Abstract
This cross-sectional study provides a general profile of mothers of children with ASDs in Kuwait and examines their use of social support resources and coping strategies (using the Brief COPE questionnaire). The majority of mothers reported decreased ability to perform social duties (62.4%) and take care of themselves (50.5%). Overall, 57.7% of mothers reported a decreased ability to enjoy life; this difference was more pronounced among non-Kuwaiti mothers compared to Kuwaiti mothers (p value = 0.03), and in mothers with a bachelor’s degree or higher (p value = 0.011). There was a significant association between the mothers’ ability to enjoy life and receiving support from the family (p value = 0.021) and support groups (p value = 0.003). “Religion”, “Acceptance”, and “Positive Reframing” were the 3 most common coping strategies.
References
Al-Farsi, Y., Waly, M., Al-Sharbati, M., Al-Shafaee, M., Al-Farsi, O., Al-Fahdi, S., Ouhtit, A., Al-Khaduri, M. and Al-Adawi, S. (2013). Variation in socio-economic burden for caring of children with autism spectrum disorder in Oman: Caregiver perspectives. Journal of Autism and Developmental Disorders, 43(5), 1214–1221.
Al-Salehi, S. M., Al-Hifthy, E. H., & Ghaziuddin, M. (2009). Autism in Saudi Arabia: Presentation, clinical correlates and comorbidity. Transcultural Psychiatry, 46(2), 340–347. doi:10.1177/1363461509105823.
American Psychiatric Association (2013). DSM-5 and diagnoses for children. Retrieved from http://www.psychiatry.org/psychiatrists/practice/dsm/dsm-5.
Ano, G. G., & Vasconcelles, E. B. (2005). Religious coping and psychological adjustment to stress: A meta-analysis. Journal of Clinical Psychology, 61(4), 461–480. doi:10.1002/jclp.20049.
Benson, P. R. (2010). Coping, distress, and well-being in mothers of children with autism. Research in Autism Spectrum Disorders, 4, 217–228. doi:10.1016/j.rasd.2009.09.008.
Benson, P. R. (2014). Coping and psychological adjustment among mothers of children with ASD: An accelerated longitudinal study. Journal of Autism and Developmental Disorders, 44(8), 1793–1807. doi:10.1007/s10803-014-2079-9.
Bilgin, H., & Kucuk, L. (2010). Raising an autistic child: Perspectives from Turkish mothers. Journal of Child and Adolescent Psychiatric Nursing, 23(2), 92–99.
Boyd, B. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 17, 208–215.
Buescher, A. V., Cidav, Z., Knapp, M., & Mandell, D. S. (2014). Costs of autism spectrum disorders in the United Kingdom and the United States. JAMA Psychiatry, 168(8), 721–728. doi:10.1001/jamapediatrics.2014.210.
Carver, C. S. (1997). You want to measure coping but your protocol’s too long: Consider the brief COPE. International Journal of Behavioral Medicine, 4(1), 92–100. doi:10.1207/s15327558ijbm0401_6.
CDC (2017). Autism spectrum disorder: Data and statistics. Retrieved from Centers for disease control and prevention website: https://www.cdc.gov/ncbddd/autism/data.html Retrieved from https://www.cdc.gov/ncbddd/autism/data.html.
Crabtree, S. (2007). Family responses to the social inclusion of children with developmental disabilities in the United Arab Emirates. Disability and Society, 22(1), 49–62.
Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research: JIDR, 54(3), 266–280. doi:10.1111/j.1365-2788.2010.01258.x.
Ewles, G., Clifford, T., & Minnes, P. (2014). Predictors of advocacy in parents of children with autism spectrum disorders. Journal on Developmental Disabilities, 20(1), 73–82.
Favero-Nunes, M. A., & dos Santos, M. A. (2010). Depression and quality of life in mothers of children with pervasive developmental disorders. Revista Latino-Americana de Enfermagem, 18(1), 33–40.
Fombonne, E. (2009). Epidemiology of pervasive developmental disorders. Pediatric Research, 65(6), 591–598. doi:10.1203/PDR.0b013e31819e7203.
