Family-centered Services for Children with ASD and Limited Speech: The Experiences of Parents and Speech-language Pathologists
Although family-centered services have long been discussed as essential in providing successful services to families of children with autism spectrum disorder (ASD), ideal implementation is often lacking. This study aimed to increase understanding of how families with children with ASD and limited speech receive services from speech-language pathologists (SLPs). 99 parents of children with ASD and limited speech and 211 SLPs who served children with ASD and limited speech completed questionnaires measuring their experiences with the provision of family-centered services. Findings revealed that parents and SLPs differed in their views on the degree to which family-centered services were being implemented. Clinical implications and future research directions are discussed in order to promote continued growth in the acquisition of family-centered skills.
KeywordsFamily-centered practice Parents Caregivers Speech-language pathologists Limited speech Augmentative and alternative communication (AAC)
Portions of this article were submitted by the first author in partial fulfillment of PhD requirements at The Pennsylvania State University Department of Communication Sciences and Disorders. This project was supported, in part, by funding from the: (a) Penn State AAC Leadership Project, a doctoral training grant funded by U.S. Department of Education Grant #H325D110008; (b) Hintz Family Endowed Chair in Children’s Communicative Competence; and (c) Rehabilitation Engineering Research Center on Augmentative and Alternative Communication (The RERC on AAC), funded by Grant #90RE5017 from the National Institute on Disability, Independent Living, and Rehabilitation (NIDILRR) within the Administration for Community Living (ACL) of the U.S. Department of Health and Human Services (HHS). The authors would like to thank the Interactive Autism Network (IAN) Research Database at the Kennedy Krieger Institute, Baltimore for their assistance in the recruitment process.
KM conceptualized the study design, obtained funding, recruited participants, completed data analysis and interpretation, and wrote the manuscript. JL contributed to the interpretation of the findings and made significant contributions to the revision of the paper. All authors read and approved the final manuscript.
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