Journal of Autism and Developmental Disorders

, Volume 46, Issue 2, pp 698–703 | Cite as

Brief Report: Recruitment and Retention of Minority Children for Autism Research

  • Irina Zamora
  • Marian E. Williams
  • Marcia Higareda
  • Barbara Y. Wheeler
  • Pat Levitt
Brief Report

Abstract

Given the underrepresentation of ethnic minorities in health research (Heiat et al. in Arch Int Med 162(15):1–17, 2002; Kelly et al. in J Nat Med Assoc 97:777–783, 2005; United States Department of Health and Human Services. Monitoring adherence to the NIH policy on the inclusion of women and minorities as subjects in clinical research.http://orwh.od.nih.gov/research/inclusion/reports.asp, 2013), this study evaluated promising strategies to effectively recruit Latinos into genetic research on autism spectrum disorders (ASD). The study included 97 children, aged 5–17 years, with ASD; 82.5 % of the participants were identified as Latino/Hispanic. Traditional and culture-specific recruitment and retention strategies were compared between the Latino and non-Latino groups. Culture-specific, parent-centered approaches were found to be successful in engaging and retaining Latino participants for research involving genetic testing.

Keywords

Autism spectrum disorder Recruitment Latino Genetic research 

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Copyright information

© Springer Science+Business Media New York 2015

Authors and Affiliations

  1. 1.USC University Center for Excellence in Developmental Disabilities, Children’s Hospital Los AngelesUniversity of Southern CaliforniaLos AngelesUSA
  2. 2.Boone Fetter Clinic, Children’s Hospital Los AngelesLos AngelesUSA
  3. 3.Western Governors UniversitySalt Lake CityUSA
  4. 4.Institute for the Developing MindChildren’s Hospital Los Angeles, Keck School of Medicine of University of Southern CaliforniaLos AngelesUSA

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