Skip to main content

Advertisement

Log in

Promoting a Collective Voice from Parents, Educators and Allied Health Professionals on the Educational Needs of Students on the Autism Spectrum

  • Original Paper
  • Published:
Journal of Autism and Developmental Disorders Aims and scope Submit manuscript

Abstract

Providing support for the educational needs of students on the autism spectrum continues to be challenging. Findings from this survey of parents, teachers and specialist staff highlight the need for collaboration between stakeholders who support the education of these students. The main themes to emerge were for school staff to be equipped with the knowledge and expertise to support each student in their learning, and for support with social/emotional needs. Findings highlighted the need for a transparent process for building school capacity to translate research and knowledge into practice by all stakeholders. This collective voice is important to ensure the needs of these students are identified and that appropriate support is implemented to maximise the educational success of these students.

This is a preview of subscription content, log in via an institution to check access.

Access this article

Price excludes VAT (USA)
Tax calculation will be finalised during checkout.

Instant access to the full article PDF.

Fig. 1
Fig. 2

Similar content being viewed by others

Notes

  1. Pseudonyms have been used throughout the paper.

References

  • All Party Parliamentary Group on Autism. (APPGA). 2017. Autism and education in England 2017. https://webcache.googleusercontent.com/search?q=cache:SeZ1uJm3Mz8J:https://www.autism.org.uk/~/media/nas/documents/get-involved/held-back/appga-autism-and-education-report.ashx%3Fla%3Den-gb+&cd=1&hl=en&ct=clnk&gl=au&client=firefox-b-d.

  • American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA: American Psychiatric Association.

    Book  Google Scholar 

  • Ashburner, J., Ziviani, J., & Rodger, S. (2010). Surviving in the mainstream: Capacity of children with autism spectrum disorders to perform academically and regulate their emotions and behavior at school. Research in Autism Spectrum Disorders, 4(1), 18–27. https://doi.org/10.1016/j.rasd.2009.07.002.

    Article  Google Scholar 

  • Australian Advisory Board on Autism Spectrum Disorders. (2012). Education and Autism Spectrum Disorders in Australia: The provision of appropriate educational services for school-age students with Autism Spectrum Disorders in Australia. Position paper (2010) updated 2012. Frenchs Forest: Australian Advisory Board on Autism Spectrum Disorders. Retrieved from http://www.autismadvisoryboard.org.au/uploads/file/pdfs/Education%20Position%20Paper%20Final%202010%20Final.pdf.

  • Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., … Dowling, N. F. (2018). Prevalence of autism spectrum disorder among children aged 8 years: Autism and developmental disabilities monitoring network, 11 Sites, United States, 2014. MMWR Surveillance Summaries, 67(6), 1–23. https://doi.org/10.15585/mmwr.ss6706a1.

  • Baldry-Currens, J. A., & Blithell, C. P. (2000). Clinical education: Listening to different perspectives. Physiotherapy, 86(12), 645–653.

    Article  Google Scholar 

  • Bauminger, N. (2002). The facilitation of social-emotional understanding and social interaction in high-functioning children with autism: Intervention outcomes. Journal of Autism and Developmental Disorders, 32(4), 283–298.

    Article  PubMed  Google Scholar 

  • Bellini, S. (2008). Building social relationships: A systematic approach to teaching social interaction skills to children and adolescents with autism spectrum disorders and other social difficulties. Shawnee Mission, KS: Autism Asperger.

    Google Scholar 

  • Cameron, R. (2009). A sequential mixed model research design: Design, analytical and display issues. International Journal of Multiple Research Approaches, 3(2), 140–152.

    Article  Google Scholar 

  • Caprara, G. V., Barbaranelli, C., Pastorelli, C., Bandura, A., & Zimbardo, P. G. (2000). Prosocial foundations of children’s academic achievement. Psychological Science, 11, 302–306.

    Article  PubMed  Google Scholar 

  • Centre for Studies in Inclusive Education (CSIE). (2008). Including disabled children in mainstream schools. Retrieved from http://www.csie.org.uk/inclusion/disabled-children.shtml.

  • Creswell, J. W. (2012). Educational research: Planning, conducting, and evaluating quantitative and qualitative research. Boston, MA: Pearson.

    Google Scholar 

  • den Houting, J. (2019). Neurodiversity: An insider’s perspective. Autism, 23(2), 271–273. https://doi.org/10.1177/1362361318820762.

    Article  Google Scholar 

  • Driscoll, D. L., Appiah-Yeboah, A., Salib, P., & Rupert, D. J. (2007). Merging qualitative and quantitative data in mixed methods research: How to and why not. Ecological and Environmental Anthropology, 3(1), 19–28.

