemic: A Longitudinal Study. International Journal of Environmental Research and Public Health, 18(15), 8074. https://doi.org/10.3390/ijerph18158074
Lovell, B., & Wetherell, M. A. (2016). The psychophysiological impact of childhood autism spectrum disorder on siblings. Research in Developmental Disabilities, 49–50, 226–234. https://doi.org/10.1016/j.ridd.2015.11.023
Luberto, C., Perez, G., Millstein, R. A., Lindly, O. J., Chad-Friedman, E., Kuhlthau, K. A., & Park, E. R. (2020). Acceptability of an online mind-body intervention for parenting stress: Mixed-methods results from a randomized controlled trial. Global Advances in Health and Medicine, 9, 0534
Lucas-Thompson, R. G., Broderick, P. C., Coatsworth, J. D., & Smyth, J. M. (2019). New Avenues for Promoting Mindfulness in Adolescence using mHealth. Journal of Child and Family Studies, 28(1), 131–139. https://doi.org/10.1007/s10826-018-1256-4
Maenner, M. J., Shaw, K. A., & Baio, J. (2020). Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years- Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States. MMWR Surveillance Summary 2020. 69(No. SS-4), 1–12. https://doi.org/10.15585/mmwr.ss6904a1
Meadan, H., Halle, J. W., & Ebata, A. T. (2010). Families with Children Who Have Autism Spectrum Disorders: Stress and Support. Exceptional Children, 77(1), 7–36. https://doi.org/10.1177/001440291007700101
Meyer, K. A., Ingersoll, B., & Hambrick, D. Z. (2011). Factors Influencing Adjustment in Siblings of Children with Autism Spectrum Disorders. Research in Autism Spectrum Disorders, 5(4), 1413–1420. https://doi.org/10.1016/j.rasd.2011.01.027
Mizrach, H., Goshe, B., Park, E. R., Recklitis, C., Greer, J., Chang, Y. … Perez, G. K. (2021). Bounce Back Study Protocol: Randomized Waitlist-Control Trial of a Web-Based Stress-Management and Resiliency Program for Adolescent and Young Adult Cancer Survivors. JMIR- Research Protocols, November
Onken, L. S., Carroll, K. M., Shoham, V., Cuthbert, B. N., & Riddle, M. (2014). Reenvisioning Clinical Science: Unifying the Discipline to Improve the Public Health. Clinical Psychological Science: A Journal of the Association for Psychological Science, 2(1), 22–34. https://doi.org/10.1177/2167702613497932
Park, E. R., Mutchler, J. E., Perez, G., Goldman, R. E., Niles, H., Haime, V. … Pirl, W. F. (2017). Coping and resiliency enhancement program (CARE): A pilot study for interpreters in cancer care. Psycho-Oncology, 26(8), 1181–1190. https://doi.org/10.1002/pon.4137
Park, E. R., Traeger, L., Vranceanu, A. M., Scult, M., Lerner, J. A., Denninger, B. H., J., & Fricchione, G. L. (2013). The development of a patient-centered program based on the relaxation response: The Relaxation Response Resiliency Program (3RP). Psychosomatics, 54(2), 165–174. https://doi.org/10.1016/j.psym.2012.09.001
Pavlopoulou, G., Wood, R., & Papadopoulos, C. (2020). Impact of Covid-19 on the experiences of parents and family carers of autistic children and young people in the UK. UCL Institute of Education: London, UK. [Report]. UCL Institute of Education. https://www.ucl.ac.uk/ioe/
Perez, G. K., Walsh, E. A., Quain, K., Abramson, J. S., & Park, E. R. (2020). A virtual resiliency program for lymphoma survivors: Helping survivors cope with post-treatment challenges. Psychology & Health, 36(11), 1352–1367. https://doi.org/10.1080/08870446.2020.1849699
Pizarro-Ruiz, J. P., & Ordóñez-Camblor, N. (2021). Effects of Covid-19 confinement on the mental health of children and adolescents in Spain. Scientific Reports, 11(1), 11713. https://doi.org/10.1038/s41598-021-91299-9
Plante, W. (2020). Helping siblings of children with behavioral health disorders weather the COVID-19 storm. The Brown University Child and Adolescent Behavior Letter, 36(11), 1–6. https://doi.org/10.1002/cbl.30500
