Abstract
We used an online survey to gather perspectives of autistic youth (n = 248) on the impacts of autism, school professionals, family members, and peers on their high school experiences; what each stakeholder group could have done better; and what future high school professionals and autistic youth should know. Two-thirds of participants viewed autism as negatively impacting their school experience, and this was more prevalent in women. The majority viewed impacts of school professionals, family, and peers as positive. Women were more likely to view school professional contributions as positive than men, and LGBT youth were more likely to view school professional and peer contributions as negative than non-LGBT youth. Suggestions for stakeholders included providing more help, care, and quality time.
Similar content being viewed by others
References
Accardo, A. L., Kuder, S. J., & Woodruff, J. (2019). Accommodations and support services preferred by college students with autism spectrum disorder. Autism, 23(3), 574–583.
Aranmolate, R., Bogan, D. R., Hoard, T., & Mawson, A. R. (2017). Suicide risk factors among LGBTQ youth. JSM Schizophrenia, 2, 1011–1014.
Bottema-Beutel, K., Malloy, C., Cuda, J., Kim, S. Y., & MacEvoy, J. (2019). Responses to vignettes depicting friendship transgressions: Similarities and differences in children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders.
Bottema-Beutel, K., Mullins, T., Harvey, M., Gustafson, J. R., & Carter, E. (2016). Avoiding the brick wall of awkward: Perspectives of youth with autism spectrum disorder on social-focused intervention practices. Autism, 20(2), 196–206.
Bradley, R. (2016). ‘Why single me out?’ Peer mentoring, autism and inclusion in mainstream secondary schools. British Journal of Special Education, 43(3), 272–288.
Brede, J., Remington, A., Kenny, L., Warren, K., & Pellicano, E. (2017). Excluded from school: Autistic students’ experiences of school exclusion and subsequent re-integration into school. Autism & Developmental Language Impairments, 2, 1–20.
Cai, R. Y., & Richdale, A. L. (2016). Educational experiences and needs of higher education students with autism spectrum disorder. Journal of Autism and Developmental Disorders, 46(1), 31–41.
Chamberlain, B., Kasari, C., & Rotheram-Fuller, E. (2007). Involvement or isolation? The social networks of children with autism in regular classrooms. Journal of Autism and Developmental Disorders, 37, 230–242.
Crane, L., Adams, F., Harper, G., Welch, J., & Pellicano, E. (2019). ‘Something needs to change’: Mental health experiences of young autistic adults in England. Autism, 23(2), 477–493.
Cridland, E. K., Jones, S. C., Caputi, P., & Magee, C. A. (2014). Being a girl in a boys’ world: Investigating the experiences of girls with autism spectrum disorders during adolescence. Journal of Autism and Developmental Disorders, 44(6), 1261–1274.
Crocetti, E. (2017). Identity formation in adolescence: The dynamic of forming and consolidating identity commitments. Child Development Perspectives, 11(2), 145–150.
Dann, R. (2011). Secondary transition experiences for pupils with Autistic Spectrum Conditions (ASCs). Educational Psychology in Practice, 27(3), 293–312.
Estes, A., Rivera, V., Bryan, M., Cali, P., & Dawson, G. (2011). Discrepancies between academic achievement and intellectual ability in higher-functioning school-aged children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 41(8), 1044–1052.
Fletcher-Watson, S., Adams, J., Brook, K., Charman, T., Crane, L., Cusack, J., Leekam, S. Milton, D., Parr, J. R. & Pellicano, E. (2018). Making the future together: Shaping autism research through meaningful participation. Autism.
George, R., & Stokes, M. A. (2018). Sexual orientation in autism spectrum disorder. Autism Research, 11(1), 133–141.
Gillespie-Lynch, K., Bublitz, D., Donachie, Annemarie, Wong, V., Brooks, P. J., & D’Onofrio, J. (2017). For a long time our voices have been hushed: Using student perspectives to develop supports for neurodiverse college students. Frontiers of Psychology, 8, 544.
Gotham, K., Marvin, A. R., Taylor, J. L., Warren, Z., Anderson, C. M., Law, P. A., et al. (2015). Characterizing the daily life, needs, and priorities of adults with autism spectrum disorder from Interactive Autism Network data. Autism, 19(7), 794–804.