    Google Scholar 

  • Durlak, J., Weissberg, R. P., Dymnicki, A. B., Taylor, R. D., & Schellinger, K. B. (2011). The impact of enhancing students’ social and emotional learning: A meta-analysis of school-based universal interventions. Child Development, 82(1), 405–432.

    Article  PubMed  Google Scholar 

  • Edwards, C. C., & Da Fonte, A. (2012). The 5-point plan: Fostering successful partnerships with families of students with disabilities. Teaching Exceptional Children, 44(3), 6–13.

    Article  Google Scholar 

  • Elias, M. J. (2003). Academic and social-emotional learning. Geneva: International Bureau of Education.

    Google Scholar 

  • Estes, A., Rivera, V., Bryan, M., Cali, P., & Dawson, G. (2011). Discrepancies between academic achievement and intellectual ability in higher-functioning school-aged children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 41(8), 1044–1052. https://doi.org/10.1007/s10803-010-1127-3.

    Article  PubMed  Google Scholar 

  • Farrell, P., & Ainscow, M. (Eds.). (2002). Making special education inclusive: From research to practice. Abingdon: David Fulton.

    Google Scholar 

  • Ferraioli, S., & Harris, S. (2011). Effective Educational Inclusion of Students on the Autism Spectrum. Journal of Contemporary Psychotherapy, 41(1), 19–28. https://doi.org/10.1007/s10879-010-9156-y.

    Article  Google Scholar 

  • Gargiulo, R. M., & Metcalf, D. (2013). Teaching in today’s inclusive classrooms: A universal design for learning approach (2nd ed.). Belmont, CA: Wadsworth, Cengage Learning.

    Google Scholar 

  • Gates, J., Kang, E., & Lerner, M. (2017). Efficacy of group social skills interventions for youth with autism spectrum disorder: A systematic review and meta-analysis. Clinical Psychology Review, 52, 164–181. https://doi.org/10.1016/j.cpr.2017.01.006.

    Article  PubMed  PubMed Central  Google Scholar 

  • Gavin, H. (2008). Understanding research methods and statistics in psychology. London: SAGE.

    Book  Google Scholar 

  • Gillett-Swan, J. K., & Coppock, V. (2016). Children’s rights, educational research and the UNCRC: Past, present and future. UK: Symposium Books.

    Book  Google Scholar 

  • Grimshaw, J. M., Eccles, M. P., Lavis, J. N., Hill, S. J., & Squires, J. E. (2012). Knowledge translation of research findings. Implementation Science: IS, 7, 50. https://doi.org/10.1186/1748-5908-7-50.

    Article  Google Scholar 

  • Hebron, J., & Humphrey, N. (2014). Mental health difficulties among young people on the autistic spectrum in mainstream secondary schools: A comparative study. Journal of Research in Special Educational Needs, 14, 22–32. https://doi.org/10.1111/j.1471-3802.2012.01246.x.

    Article  Google Scholar 

  • Humphrey, N. (2008). Including pupils with autistic spectrum disorders in mainstream schools. Support for Learning, 23, 41–47.

    Article  Google Scholar 

  • Humphrey, N., Curran, A., Morris, E., Farrell, P., & Woods, K. (2007). Emotional intelligence and education: A critical review. Educational Psychology, 27(2), 235–254. https://doi.org/10.1080/01443410601066735.

    Article  Google Scholar 

  • Humphrey, N., & Symes, W. (2011). Peer interaction patterns among adolescents with autistic spectrum disorders (ASDs) in mainstream school settings. Autism, 15, 397–419. https://doi.org/10.1177/1362361310387804.

    Article  PubMed  Google Scholar 

  • Humphrey, N., & Symes, W. (2013). Inclusive education for pupils with autistic spectrum disorders in secondary mainstream schools: Teacher attitudes, experience and knowledge. International Journal of Inclusive Education, 17(1), 32–46. https://doi.org/10.1080/13603116.2011.580462.

    Article  Google Scholar 

  • Ivankova, N. V., Cresswell, J. W., & Stick, S. L. (2006). Using mixed-methods sequential explanatory design: From theory to practice. Field Methods, 18(1), 3–20. https://doi.org/10.1177/1525822X05282260.

    Article  Google Scholar 

  • Jones, C. R., Happe, F., Golden, H., Marsden, A. J., Tregay, J., Simonoff, E., … Charman, T. (2009). Reading and arithmetic in adolescents with autism spectrum disorders: Peaks and dips in attainment. Neuropsychology, 23(6), 718–728. https://doi.org/10.1037/a0016360.

