Comparison of a Self-Directed and Therapist-Assisted Telehealth Parent-Mediated Intervention for Children with ASD: A Pilot RCT
- 2.2k Downloads
This pilot RCT compared the effect of a self-directed and therapist-assisted telehealth-based parent-mediated intervention for young children with ASD. Families were randomly assigned to a self-directed or therapist-assisted program. Parents in both groups improved their intervention fidelity, self-efficacy, stress, and positive perceptions of their child; however, the therapist-assisted group had greater gains in parent fidelity and positive perceptions of child. Children in both groups improved on language measures, with a trend towards greater gains during a parent–child interaction for the therapist-assisted group. Only the children in the therapist-assisted group improved in social skills. Both models show promise for delivering parent-mediated intervention; however, therapist assistance provided an added benefit for some outcomes. A full-scale comparative efficacy trial is warranted.
KeywordsAutism Parent training Telehealth
This project was supported by CDMRP Grant: #W81XWH-10-1-0586. The first author receives royalties from the sale of the manual that was adapted for use in the online tutorial. Royalities are donated to the research. We thank the families who participated in this study.
BI conceived of the study, participated in its design and coordination and drafted the manuscript; ALW, NIB, and KEP performed the measurement and participated in its design and coordination and helped to draft the manuscript. NB performed the measurement and participated in the study’s coordination. All authors read and approved the final manuscript.
- American Psychiatric Association. (2000). DSM-IV. Diagnostic and statistical manual of mental disorders 4th edition TR. Arlington, VA: American Psychiatric Publishing.Google Scholar
- American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Arlington, VA: American Psychiatric Publishing.Google Scholar
- Baggett, K. M., Davis, B., Feil, E. G., Sheeber, L. B., Landry, S. H., Carta, J. J., & Leve, C. (2010). Technologies for expanding the reach of evidence-based interventions: Preliminary results for promoting social-emotional development in early childhood. Topics in Early Childhood Special Education, 29(4), 226–238.CrossRefPubMedPubMedCentralGoogle Scholar
- Fenson, L., Marchman, V. A., Thal, D., Dale, P. S., Reznick, J. S., & Bates, E. (2006). MacArthur-Bates communicative development inventories: User’s guide and technical manual 2. Baltimore, MD: Brookes Publishing.Google Scholar
- Gibaud-Wallston, J., & Wandersmann, L. P. (1978). Development and utility of the parenting sense of competence scale. Washington: John F. Kennedy Center for Research on Education and Human Development.Google Scholar
- Hamad, C. D., Serna, R. W., Morrison, L., & Fleming, R. (2010). Extending the reach of early intervention training for practicitioners: A preliminary investigation of an online vurriculum for teaching behavioral intervention knowledge in autism to families and service providers. Infants and Young Children, 23(3), 195–208.CrossRefPubMedPubMedCentralGoogle Scholar
- Ingersoll, B., & Dvortcsak, A. (2010). Teaching social communication: A practitioner’s guide to parent training for children with autism. New York: Guilford Press.Google Scholar
- Jang, J., Dixon, D. R., Tarbox, J., Granpeesheh, D., Kornack, J., & de Nocker, Y. (2012). Randomized trial of an eLearning program for training family members of children with autism in the principles and procedures of applied behavior analysis. Research in Autism Spectrum Disorders, 6(2), 852–856.CrossRefGoogle Scholar
- Kobak, K. A., Stone, W. L., Wallace, E., Warren, Z., Swanson, A., & Robson, K. (2011). A web-based tutorial for parents of young children with autism: Results from a pilot study. Telemedicine Journal and E-Health: The Official Journal of the American Telemedicine Association, 17(10), 804–808.CrossRefGoogle Scholar
- Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & Van Dyck, P. C. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005–2006. Pediatrics, 122(6), e1149–e1158.CrossRefPubMedGoogle Scholar
- Lord, C., Risi, S., Lambrecht, L., Cook, E. H, Jr, Leventhal, B. L., DiLavore, P. C., & Rutter, M. (2000). Autism diagnostic observation schedule—generic: A standard measure of social and communication deficits associated with the spectrum of autism. Journal of Autism and Developmental Disorders, 30(3), 205–223.CrossRefPubMedGoogle Scholar
- Mullen, E. M. (1995). Mullen scales of early learning. Circle Pines, MN: AGS.Google Scholar
- National Research Council. (2001). Educating children with autism. Washington, DC: National Academy Press.Google Scholar
- Schreibman, L., Dawson, G., Stahmer, A. C., Landa, R., Rogers, S. J., McGee, G. G., & Halladay, A. (2015). Naturalistic developmental behavioral interventions: Empirically validated treatments for autism spectrum disorder. Journal of Autism and Developmental Disorders, 45, 2411–2428.CrossRefPubMedPubMedCentralGoogle Scholar
- Sparrow, S. S., Balla, D. A., & Cicchetti, D. V. (2005). Vineland II: Vineland adaptive behavior scales. Circle Pines, MN: American Guidance Service.Google Scholar
- Tager-Flusberg, H., Rogers, S., Cooper, J., Landa, R., Lord, C., Paul, R., & Yoder, P. (2009). Defining spoken language benchmarks and selecting measures of expressive language development for young children with autism spectrum disorders. Journal of Speech, Language, and Hearing Research, 52(3), 643–652.CrossRefPubMedPubMedCentralGoogle Scholar
- United States Department of Education, Office of Planning, Evaluation, and Policy Development. (2010). Evaluation of evidence-based practices in online learning: A meta-analysis and review of online learning studies. Washington, DC: Author.Google Scholar