Psychological adjustment to having one’s child diagnosed with an autism spectrum disorder has important implications for a parent’s mental health. In a longitudinal study, we examined the association between maternal adjustment to the diagnosis and measures of distress and well-being in 90 mothers of children with autism (baseline and 18 months). We used a novel 30-item scale “Adjustment to the Diagnosis of Autism.” Factor analysis identified three dimensions of adjustment: acceptance, self-blame, and despair. Acceptance appeared to be a protective response, as it was associated with lower depressive symptoms, cross-sectionally and over time. Conversely, caregivers with increasing levels of self-blame and despair about the diagnosis over 18 months had worsening of mental health and satisfaction with life during this period.
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We gratefully acknowledge the time of caregivers and families who participated in this study. We also thank Alexandra Crosswell, Julie Vaccaro, Stefanie Mayer, Rachel Radin, and Carlos Almeida for their constructive and insightful comments on this manuscript. This study was supported by the National Institute on Aging, award numbers R01 AG030424 and R24AG048024, and the Althea Foundation, San Francisco.
This study was supported by the National Institute on Aging, award numbers R01 AG030424 and R24AG048024, the Goldman Fund, and the Althea Foundation.
All procedures performed in this study were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards. All participants provided written, informed consent using IRB approved procedures.
Conflict of interest
All authors declare that there is no conflict of interest.
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Da Paz, N.S., Siegel, B., Coccia, M.A. et al. Acceptance or Despair? Maternal Adjustment to Having a Child Diagnosed with Autism. J Autism Dev Disord 48, 1971–1981 (2018). https://doi.org/10.1007/s10803-017-3450-4
- Autism spectrum disorders
- Adaptive adjustment