  • Keen, D., Webster, A., & Ridley, G. (2015). How well are children with autism spectrum disorder doing academically at school? An overview of the literature. Autism, 20(3), 276–294. https://doi.org/10.1177/1362361315580962.

    Article  PubMed  Google Scholar 

  • Kurth, J., & Mastergeorge, A. (2010). Academics and cognitive profiles of students with autism: Implications for classroom practice and placement. International Journal of Special Education, 25, 8–14.

    Google Scholar 

  • Lindsay, G. (2007). Educational psychology and the effectiveness of inclusive education/mainstreaming. British Journal of Educational Psychology, 77, 1–24.

    Article  PubMed  Google Scholar 

  • Lindsay, G., Ricketts, J., Peacey, L., Dockrell, J., & Charman, T. (2016). Meeting the educational and social needs of children with language impairment or autism spectrum disorder: The parents’ perspectives. International Journal of Language & Communication Disorders, 51(5), 495–507. https://doi.org/10.1111/1460-6984.12226.

    Article  Google Scholar 

  • Low, C. (2007). A defence of moderate inclusion and the end of ideology. In R. Cigman (Ed.), Included or excluded? The challenge of the mainstream for some SEN children (pp. 15–23). London: Routledge.

    Google Scholar 

  • Magyar, C. I., & Pandolfi, V. (2012). Considerations for establishing a multi-tiered problem-solving model for students with autism spectrum disorders and comorbid emotional behavioral disorders. Psychology in the Schools, 49(10), 975–987.

    Article  Google Scholar 

  • Menold, J., Jablokow, K.W., Purzer, S., Ferguson, D.M., & Ohland, M.W. (2015). Using an instrument blueprint to support the rigorous development of new surveys and assessments in engineering education. In: 122nd American Society for Engineering Education (ASEE). Seattle June 14–17, 2015.

  • Messick, Samuel. (1995). Validity of psychological assessment: validation of inferences from persons’ responses and performances as scientific inquiry into score meaning. American Psychologist, 50(9), 741.

    Article  Google Scholar 

  • Okajima, J., Kato, N., Yoshitomi, Y., Kanaya, R., & Sakuta, R. (2017). The characteristics of social skills school maladjustment and stress responses in junior high school students with autism spectrum disorder. NoTo Hattatsu, 49(2), 120–125. https://doi.org/10.11251/ojjscn.49.120.

    Article  Google Scholar 

  • Onwuegbuzie, A. J., & Teddlie, C. (2003). A framework for analyzing data in mixed methods research. In A. Tashakkori & C. Teddlie (Eds.), Handbook of mixed methods in social and behavioral research (pp. 351–383). Thousand Oaks, CA: Sage.

    Google Scholar 

  • Osborne, L. A., & Reed, P. (2011). School factors associated with mainstream progress in secondary education for included pupils with autism spectrum disorders. Research in Autism Spectrum Disorders, 5, 1253–1263. https://doi.org/10.1016/j.rasd.2011.01.016.

    Article  Google Scholar 

  • Patton, M. Q. (2002). Qualitative research and evaluation methods (3rd ed.). Thousand Oaks, CA: Sage.

    Google Scholar 

  • Payton, J., Weissberg, R. P., Durlak, J. A., Dymnicki, A. B., Taylor, R. D., Schellinger, K. B., & Pachan, M. (2008). The positive impact of social and emotional learning for kindergarten to eighth-grade students: Technical report: Findings from three scientific reviews. Chicago, IL: Collaborative for Academic, Social, and Emotional Learning (CASEL).

  • Pellicano, L., Bölte, S., & Stahmer, A. (2018). The current illusion of educational inclusion. Autism, 22(4), 386–387.

    Article  PubMed  Google Scholar 

  • Pellicano, L., Dinsmore, A., & Charman, T. (2014). What should autism research focus upon? Community views and priorities from the United Kingdom. Autism, 18(7), 756–770. https://doi.org/10.1177/1362361314529627.

    Article  PubMed  PubMed Central  Google Scholar 

  • Powers, B. A., & Knapp, T. A. (Eds.). (2010). Dictionary of nursing theory and research (4th ed.). New York: Springer.

    Google Scholar 

  • Ravet, J. (2011). Inclusive/exclusive? Contradictory perspectives on autism and inclusion: The case for an integrative position. International Journal of Inclusive Education, 15(6), 667–682.

    Article  Google Scholar 

  • Roberts, J., & Simpson, K. (2016). A review of research into stakeholder perspectives on inclusion of students with autism in mainstream schools. Journal of Inclusive Education, 20(10), 1084–1096. https://doi.org/10.1080/13603116.2016.1145267.

