Journal of Autism and Developmental Disorders

, Volume 43, Issue 7, pp 1692–1700

Views on the Diagnostic Labels of Autism and Asperger’s Disorder and the Proposed Changes in the DSM

  • Donna M. Kite
  • Judith Gullifer
  • Graham A. Tyson
Original Paper

Abstract

With the approaching release of the DSM V in 2013, there has been much debate about the proposal to remove the diagnostic label of Asperger’s disorder from the new DSM. This study explored how health and education professionals perceive the conditions of autism and Asperger’s disorder and their views on the proposed diagnostic changes. Analysis of the 547 participant responses confirmed an increase stigma is associated with the label of autism, with autism considered to be a more severe than the condition of Asperger’s disorder. Approximately half of the participants reported being opposed to proposed diagnostic changes and of the remaining participants, 22 % supported the proposed changes and 28 % expressed uncertainty.

Keywords

Autism Asperger’s disorder Diagnostic changes Stigma 

References

  1. Admin. (2011, July 6). Asperger’s, autism and the new DSM. Retrieved December 27, 2011.Google Scholar
  2. American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders. Washington: American Psychiatric Association.Google Scholar
  3. American Psychiatric Association. (2009). Asperger’s disorder. Retrieved 30 April 2009.Google Scholar
  4. American Psychiatric Association. (2010). DSM-V: The future manual. Retrieved 18 June.Google Scholar
  5. American Psychiatric Association. (2011). DSM-5 Development. Retrieved September 1, 2011 from http://www.dsm5.org>Home>ProposedRevision.
  6. Angermeyer, M. C., & Matschinger, H. (2003). The stigma of mental illness: Effects of labelling on public attitudes towards people with mental illness. Acta Psychiatrica Scandinavica, 108, 304–309.PubMedCrossRefGoogle Scholar
  7. Attwood, T. (1998). Asperger’s syndrome: A guide for parents and professionals. London: Jessica Kingsley Publishers.Google Scholar
  8. Australian Government. (2008). Helping children with autism. Canberra: FaHCSIA.Google Scholar
  9. Autism Support Group. (2010). Proposed changes to autism diagnosis in DSM-V. Retrieved 20 July 2010.Google Scholar
  10. Barbaro, J., & Dissanayake, C. (2007). A comparative study of the use and understanding of self-presentational display rules in children with high functioning autism and Asperger’s disorder. Journal of Autism and Developmental Disorders, 37, 1235–1246.PubMedCrossRefGoogle Scholar
  11. Bernard, H. R., & Ryan, G. W. (2010). Analyzing qualitative data systematic approaches. London: SAGE Publications.Google Scholar
  12. Bocaccini, M. T., Murrie, D. C., Clark, J. W., & Cornell, D. G. (2008). Describing, diagnosing and naming psychopathy: How do youth psychopathy labels influence jurors. Behavioural Science and the Law, 26, 487–510.CrossRefGoogle Scholar
  13. Brewin, B. J., Renwick, R., & Fudge Schormans, A. (2008). Parental perspectives of the quality of life in school environments for children with Asperger syndrome. Focus on Autism and other developmental disabilities, 23(4), 242–252.CrossRefGoogle Scholar
  14. Bubbles. (2011). Autism and Asperger’s in teh DSM-V: Thoughts on clinical utility. Retrieved September 2011.Google Scholar
  15. Corrigan, P. W. (2007). How clinical diagnosis might exacerbate the stigma of mental illness. Social Work, 52(1), 31–39.PubMedCrossRefGoogle Scholar
  16. Cuccaro, M. L., Nations, L., Brinkley, J., Abramson, R. K., Wright, H. H., Hall, A., et al. (2007). A comparison of repetitive behaviors in Aspergers disorder and high functioning autism. Child Psychiatry and Human Development, 37, 347–360.PubMedCrossRefGoogle Scholar