Redquest, B. K., Tint, A., Ries, H., & Lunsky, Y. (2021). Exploring the experiences of siblings of adults with intellectual/developmental disabilities during the COVID-19 pandemic. Journal of Intellectual Disability Research, 65(1), 1–10. https://doi.org/10.1111/jir.12793
Roberts, R. M., Ejova, A., Giallo, R., Strohm, K., Lillie, M., & Fuss, B. (2015). A controlled trial of the SibworkS group program for siblings of children with special needs. Research in Developmental Disabilities, 43–44, 21–31. https://doi.org/10.1016/j.ridd.2015.06.002
Shivers, C. M., Jackson, J. B., & McGregor, C. M. (2019). Functioning Among Typically Developing Siblings of Individuals with Autism Spectrum Disorder: A Meta-Analysis. Clinical Child and Family Psychology Review, 22(2), 172–196. https://doi.org/10.1007/s10567-018-0269-2
Shivers, C. M., McGregor, C., & Hough, A. (2017). Self-reported stress among adolescent siblings of individuals with autism spectrum disorder and Down syndrome: Autism. https://doi.org/10.1177/1362361317722432
Siller, M., & Morgan, L. (2018). Systematic Review of Research Evaluating Parent-Mediated Interventions for Young Children with Autism: Years 2013 to 2015. In M. Siller & L. Morgan (Eds.), Handbook of Parent-Implemented Interventions for Very Young Children with Autism (pp. 1–21). Springer International Publishing. https://doi.org/10.1007/978-3-319-90994-3_1
Smith, K. A., Gehricke, J. G., Iadarola, S., Wolfe, A., & Kuhlthau, K. A. (2020). Disparities in Service Use Among Children With Autism: A Systematic Review. Pediatrics, 145(Supplement 1), S35–S46. https://doi.org/10.1542/peds.2019-1895G
Smith, T., & Perry, A. (2005). A sibling support group for brothers and sisters of children with autism. Journal of Developmental Disabilities, 11(1), 77–88
Taylor, C. B., Fitzsimmons-Craft, E. E., & Graham, A. K. (2020). Digital technology can revolutionize mental health services delivery: The COVID-19 crisis as a catalyst for change. International Journal of Eating Disorders, 53(7), 1155–1157. https://doi.org/10.1002/eat.23300
Tudor, M. E., & Lerner, M. D. (2015). Intervention and support for siblings of youth with developmental disabilities: A systematic review. Clinical Child and Family Psychology Review, 18(1), 1–23. https://doi.org/10.1007/s10567-014-0175-1
Wartella, E., Rideout, V., Montague, H., Beaudoin-Ryan, L., & Lauricella, A. (2016). Teens, Health and Technology: A National Survey. Media and Communication, 4(3), 13–23. https://doi.org/10.17645/mac.v4i3.515
Watson, L., Hanna, P., & Jones, C. J. (2021). A systematic review of the experience of being a sibling of a child with an autism spectrum disorder. Clinical Child Psychology and Psychiatry, 26(3), 734–749. https://doi.org/10.1177/13591045211007921
Wheeler, M. (2021). (n.d.). Sibling Perspectives: Guidelines for Parents. Autism Society. Retrieved August 19, from https://www.autism-society.org/living-with-autism/autism-and-your-family/siblings/
Zhang, C., Ye, M., Fu, Y., Yang, M., Luo, F., Yuan, J., & Tao, Q. (2020). The Psychological Impact of the COVID-19 Pandemic on Teenagers in China. Journal of Adolescent Health, 67(6), 747–755. https://doi.org/10.1016/j.jadohealth.2020.08.026
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Fell, L., Goshe, B., Traeger, L. et al. Acceptability of A Virtual Mind-Body Group Intervention for Teen Siblings of Children with Autism Spectrum Disorder. J Autism Dev Disord 52, 5243–5252 (2022). https://doi.org/10.1007/s10803-022-05500-7
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DOI: https://doi.org/10.1007/s10803-022-05500-7