    Article  Google Scholar 

  • Saggers, B., Klug, D., Harper-Hill, K., Ashburner, J., Costley, D., Clark, T., et al. (2016). Australian autism educational needs analysis: What are the needs of schools, parents and students on the autism spectrum?. Brisbane, QLD: Cooperative Research Centre for Living with Autism.

    Google Scholar 

  • Sansosti, F. (2010). Teaching social skills to children with autism spectrum disorders using tiers of support: A guide for school-based professionals. Psychology in the Schools, 47(3), 257–281.

    Google Scholar 

  • Sansosti, J., & Sansosti, F. (2012). Inclusion for students with high-functioning autism spectrum disorders: Definitions and decision making. Psychology in the Schools, 49, 917–931. https://doi.org/10.1002/pits.21652.

    Article  Google Scholar 

  • Sansosti, J. M. (2008). The meaning and means of inclusion for students with autism spectrum disorders: A qualitative study of educators’ and parents’ attitudes, beliefs, and decision-making strategies (PhD thesis). University of South Florida, USA.

  • Siegel, B. (2018). The politics of autism. New York: Oxford University Press.

    Google Scholar 

  • Soriano, F. (2013). Conducting needs assessments: A multidisciplinary approach (2nd ed.). Thousand Oaks, CA: SAGE.

    Book  Google Scholar 

  • Soto-Chodiman, R. E., Pooley, J., Cohen, L., & Taylor, M. F. (2012). Students with ASD in mainstream primary education settings: Teachers’ experiences in Western Australian classrooms. Australasian Journal of Special Education, 36(2), 97–111.

    Article  Google Scholar 

  • Stokes, M., Thomson, M., Macmillan, C., Pecora, L., Dymond, S., & Donaldson, E. (2017). Principals’ and teachers’ reports of successful teaching strategies with children with high-functioning autism spectrum disorder. Canadian Journal of School Psychology, 32(3–4), 192–208. https://doi.org/10.1177/0829573516672969.

    Article  Google Scholar 

  • Sze Ngar, V. Y., & Shing, H. H. (2018). Using virtual reality to train emotional and social skills in children with autism spectrum disorder. London Journal of Primary Care, 10(4), 4. https://doi.org/10.1080/17571472.2018.1483000.

    Article  Google Scholar 

  • United Nations Educational Scientific and Cultural Organisation. (1994). Salamanca statement and framework for action on special needs. Salamanca: UNESCO.

    Google Scholar 

  • Waddington, E. M., & Reed, P. (2017). Comparison of the effects of mainstream and special school placements on National Curriculum outcomes in children with autism spectrum disorder: An archive-based analysis. Journal of Research in Special Educational Needs, 17(2), 132–142. https://doi.org/10.1111/1471-3802.12368.

    Article  Google Scholar 

  • Webster, A. A., & Roberts, J. M. A. (2014). Building the capacity of schools to achieve outcomes for students with autism spectrum disorders: A pilot project. Cairns: Department of Education, Training & Employment, Far North Queensland.

    Google Scholar 

  • Webster, A. A., & Wilkinson, J. (2015). Leading school communities to implement a sustainable school-wide model leading to outcomes for students with ASD. Special Education Perspectives, 24, 27–37.

    Google Scholar 

  • Yun, S., Choi, J., Park, S., Bong, G., & Yoo, H. (2017). Social skills training for children with autism spectrum disorder using a robotic behavioral intervention system. Autism Research, 10, 1306–1323. https://doi.org/10.1002/aur.1778.

    Article  PubMed  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Contributions

BS conceived this research and designed the intervention; DK, DT, AW and SB participated in the design and interpretation of the data; BS, MT, JD and SW performed analysis; BS, MT and JD wrote the paper and participated in the revisions of it. All authors read and approved the final manuscript.

Corresponding author

Correspondence to Beth Saggers.

Additional information

Publisher's Note

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

Electronic Supplementary Material

Below is the link to the electronic supplementary material.

Supplementary material 1 (DOCX 213 kb)

Rights and permissions

Reprints and permissions

About this article

Check for updates. Verify currency and authenticity via CrossMark

Cite this article

Saggers, B., Tones, M., Dunne, J. et al. Promoting a Collective Voice from Parents, Educators and Allied Health Professionals on the Educational Needs of Students on the Autism Spectrum. J Autism Dev Disord 49, 3845–3865 (2019). https://doi.org/10.1007/s10803-019-04097-8

Download citation

  • Published:

  • Issue Date:

  • DOI: https://doi.org/10.1007/s10803-019-04097-8

Keywords

Navigation