Journal of Autism and Developmental Disorders

, Volume 41, Issue 9, pp 1214–1227 | Cite as

Assessment of Health-Related Quality of Life Among Primary Caregivers of Children with Autism Spectrum Disorders

  • Rahul Khanna
  • S. Suresh Madhavan
  • Michael J. Smith
  • Julie H. Patrick
  • Cindy Tworek
  • Barbara Becker-Cottrill
Original paper


The impact of caring for a child with autism on caregivers’ health-related quality of life (HRQOL) is not fully understood. The objective of this study was to compare the HRQOL scores of caregivers of children with autism to those of the general US population and to identify the factors that influence HRQOL. Caregivers of children with autism had lower HRQOL scores than the general population. Care recipient level of functional impairment, social support, use of maladaptive coping, and burden influenced caregiver mental HRQOL. Care recipient extent of behavioral problems and social support influenced caregiver physical HRQOL. Findings emphasize the use of multi-pronged intervention approach that incorporates components aimed at improving family functioning, increasing support services, and assisting caregivers in developing healthy coping skills.


Autism Caregiver Health-related quality of life Burden 


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Copyright information

© Springer Science+Business Media, LLC 2010

Authors and Affiliations

  • Rahul Khanna
    • 1
    • 2
  • S. Suresh Madhavan
    • 2
  • Michael J. Smith
    • 3
  • Julie H. Patrick
    • 4
  • Cindy Tworek
    • 2
  • Barbara Becker-Cottrill
    • 5
  1. 1.Department of Pharmacy AdministrationUniversity of MississippiUniversityUSA
  2. 2.Department of Pharmaceutical Systems and PolicyWest Virginia UniversityMorgantownUSA
  3. 3.University of Oklahoma College of PharmacyTulsaUSA
  4. 4.Department of PsychologyWest Virginia UniversityMorgantownUSA
  5. 5.West Virginia Autism Training CenterMarshall UniversityHuntingtonUSA

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