Hedges, S. H., Kirby, A. V., Sreckovic, M. A., Kucharczyk, S., Hume, K., & Pace, S. (2014). Falling through the cracks: Challenges for high school students with autism spectrum disorder. The High School Journal, 98(1), 64–82.
Hirvikoski, T., Mittendorfer-Rutz, E., Boman, M., Larsson, H., Lichtenstein, P., & Bölte, S. (2016). Premature mortality in autism spectrum disorder. The British Journal of Psychiatry, 208(3), 232–238.
Humphrey, N., & Lewis, S. (2008). ‘Make me normal’: The views and experience of pupils on the autistic spectrum in mainstream secondary schools. Autism, 12, 23–46.
Individuals with Disabilities Education Act, 20 U.S.C. § 300.101. (2004).
Kanner, L. (1943). Autistic disturbances of affective contact. Nervous Child, 2(3), 217–250.
Kasari, C., Locke, J., Gulsrud, A., & Rotheram-Fuller, E. (2011). Social networks and friendships at school: Comparing children with and without ASD. Journal of Autism and Developmental Disorders, 41, 533–544.
Kim, S. Y., & Bottema-Beutel, K. (2019). The negotiation of individual and collective identities in the online discourse of autistic adults. Autism in Adulthood, 1(1), 69–78.
Loomes, R., Hull, L., & Mandy, W. P. L. (2017). What is the male-to-female ratio in autism spectrum disorder? A systematic review and meta-analysis. Journal of the American Academy of Child and Adolescent Psychiatry, 56(6), 466–474.
Mandell, D. S., Listerud, J., Levy, S. E., & Pinto-Martin, J. A. (2002). Race differences in the age at diagnosis among Medicaid-eligible children with autism. Journal of the American Academy of Child and Adolescent Psychiatry, 41(12), 1447–1453.
Marx, R. A., & Kettrey, H. H. (2016). Gay-straight alliances are associated with lower levels of school-based victimization of LGBTQ + youth: A systematic review and meta-analysis. Journal of Youth and Adolescence, 45(7), 1269–1282.
Mazefsky, C. A., Herrington, J., Siegel, M., Scarpa, A., Maddox, B. B., Scahill, L., et al. (2013). The role of emotion regulation in autism spectrum disorder. Journal of the American Academy of Child and Adolescent Psychiatry, 52(7), 679–688.
Meyer, I. H. (2003). Prejudice, social stress, and mental health in lesbian, gay, and bisexual populations: Conceptual issues and research evidence. Psychological Bulletin, 129, 674–697.
Milton, D. E. (2012). On the ontological status of autism: The ‘double empathy problem’. Disability & Society, 27(6), 883–887.
Morrier, M. J., Hess, K. L., & Heflin, L. J. (2011). Teacher training for implementation of teaching strategies for students with autism spectrum disorders. Teacher Education and Special Education, 34(2), 119–132.
Muller, C. (2001). The role of caring in the teacher-student relationship for at-risk students. Sociological Inquiry, 71(2), 241–255.
National Center for Education Statistics. (2018). Children and youth with disabilities. Retrieved from https://nces.ed.gov/programs/coe/indicator_cgg.asp#info.
Network, Autistic Self Advocacy. (2013). Navigating college: A handbook on self advocacy written for autistic students from autistic adults. Washington, DC: Autistic Self Advocacy Network.
Neuendorf, K. A. (2016). The content analysis guidebook. Thousand Oaks: Sage.
Newman, L. (2007). Secondary school experiences of students with Autism. Menlo Park, CA: SRI International.
Ochs, E., Kremer-Sadlik, T., Solomon, O., & Sirota, K. G. (2001). Inclusion as social practice: Views of children with autism. Social Development, 10(3), 399–419.
Pellicano, L., Bölte, S., & Stahmer, A. (2018). The current illusion of educational inclusion. Autism, 22(4), 386–387.
Pellicano, E., Dinsmore, A., & Charman, T. (2014). What should autism research focus upon? Community views and priorities from the United Kingdom. Autism, 18(7), 756–770.
Poon, K. K., Soon, S., Wong, M. E., Kaur, S., Khaw, J., Ng, Z., et al. (2014). What is school like? Perspectives of Singaporean youth with high-functioning autism spectrum disorders. International Journal of Inclusive Education, 18(10), 1069–1081.
