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The Impact of the Medical Home on Access to Care for Children with Autism Spectrum Disorders

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Abstract

Children with autism spectrum disorders (ASD) experience difficulty accessing health care services. Using parent-reported data from the 2009–2010 National Survey of Children with Special Health Care Needs, we examined whether having a medical home reduces unmet need for specialty care services for children with ASD (n = 3,055). Descriptive statistics and Chi square tests identified sample characteristics and examined the relationship between unmet needs and a standardized measure of medical home. Logistic regression models explored the individual impact of demographic, condition-specific and medical home variables on unmet need. Parents reported that nearly all children had a need for specialty services, 36 % had an unmet need, and 23.9 % had a medical home. Children who had fewer unmet needs were more likely to have received family-centered and coordinated care through a medical home, and this relationship remained significant even when demographic and condition-specific variables were taken into account. These findings suggest ways to improve access to care for children with ASD through enhanced family-centered and coordinated care within the medical home.

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References

  • Bitterman, A., Daley, T. C., Misra, S., Carlson, E., & Markowitz, J. (2008). A national sample of preschoolers with autism spectrum disorders: Special education services and parent satisfaction. Journal of Autism and Developmental Disorders, 38, 1509–1517.

    Article  PubMed  Google Scholar 

  • Blumberg, S. J., Welch, E. M., Chowdhury, S. R., Upchurch, H. L., Parker, E. K., & Skalland, B. J. (2008). Design and operation of the National Survey of Children with Special Health Care Needs, 2005–2006. Vital and health statistics Ser 1, Programs and collection procedures, pp 1–188.

  • Brachlow, A. E., Ness, K. K., McPheeters, M. L., & Gurney, J. G. (2007). Comparison of indicators for a primary care medical home between children with autism or asthma and other special health care needs. Archives of Pediatrics and Adolescent Medicine, 161, 399–404.

    Article  PubMed  Google Scholar 

  • CDC. (2012). Prevalence of autism spectrum disorders–Autism and Developmental Disabilities Monitoring Network, 14 sites, United States, 2008. MMWR Surveill Summary, 61, 1–19.

    Google Scholar 

  • Child and Adolescent Health Measurement Initiative (2009a). Measuring medical home for children and youth A resource manual for child health program leaders, researchers and analysts (pp 1–55). Oregon Health and Science University.

  • Child and Adolescent Health Measurement Initiative (2009b). Measuring medical home for children and youth. A resource manual for child health program leaders, researchers and analysts. http://www.childhealthdata.org/docs/medical-home/mhmanual_withappendices-updated-12-7-10-pdf.

  • Child and Adolescent Health Measurement Initiative (2012) National profile of children with special health care needs and autism spectrum disorders: Key findings from the 2009/10 NS-CSHCN & 2007 NSCH. Data Resource Center.

  • Chiri, G., & Warfield, M. E. (2012). Unmet need and problems accessing core health care services for children with autism spectrum disorder. Maternal and Child Health Journal, 16, 1081–1091. doi:10.1007/s10995-011-0833-6.

    Article  PubMed  Google Scholar 

  • Cidav, Z., Lawer, L., Marcus, S. C., & Mandell, D. S. (2013). Age-related variation in health service use and associated expenditures among children with autism. Journal of Autism and Developmental Disorders, 43, 924–931. doi:10.1007/s10803-012-1637-2.

    Article  PubMed  Google Scholar 

  • Cohen, E., et al. (2011). Children with medical complexity: An emerging population for clinical and research initiatives. Pediatrics, 127, 529–538. doi:10.1542/peds.2010-0910.

    Article  PubMed Central  PubMed  Google Scholar 

  • Coury, D., Jones, N. E., Klatka, K., Winklosky, B., & Perrin, J. M. (2009). Healthcare for children with autism: The Autism Treatment Network. Current Opinion in Pediatrics, 21, 828–832. doi:10.1097/MOP.0b013e328331eaaa.

    Article  PubMed  Google Scholar 

  • Farmer, J., Clark, M., Drewel, E., Swenson, T., & Ge, B. (2011). Consultative care coordination through the medical home for CSHCN: A randomized controlled trial. Maternal and Child Health Journal, 15, 1110–1118. doi:10.1007/s10995-010-0658-8.

    Article  PubMed  Google Scholar 

  • Farmer, J. E., et al. (2013). The relationship between the medical home and unmet needs for children with autism spectrum disorders. Maternal and Child Health Journal,. doi:10.1007/s10995-013-1292-z.

    Google Scholar 

  • Fisher, E. S. (2008). Building a medical neighborhood for the medical home. The New England Journal of Medicine, 359, 1202–1205. doi:10.1056/NEJMp0806233.

    Article  PubMed Central  PubMed  Google Scholar 

  • Golnik, A., Scal, P., Wey, A., & Gaillard, P. (2012). Autism-specific primary care medical home intervention. Journal of Autism and Developmental Disorders, 42, 1087–1093. doi:10.1007/s10803-011-1351-5.

