Quality of Life in Parents of Young Adults with ASD: EpiTED Cohort
The impact of ASD on parental QOL was evaluated in the EpiTED cohort study at early adulthood. Two-third of parents of young adults with ASD (66.7%) reported that their QoL was at least moderately altered. The perceived impact of ASD on parental QoL was related to the young adults’ level of adaptive skills, as well as to symptom severity and the presence of challenging behaviors, which appeared to be the main risk factor. The study of change between adolescence and early adulthood showed that parents whose children had a decrease in challenging behaviors perceived a decreased impact on their QoL. These results argue for the importance to propose specific interventions to target associated challenging behaviors in ASD.
KeywordsParental QoL Autism Young adult Cohort
This work was supported by grants from the Orange Foundation, and the French national health institute (PHRC 1997 & 2007 and ANR Blanc 2011). We are particularly grateful to the young adults and their families who took part in this study. We also thank Nathalie Fallourd, Carolina Baeza-Velasco and Eric Pernon for their assistance with the recruitment and clinical evaluation of participants and Julie Loubersac for her data-management help.
CR, CM and AB were involved in the design of the study and the development of method. CR, CM and AB contributed to data collection. CR, CM, HR and AB were involved in data analysis and interpretation. CR, CM, HR and AB drafted the work. All the authors have critically revised this article and approved the final version to be published.
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