  17. Doherty, E. (2009, 26 April). Kids ‘Cage’ Anger. The Advertiser, pp. 1, 4.Google Scholar
  18. Earley, D. (2009, May 2). Rein reveals autism ordeal. The Advertiser. Google Scholar
  19. Eiser, J. R., & Mower-White, C. J. (1976). The persuasiveness of labels: Attitude change produced through definition of the attitude continuum. European Journal of Social Psychology, 4(1), 89–92.CrossRefGoogle Scholar
  20. Elfant, A. B. (1985). Psychotherapy and assessment in hospital settings: Ideological and professional conflicts. Professional Psychology: Research and Practice, 16(1), 55–63.CrossRefGoogle Scholar
  21. Fletcher, J., Pirkis, J., King, K., Christo, J., Bassilios, B., Burgess, P., et al. (2011). Psychologists’ experiences with the Better Access initiative: A pilot study. Australian Psychologist, 46, 153–162.CrossRefGoogle Scholar
  22. Ghaziuddin, M. (2005). A family history study of Asperger’s syndrome. Journal of Autism and Developmental Disorders, 35, 177–182.PubMedCrossRefGoogle Scholar
  23. Ghaziuddin, M. (2008). Defining the behavioural phenotype of Asperger syndrome. Journal of Autism and Developmental Disorders, 38(1), 138–142.PubMedCrossRefGoogle Scholar
  24. Ghaziuddin, M. (2010). Brief report: Should the DSM V drop Asperger syndrome? Journal of Autism and Developmental Disorders, 40, 1146–1148.PubMedCrossRefGoogle Scholar
  25. Gillberg, C., & Enlers, S. (1998). High functioning people with Autism and Asperger’s syndrome: A literature review. In E. Schopler, G. B. Mesibov, & L. J. Kunce (Eds.), Asperger syndrome or high-functioning autism? (pp. 79–100). New York: Plenum Press.CrossRefGoogle Scholar
  26. Henrysdad. (2010). Autism and Asperger’s in teh DSM-V: Thoughts on clinical utility. Retrieved September 21, 2011.Google Scholar
  27. Holm-Denoma, J. M. (2008). Patients’ affective reaction to receiving diagnostic feedback. Journal of Social and Clinical Psychology, 27(6), 555–575.CrossRefGoogle Scholar
  28. Hough, H. (2006). Letters to the editor. Journal of Child and Adolescent Psychiatric Nursing, 19(4), 166–169.CrossRefGoogle Scholar
  29. Huang, H., & Diamond, K. E. (2010). Early childhood teacher’s ideas about including children with disabilities in programmes designed for typically developing children. International Journal of Disability, Development and Education, 56(2), 169–182.CrossRefGoogle Scholar
  30. Isus. (2011). Autism and Asperger’s in the DSM-V: Thoughts on clinical utility. Retrieved September 21, 2011.Google Scholar
  31. Julie. (2011). Bye Bye Asperger’s syndrome. Retrieved November 1, 2011 from http://psychcentral.com/blog/archives/2009/11/05/bye-aspergers-syndrome.
  32. Kite, D., & Tyson, G. (2011a). Implicit theories of characteristics and causes of Asperger's disorder. Manuscript submitted for publication.Google Scholar
  33. Kite, D., & Tyson, G. (2011b). Management and treatment strategies for Asperger's disorder- How effective are they perceived to be? Manuscript submitted for publication.Google Scholar
  34. Kite, D., Tyson, G., & Gullifer, J. (2011). Exploring the perception of Asperger’s disorder. Unpublished Manuscript submitted for publication.Google Scholar
  35. Kupfer, D. J., Regier, D. A., & Kuhl, E. A. (2008). On the road to the DSM-V and ICD-11. European Archives of Psychiatry and Clinical Neuroscience, 258, 2–6.PubMedCrossRefGoogle Scholar
  36. Lecavalier, L., Gadow, K. D., DeVincent, C. J., Houts, C., & Edwards, M. C. (2009). Deconstructing the PDD clinical phenotype: Internal validity of the DSM-IV. Journal of Child Psychology and Psychiatry, 50(10), 1246–1254.PubMedCrossRefGoogle Scholar
  37. Lenne, B. S., & Waldby, C. (2011). Sorting out autism spectrum disorders: Evidence-based medicine and the complexities of the clinical encounter. Health Sociology Review, 20(1), 70–83.CrossRefGoogle Scholar
