Measurement Tools and Target Symptoms/Skills Used to Assess Treatment Response for Individuals with Autism Spectrum Disorder
- 1.6k Downloads
This study examined the measurement tools and target symptoms/skills used to assess treatment response during Autism Spectrum Disorder (ASD) intervention trials from 2001 through 2010. Data from 195 prospective trials were analyzed. There were 289 unique measurement tools, of which 61.6 % were used only once, and 20.8 % were investigator-designed. Only three tools were used in more than 2 % of the studies, and none were used in more than 7 % of studies. Studies investigated an average of 11.4 tool-symptom combinations per trial, with as many as 45 in one study. These results represent a lack of consistency in outcome measurements in ASD intervention trials. These findings highlight the need to set guidelines for appropriate outcome measurement in the ASD field.
KeywordsAutism Intervention Treatment Behavior Symptoms Measures
The study was supported in part by the Glynn Family Honors Program at the University of Notre Dame and a grant from the Boler Family Foundation (J. Diehl, P.I.). We would like to thank Ellen Bolte, R.N., for her thoughtful comments as we developed this review, and Stephany Mazur for her feedback during the editing process.
Conflict of interest
The authors declare that they have no conflict of interest.
- American Psychiatric Association. (2012). American psychiatric association DSM-5 development: Disorders usually first diagnosed in infancy, childhood, or adolescence. Retrieved from: http://www.dsm5.org. Last accessed July 16, 2012.
- Bayley, N. (1993). Bayley scales of infant development (2nd ed.). San Antonio, TX: Psychological Corporation.Google Scholar
- Centers for Disease Control, Prevention. (2012). Prevalence of autism spectrum disorders—Autism and developmental disabilities monitoring network, 14 Sites, United States, 2008. Morbidity and Mortality Weekly Report, 61(SS03), 1–19.Google Scholar
- Gray, K. M., Tonge, B. J., & Sweeney, D. J. (2008). Using the autism diagnostic interview-revised and the autism diagnostic observation schedule with young children with developmental delay: Evaluating diagnostic validity. Journal of Autism and Developmental Disorders, 38(4), 657–667.PubMedCrossRefGoogle Scholar
- Guy, W. (1976). ECDEU assessment manual for psychopharmacology, Publication No. 76–338. Rockville, MD: U.S. DHEW, NIMH.Google Scholar
- Lord, C., & Corsello, C. (2005). Diagnostic instruments in autistic spectrum disorders. In F. R. Volkmar, R. Paul, A. Klin, & D. J. Cohen (Eds.), Handbook of autism and pervasive developmental disorders, vol. 2: Assessment, interventions, and policy (3rd ed., pp. 730–771). Hoboken, NJ: Wiley.Google Scholar
- Lord, C., Rutter, M., DiLavore, P. C., & Risi, S. (2002). Autism diagnostic observation schedule (ADOS). Los Angeles: Western Psychological Services.Google Scholar
- Lord, C., Rutter, M., DiLavore, P. C., Risi, S., Gotham, K., & Bishop, S. (2012). Autism diagnostic observation schedule, second edition: ADOS-2. Los Angeles: Western Psychological Services.Google Scholar
- National Institutes of Health. (2011). Publication characteristics (Publication Types)—Scope Notes. U.S. National Library of Medicine. Retrieved from http://www.nlm.nih.gov.proxy.library.nd.edu/mesh/pubtypes.html. Last accessed March 26, 2012.
- ProQuest LLC. (2012). Glossary. Retrieved from: http://search.proquest.com.proxy.library.nd.edu/help/academic/webframe.html?Search_Tips.html. Last accessed March 26, 2012.
- Rutter, M., Le Couteur, A., & Lord, C. (2003). Autism diagnostic interview-revised. Los Angeles: Western Psychological Services.Google Scholar
- Schopler, E., Reichler, R., & Renner, B. (1988). The childhood autism rating scale (CARS). Los Angeles, CA: Western Psychological.Google Scholar
- Sparrow, S., Balla, D., & Cicchetti, D. V. (1984). The Vineland adaptive behavior scales (Survey Form). Circle Pines, MN: American Guidance Service.Google Scholar
- Wink, L. K., Erickson, C. A., & McDougle, C. J. (2010). Pharmacologic treatment of behavioral symptoms associated with autism and other pervasive developmental disorders. Journal of Autism and Developmental Disorders, 12(6), 529–538.Google Scholar
- World Health Organization. (2008). International statistical classification of diseases and related health problems, 10th revision (ICD-10). New York, NY: Author.Google Scholar