Parent and Self-Report Ratings on the Perceived Levels of Social Vulnerability of Adults with Williams Syndrome
The current study took a multi-informant approach to compare parent to self-report ratings of social vulnerability of adults with Williams syndrome (WS). Participants included 102 pairs of adults with WS and their parents. Parents completed the Social Vulnerability Questionnaire and adults with WS completed an adapted version of the questionnaire. Parents consistently reported higher levels of social vulnerability for their son/daughter than the individual with WS reported, with the exception of emotional abuse. The lower ratings of social vulnerability by adults with WS, compared to their parents, offer new information about their insight into their own vulnerability. These findings highlight the importance of teaching self-awareness as a part of a multi-informant approach to interventions designed to target social vulnerability.
KeywordsSocial vulnerability Victimisation Williams syndrome Intellectual disability
This study was partially supported through funding from the Institute for Research on Teaching and Learning within the College of Education at Michigan State University. The authors would like to acknowledge the advice and guidance of Dr. Deborah Riby and Dr. Meghan Burke in the preparation of this manuscript. The work would not have been possible without the support of the Williams Syndrome Association, the Vanderbilt Kennedy Center’s ACM Lifting Lives Music Camp, and all families who participated.
EL conceived of this study, participated in its design and performed the measurement, aided with the statistical analysis and drafted the manuscript. MF participated in the study design and coordination, performed the measurement and the statistical analysis and drafted the manuscript. Both authors read and approved the final manuscript.
Compliance with Ethical Standards
Conflict of interest
The authors declare that they have no conflict of interest.
All procedures performed in studies involving human participants were in accordance with the ethical standards of the institutional and/or national research committee and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.
Informed consent was obtained from all individual participants included in the study.
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