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The Performance of the First Year Inventory (FYI) Screening on a Sample of High-Risk 12-Month-Olds Diagnosed with Autism Spectrum Disorder (ASD) at 36 Months

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Abstract

This study examined the performance of the First Year Inventory (FYI; version 2.0), a community-normed parent-reported screening instrument, in a high-risk (HR) sample of 12-month-olds with older siblings diagnosed with autism spectrum disorder (ASD). The FYI 2.0 was completed by parents of 86 HR infants and 35 low-risk control infants at age 12 months, followed by clinical diagnosis at 36 months. HR infants later diagnosed with ASD had significantly higher FYI 2.0 risk scores in both the social-communication and sensory-regulatory domains than typically developing infants. New FYI 2.0 cutoff scores for HR sample were explored by evaluating various cutoff options after considering tradeoffs between sensitivity and specificity and sample characteristics.

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Acknowledgements

This research was supported by the Canadian Institutes of Health Research (CIHR) and Autism Speaks Canada. Lonnie Zwaigenbaum was supported by the Stollery Children’s Hospital Foundation Chair in Autism Research. Susan Bryson and Isabel Smith were supported by the Joan and Jack Craig Chair in Autism Research.

Funding

This research was supported by the Canadian Institutes of Health Research (CIHR) and Autism Speaks Canada. Lonnie Zwaigenbaum was supported by the Stollery Children’s Hospital Foundation Chair in Autism Research. Susan Bryson and Isabel Smith were supported by the Joan and Jack Craig Chair in Autism Research.

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Author notes

  1. J. Steven Reznick: Deceased

Authors and Affiliations

  1. Mrs. T.H. Chan Division of Occupational Science and Occupational Therapy, University of Southern California, 1540 Alcazar St. CHP 133, Los Angeles, CA, 90089, USA

    Helen Y. Lee, Cheryl Vigen & Grace T. Baranek

  2. Division of Speech and Hearing Sciences, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA

    Linda R. Watson, Elizabeth R. Crais, Lauren Turner-Brown & J. Steven Reznick

  3. Dalhousie University/IWK Health Centre, Nova Scotia, Canada

    Susan Bryson & Isabel Smith

  4. Bloorview Research Institute, Toronto, Canada

    Jessica Brian

  5. Department of Pediatrics, University of Alberta, Alberta, Canada

    Lonnie Zwaigenbaum

  6. The PEARLS Network, Chapel Hill, USA

    Linda R. Watson, Elizabeth R. Crais, Lauren Turner-Brown, J. Steven Reznick & Grace T. Baranek

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  1. Helen Y. Lee
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Correspondence to Helen Y. Lee.

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All procedures performed in the study involving human participants were in accordance with the ethical standards of the institutional boards at each of three sites (Hamilton, Halifax, and Toronto) and with the 1964 Declaration of Helsinki and its later amendments or comparable ethical standards.

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Lee, H.Y., Vigen, C., Zwaigenbaum, L. et al. The Performance of the First Year Inventory (FYI) Screening on a Sample of High-Risk 12-Month-Olds Diagnosed with Autism Spectrum Disorder (ASD) at 36 Months. J Autism Dev Disord 49, 4957–4973 (2019). https://doi.org/10.1007/s10803-019-04208-5

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