    Article  PubMed  Google Scholar 

  • Graubard, B. I., & Korn, E. L. (1996). Survey inference for subpopulations. American Journal of Epidemiology, 144, 102–106.

    Article  PubMed  Google Scholar 

  • Gurney, J. G., McPheeters, M. L., & Davis, M. M. (2006). Parental report of health conditions and health care use among children with and without autism. Archives of Pediatrics, 160, 825–830.

    Article  Google Scholar 

  • Harel, Y., et al. (1994). The effects of recall on estimating annual nonfatal injury rates for children and adolescents. American Journal of Public Health, 84, 599–605.

    Article  PubMed Central  PubMed  Google Scholar 

  • Health Resources and Services Administration, Maternal and Child Health Bureau, Conducted by the National Center for Health Statistics, Centers for Disease Control and Prevention (2011). 2009–2010 National Survey of Children with Special Health Care Needs. http://www.cdc.gov/nchs/data/slaits/NS_CSHCN_Questionnaire_09_10.pdf.

  • Homer, C. J., et al. (2008). A review of the evidence for the medical home for children with special health care needs. Pediatrics, 122, e922–e937.

    Article  PubMed  Google Scholar 

  • Howlin, P. (2005). Outcomes in autism spectrum disorders. In: Volkmar, F.R., Paul, R., Klin, A., & Cohen, D. (eds) Handbook of autism and pervasive developmental disorders. (Vol. 1, 3rd edn., pp 201–220). Hoboken, NJ: Wiley

  • Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & van Dyck, P. C. (2008). A national profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005 2006. Pediatrics, 122, e1149–e1158.

    Article  PubMed  Google Scholar 

  • Krauss, M. W., Gulley, S., Sciegaj, M., & Wells, N. (2003). Access to specialty medical care for children with mental retardation, autism, and other special health care needs. Mental Retardation, 41, 329–339.

    Article  PubMed  Google Scholar 

  • McGrath, R. J., Laflamme, D. J., Schwartz, A. P., Stransky, M., & Moeschler, J. B. (2009). Access to genetic counseling for children with autism, down syndrome, and intellectual disabilities. Pediatrics, 124(Suppl 4), S443–S449.

    Article  PubMed  Google Scholar 

  • Medicaid, C. f. M. (2012). CHIP eligibility standards. In. http://medicaid.gov/Medicaid-CHIP-Program-Information/By-Topics/Childrens-Health-Insurance-Program-CHIP/CHIP-Eligibility-Standards-.html. Accessed July 26 2013.

  • Montes, G., Halterman, J. S., & Magyar, C. I. (2009). Access to and satisfaction with school and community health services for US children with ASD. Pediatrics, 124(Suppl 4), S407–S413. doi:10.1542/peds.2009-1255L.

    Article  PubMed  Google Scholar 

  • Noble, D. J., & Casalino, L. P. (2013). Can accountable care organizations improve population health? Should they try? JAMA, The Journal of the American Medical Association, 309, 1119–1120. doi:10.1001/jama.2013.592.

    Article  Google Scholar 

  • Odom, S., Collet-Klingenberg, L., Rogers, S. J., & Hatton, D. D. (2010). Evidence-based practices in interventions for children and youth with autism spectrum disorders. Preventing School Failure: Alternative Education for Children and Youth, 54, 275–282.

    Article  Google Scholar 

  • Pediatrics, A. A. o. (2013). National Center for Medical Home Implementation: Autism information. In. http://www.medicalhomeinfo.org/about/cocwd/autism.aspx. Accessed August 6 2013.

  • Ruble, L. A., Heflinger, C. A., Renfrew, J. W., & Saunders, R. C. (2005). Access and service use by children with autism spectrum disorders in medicaid managed care. Journal of Autism and Developmental Disorders, 35, 3–13.

    Article  PubMed  Google Scholar 

  • Sheldrick, R. C., & Perrin, E. C. (2010). Medical home services for children with behavioral health conditions. Journal of Developmental and Behavioral Pediatrics, 31, 92–99.

    Article  PubMed  Google Scholar 

  • Taylor, E., Lake, T., Nysenbaum, J., Peterson, G., & Meyers, D. (2011). Coordinating care in the medical neighborhood: Critical components and available mechanisms. White paper AHRQ publication.

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Acknowledgments

The authors would like to express their appreciation to Dr. J. Wade Davis for his statistical assistance.

Conflict of interest

The authors declare that they have no conflict of interest.

Ethical standard

The Institutional Review Board at the university involved in this project approved all study procedures and all persons included in the study gave their informed consent prior to their inclusion in the study.

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Correspondence to Nancy C. Cheak-Zamora.

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Cheak-Zamora, N.C., Farmer, J.E. The Impact of the Medical Home on Access to Care for Children with Autism Spectrum Disorders. J Autism Dev Disord 45, 636–644 (2015). https://doi.org/10.1007/s10803-014-2218-3

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  • DOI: https://doi.org/10.1007/s10803-014-2218-3

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