  38. Little, L. (2003). Maternal perceptions of the importance of needs and resources for children with Asperger syndrome and nonverbal learning disorders. Focus on Autism and Other Developmental Disabilities, 18(4), 257–266.CrossRefGoogle Scholar
  39. Lopez-Duran, N. (2010). Autism and Asperger’s in the DSM-V: Thoughts on clinical utility. Retrieved September 21, 2011,Google Scholar
  40. MacCulloch, T. (2010). Constructions of truth, gate-keeping and the power of diagnostic labels. Issues in Mental Health and Nursing, 31, 151–152.CrossRefGoogle Scholar
  41. Macintosh, K., & Dissanayake, C. (2006). Social skills and problem behaviours in school aged children with high-functioning autism and Asperger’s disorder. Journal of Developmental Disorders, 36, 1065–1076.CrossRefGoogle Scholar
  42. Paxton, K., & Estay, I. A. (2007). Counselling people of the autism spectrum: A practical manual. London: Jessica Kingsley Publishers.Google Scholar
  43. Regier, D. A., Narrow, W. E., Kuhl, E. A., & Kupfer, D. J. (2009). The conceptual development of DSM-V. American Journal of Psychiatry, 166(6), 645–650.PubMedCrossRefGoogle Scholar
  44. Rogler, L. H. (1997). Making sense of historical changes in the diagnostic and statistical manual of mental disorders: Five propositions. Journal of Health and Social Behavior, 38, 9–20.PubMedCrossRefGoogle Scholar
  45. Rosenberg, R. E., Daniels, A. M., Law, K. J., Law, P. A., & Kaufmann, W. E. (2009). Trends in autism spectrum disorder. Journal of Autism and Developmental Disorders, 39, 1099–1111.PubMedCrossRefGoogle Scholar
  46. Rosenhan, D. L. (1973). On being sane in insane places. Science, 179, 250–258.PubMedCrossRefGoogle Scholar
  47. Sanders, J. L. (2009). Qualitative or quantitative differences between Asperger’s Disorder and autism? Historical considerations. Journal of Autism and Developmental Disorders, 39, 1560–1567.PubMedCrossRefGoogle Scholar
  48. Skellern, C., Schluter, P., & McDowell, M. (2005). From complexity to category: Responding to diagnostic uncertainties of autism spectrum disorders. Journal of Paediatrics and Child Health, 41, 407–412.PubMedCrossRefGoogle Scholar
  49. Sproule, W. (2010). Content analysis. In M. Walter (Ed.), Social research methods (2nd ed., pp. 323–350). Melbourne: Oxford University Press.Google Scholar
  50. Stinnett, T. A., Bull, K. S., Koonce, D. A., & Aldridge, J. O. (1999). Effects of diagnostic label, race, gender, educational placement and definitional information on prognostic outlook for children with behavior problems. Psychology in Schools, 36(1), 51–59.CrossRefGoogle Scholar
  51. Swedo, S. (2009). Report of the DSM-V neurodevelopmental disorder work group. Retrieved 9/12/2009.Google Scholar
  52. Wallis, C. (2009). A powerful identity, a vanishing diagnosis. The New York Times. Google Scholar
  53. William & Mary. (2011). Asperger’s, autism and the new DSM. Retrieved December 1, 2011 from http://www.wm.edu/offices/deanofstudents/services/disabilityservices/facultyresource.
  54. Wing, L., Gould, J., & Gillberg, C. (2011). Autism spectrum disorders in the DSM-V: Better or worse than the DSM-IV? Research in Developmental Disabilities, 32, 768–773.PubMedCrossRefGoogle Scholar
  55. World Health Organisation. (1992). ICD-10 international statistical classification of diseases and related health problems. Geneva: author.Google Scholar

Copyright information

© Springer Science+Business Media New York 2012

Authors and Affiliations

  • Donna M. Kite
    • 1
    • 2
  • Judith Gullifer
    • 1
  • Graham A. Tyson
    • 1
  1. 1.School of PsychologyCharles Sturt UniversityBathurstAustralia
  2. 2.Port AugustaAustralia

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