Gold, M. (2017). Parent perceptions of the relation between resilience, autism, and sibling relationship quality. (Doctor of Philosophy). New York: Fordham University.
Hersinta. (2012). How Religious Beliefs Influence Understanding on Disability: A Study of Muslim Family’s Perception on Autism Jogja International Conference on Communication.
Khanna, R., Madhavan, S., Smith, M., Patrick, J., Tworek, C., & Becker-Cottrill, B. (2011). Assessment of health-related quality of life among primary caregivers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 41, 1227–1241.
Krok, D. (2008). The role of spirituality in coping: Examining the relationships between spiritual dimensions and coping styles. Mental Health, Religion & Culture, 11(7), 643–653.
Langley, E., Totsika, V., & Hastings, R. P. (2017). Parental relationship satisfaction in families of children with autism spectrum disorder (ASD): A multilevel analysis. Autism Research. doi:10.1002/aur.1773.
Levy, S., Mandell, S., & Schultz, R. (2011). Autism. Lancet. doi:10.1016/S0140-6736(09)61376-3.
Luthra, N. (2010). Family impact of raising a child with autism across different cultures (Masters Thesis), York University Ontario Proquest database.
Meyer, B. (2001). Coping with severe mental illness: Relations of the brief COPE with symptoms, functioning, and well-being. Journal of Psychopathology and Behavioral Assessment, 23(4), 265–277.
Obeid, R., & Daou, N. (2014). The effects of coping style, social support, and behavioral problems on the well-being of mothers of children with autism spectrum disorders in Lebanon. Research in Autism Spectrum Disorders, 10, 59–70.
Samadi, S. A., & McConkey, R. (2011). Autism in developing countries: Lessons from Iran. Autism Research and Treatment, 2011, 145359. doi:10.1155/2011/145359.
Smith, L., Seltzer, M., Tager-Flusberg, H., Greenberg, J., & Carter, A. (2008). A comparative analysis of well-being and coping among mothers of toddlers and mothers of adolescents with ASD. Journal of Autism and Developmental Disorders, 38(5), 876–889. doi:10.1007/s10803-007-0461-6.
Valente, S. (2004). Autism. Journal of the American Psychiatric Nurses Association. doi:10.1177/1078390304269789.
Vasilopoulou, E., & Nisbet, J. (2016). The quality of life of parents of children with autism spectrum disorder: A systematic review. Research in Autism Spectrum Disorders, 23, 36–49.
Weiss, J. (2002). Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation. Autism: The International Journal of Research and Practice, 6(1), 115–130.
Zaidman-Zait, A., Mirenda, P., Duku, E., Vaillancourt, T., Smith, I. M., Szatmari, P., … Thompson, A. (2016). Impact of personal and social resources on parenting stress in mothers of children with autism spectrum disorder. Autism: The International Journal of Research and Practice. doi:10.1177/1362361316633033.
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We would like to gratefully acknowledge the schools that helped distribute our questionnaire and the mothers that participated in the study.
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SAK and AA participated in the design of the study and coordination, collection and interpretation of the data as well as the statistical analysis, and drafted the manuscript. SA, FA, and MA helped in data collection and interpretation, as well as writing up the methods and results. NS and RA supervised the project and provided necessary guidance to the authors. All authors read and approved the manuscript.
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This research has no conflict of interest.
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The study protocol and data collection instrument were reviewed and approved by the Department of Community Medicine. The Human Subject form and the research protocol were approved by the Ethics Committee of the Health Sciences Center, Kuwait University, and Ministry of Health Joint Committee in order to preserve the human rights of participation.
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An informed consent was distributed with all the questionnaires. It explained the study objectives. Participants were also assured about confidentiality of collected information and that they were free to decline participation in the study.
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Al-Kandari, S., Alsalem, A., Abohaimed, S. et al. Brief Report: Social Support and Coping Strategies of Mothers of Children Suffering from ASD in Kuwait. J Autism Dev Disord 47, 3311–3319 (2017). https://doi.org/10.1007/s10803-017-3225-y
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DOI: https://doi.org/10.1007/s10803-017-3225-y