Rowley, E., Chandler, S., Baird, G., Simonoff, E., Pickles, A., Loucas, T., et al. (2012). The experiences of friendship, victimization and bullying in children with an autism spectrum disorder: Associations with child characteristics and school placement. Research in Autism Spectrum Disorders, 6, 1126–1134.
Saggers, B. (2015). Student perceptions: Improving the educational experiences of high school students on the autism spectrum. Improving Schools, 18(1), 35–45.
Saggers, B., Hwang, Y. S., & Mercer, K. L. (2011). Your voice counts: Listening to the voice of high school students with autism spectrum disorder. Australasian Journal of Special Education, 35(2), 173–190.
Sciutto, M., Richwine, S., Mentrikoski, J., & Niedzwiecki, K. (2012). A qualitative analysis of the school experiences of students with Asperger syndrome. Focus on Autism and Other Developmental Disabilities, 27(3), 177–188.
StataCorp. (2017). Stata statistical software: Release 15. College Station, TX: StataCorp LLC.
Strang, J. F., Powers, M. D., Knauss, M., Sibarium, E., Leibowitz, S. F., Kenworthy, L., et al. (2018). They thought it was an obsession: Trajectories and perspectives of autistic transgender and gender-diverse adolescents. Journal of Autism and Developmental Disorders, 48(12), 4039–4055.
Taylor, J. L., & Seltzer, M. M. (2011). Employment and postsecondary educational activities for young adults with autism spectrum disorders during the transition to adulthood. Journal of Autism and Developmental Disorders, 41, 566–574.
Toomey, R. B., Ryan, C., Diaz, R. M., Card, N. A., & Russell, S. T. (2013). Gender-nonconforming lesbian, gay, bisexual, and transgender youth: School victimization and young adult psychosocial adjustment. Developmental Psychology, 46(6), 1580–1589.
van der Miesen, A. I., Hurley, H., Bal, A. M., & de Vries, A. L. (2018). Prevalence of the wish to be of the opposite gender in adolescents and adults with autism spectrum disorder. Archives of Sexual Behavior, 47(8), 2307–2317.
Wong, C., Odom, S. L., Hume, K. A., Cox, A. W., Fettig, A., Kucharczyk, S., et al. (2015). Evidence-based practices for children, youth, and young adults with autism spectrum disorder: A comprehensive review. Journal of Autism and Developmental Disorders, 45(7), 1951–1966.
Zeedyk, S. M., Bolourian, Y., & Blacher, J. (2018). University life with ASD: Faculty knowledge and student needs. Autism, 23(3), 726–736.
Zuckerman, K., Sinche, B., Mejia, A., Cobian, M., Becker, T., & Nicolaidis, C. (2014). Latino parents’ perspectives of barriers to autism diagnosis. Academic Pediatrics, 14(3), 301–308.
Acknowledgments
We would like to thank the Michael and Susan Argyelan Education Research Fund administered by the Lynch School of Education and Human Development for providing funding for this project. We would also like to thank the many participants who agreed to complete the surveys.
Funding
This research was supported by the Michael and Susan Argyelan Education Research Fund on Boston College.
Author information
Authors and Affiliations
Contributions
KBB participated in the study design, supervised data collection and analysis, conducted the statistical analysis, and drafted the manuscript. JC coordinated recruitment and data collection, managed the participant database, led survey response coding, and edited the manuscript. SYK and SC participated in survey response coding assisted and in editing the manuscript. DS participated in the study design and edited the manuscript.
Corresponding author
Ethics declarations
Conflict of interest
The authors declare that they have no conflicts of interest.
Ethical Approval
All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.
Informed Consent
Informed parental consent and participant assent was obtained from all individuals prior to their participation in this study.
Additional information
Publisher's Note
Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.
Rights and permissions
About this article
Cite this article
Bottema-Beutel, K., Cuda, J., Kim, S.Y. et al. High School Experiences and Support Recommendations of Autistic Youth. J Autism Dev Disord 50, 3397–3412 (2020). https://doi.org/10.1007/s10803-019-04261-0
Published:
Issue Date:
DOI: https://doi.org/10.1007/s10803-019-04261-0