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Skin Picking in People with Prader–Willi Syndrome: Phenomenology and Management

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Abstract

Skin picking is highly prevalent in people with Prader–Willi syndrome (PWS). This study addressed the temporal (frequency, duration) and wider characteristics (e.g. type of skin picked, apparent motivations, or management strategies) of skin picking to inform intervention strategies. Nineteen parents/carers who observe skin picking shown by the person they care for completed a semi-structured interview. Results were consistent with previous research but advanced the field by finding that most participants picked skin with an imperfection and that parents/carers most commonly use distraction as a management strategy. Interventions that are behavioural, support emotion regulation and/ or are used in the typically developing population are therefore likely to be beneficial for future research.

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Acknowledgments

Thank you to the families who took part making this research possible. Thank you to Emma Shepherd for supporting the research by coding the interviews.

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Correspondence to L. E. Bull or K. A. Woodcock.

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Bull, L.E., Oliver, C. & Woodcock, K.A. Skin Picking in People with Prader–Willi Syndrome: Phenomenology and Management. J Autism Dev Disord 51, 286–297 (2021). https://doi.org/10.1007/s10803-020-04504-5

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