Challenges of Females with Autism: A Parental Perspective

Abstract

Most studies investigating the experiences and needs of individuals with ASD have largely focused on males. Hence, this study investigates parents’ perspectives on the challenges that their daughters with ASD face. In total, 40 parents of 40 females with autism (age range = 4–29 years; mean = 15.9) participated in the study. Five separate, 2-h long focus groups were conducted, with 7–10 participants in each group. Field notes were analyzed using thematic analysis. Some of the issues parents discussed were similar to those experienced by males with ASD, such as challenges in social interactions. However, other issues discussed were of particular relevance to girls with ASD, including difficulties socializing with other girls, sex-specific puberty issues, barriers in accessing intervention and sexual vulnerability.

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Acknowledgments

The authors thank Claire Foster, BA and Stephanie Valencia, BA from the Yale Child Study Center, for reliability checks and comments.

Funding

The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Hilibrand Fellowship and Marilyn and Jim Simons.

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Authors

Contributions

KK and MM conceptualized the study. KK designed the protocol and recruited participants. KK and PS run the focus groups. MM and KK conducted the analyses and interpreted the findings. MM, KK and FS drafted the manuscript, and all authors contributed to manuscript editing.

Corresponding author

Correspondence to Marilena Mademtzi.

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The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

Ethical Approval

The study was approved by the Human Investigation Committee of Yale University School of Medicine and permission was obtained to write to the parents of female patients who had been evaluated at the Yale Child Study Center Developmental Disabilities clinic. The parents signed an informed consent before their participation.

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Mademtzi, M., Singh, P., Shic, F. et al. Challenges of Females with Autism: A Parental Perspective. J Autism Dev Disord 48, 1301–1310 (2018). https://doi.org/10.1007/s10803-017-3341-8

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Keywords

  • Autism Spectrum Disorders
  • Autism
  • Females
  • Girls
  • Parents
  • Focus group