Aman, M. G., Lam, K. S. L., & Collier-Crespin, A. (2003). Prevalence and patterns of use of psychoactive medicines among individuals with autism in the Autism Society of Ohio. Journal of Autism and Developmental Disorders,
33, 527–534.
Article
PubMed
Google Scholar
Benson, P. R. (2006). The impact of child symptom severity on depressed mood among parents of children with ASD: The mediating role of stress proliferation. Journal of Autism and Developmental Disorders,
36, 685–695.
Article
PubMed
Google Scholar
Billstedt, E., Gillberg, I. C., & Gillberg, C. (2007). Autism in adults: Symptom patterns and early childhood predictors. Use of the DISCO in a community sample followed since childhood. Journal of Child Psychology and Psychiatry,
48, 1102–1110.
Article
PubMed
Google Scholar
Bouma, R., & Schweitzer, R. (1990). The impact of chronic childhood illness of family stress: A comparison between autism and cystic fibrosis. Journal of Clinical Psychology,
46, 722–730.
Article
PubMed
Google Scholar
Bruininks, R. H., Woodcock, R. W., Weatherman, R. F., & Hill, B. K. (1996). Scales of independent behavior revised. Rolling Meadows, IL: Riverside Publishing.
Google Scholar
Bryk, A. S., & Raudenbush, S. W. (1987). Application of hierarchical linear models to assessing change. Psychological Bulletin,
101, 147–158.
Article
Google Scholar
Bryson, S. E., & Smith, I. M. (1998). Epidemiology of autism: Prevalence, associated characteristics, and implications for research and service delivery. Mental Retardation and Developmental Disabilities Research Reviews,
4, 97–103.
Article
Google Scholar
Donovan, A. M. (1988). Family stress and ways of coping with adolescents who have handicaps: Maternal perceptions. American Journal on Mental Retardation,
92, 502–509.
PubMed
Google Scholar
Dumas, J. E., Wolf, L. C., Fisman, S. N., & Culligan, A. (1991). Parenting stress, child behavior problems, and dysphoria in parents of children with autism, Down syndrome, behavior disorders, and normal development. Exceptionality,
2, 97–110.
Article
Google Scholar
Eaves, L. C., & Ho, H. H. (2008). Young adult outcomes of autism spectrum disorders. Journal of Autism and Developmental Disorders,
38, 739–747.
Article
PubMed
Google Scholar
Esbensen, A. J., Seltzer, M. M., & Krauss, M. W. (2008). Stability and change in health, functional abilities, and behavior problems among adults with and without Down syndrome. American Journal on Mental Retardation,
113, 263–277.
Article
PubMed
Google Scholar
Fecteau, S., Mottron, L., Berthiaume, C., & Burack, J. A. (2003). Developmental changes of autistic symptoms. Autism,
7, 255–268.
Article
PubMed
Google Scholar
Fombonne, E. (2003). Epidemiological surveys of autism and other pervasive developmental disorders: An update. Journal of Autism and Developmental Disorders,
33, 365–382.
Article
PubMed
Google Scholar
Francis, D. J., Fletcher, J. M., Stuebing, K. K., Davidson, K. C., & Thompson, N. M. (1991). Analysis of change: Modeling individual growth. Journal of Consulting and Clinical Psychology,
59, 27–37.
Article
PubMed
Google Scholar
Galambos, N. L., Barker, E. T., & Krahn, H. J. (2006). Depression, self-esteem, and anger in emerging adulthood: Seven-year trajectories. Developmental Psychology,
42, 350–365.
Article
PubMed
Google Scholar
Gillberg, C., & Steffenburg, S. (1987). Outcome and prognostic factors in infantile autism and similar conditions: A population-based study of 46 cases followed through puberty. Journal of Autism and Developmental Disorders,
17, 273–287.
Article
PubMed
Google Scholar
Glutting, J. J., Adams, W., & Sheslow, D. (2000). Wide range intelligence test. Wilmington, DE: Wide Range.
Google Scholar
Gurney, J. G., Fritz, M. S., Ness, K. K., Sievers, P., Newschaffer, C. J., & Shapiro, E. G. (2003). Analysis of prevalence trends of autism spectrum disorder in Minnesota. Archives of Pediatrics and Adolescent Medicine,
157, 622–627.
Article
PubMed
Google Scholar
Hastings, R. P. (2003). Child behaviour problems and partner mental health as correlates of stress in mothers and fathers of children with autism. Journal of Intellectual Disability Research,
47, 231–237.
Article
PubMed
Google Scholar
Hastings, R. P., & Brown, T. (2002). Behavior problems of children with autism, parental self-efficacy, and mental health. American Journal on Mental Retardation,
107, 222–232.
Article
PubMed
Google Scholar
Hill, A., Bolte, S., Petrova, G., Beltcheva, D., Tacheva, S., & Poustka, F. (2001). Stability and interpersonal agreement of the interview based diagnosis of autism. Psychopathology,
34, 187–191.
Article
PubMed
Google Scholar
Hollander, E., Phillips, A. T., & Yeh, C. C. (2003). Targeted treatments for symptom domains in child and adolescent autism. Lancet,
362, 732–734.
Article
PubMed
Google Scholar
Holroyd, J., & McArthur, D. (1976). Mental retardation and stress on the parents: A contrast between Down’s syndrome and childhood autism. American Journal on Mental Deficiency,
80, 431–436.
Google Scholar
Howlin, P. (2005). Outcomes in autism spectrum disorders. In F. R. Volkmar, R. Paul, A. Klin, & D. Cohen (Eds.), Handbook of autism and pervasive developmental disorders, vol. 1: Diagnosis, development, neurobiology, and behavior (3rd ed., pp. 201–220). Hoboken, NJ: Wiley.
Google Scholar
Howlin, P., Alcock, J., & Burkin, C. (2005). An 8 year follow-up of a specialist supported employment service for high-ability adults with autism or Asperger syndrome. Autism,
9, 533–549.
Article
PubMed
Google Scholar
Howlin, P., Goode, S., Hutton, J., & Rutter, M. (2004). Adult outcome for children with autism. Journal of Child Psychology and Psychiatry,
45, 212–229.
Article
PubMed
Google Scholar
Howlin, P., Mawhood, L., & Rutter, M. (2000). Autism and developmental receptive language disorder A follow-up comparison in early adult. II: Social, behavioural, and psychiatric outcomes. Journal of Child Psychology and Psychiatry and Allied Disciplines,
41, 561–578.
Article
Google Scholar
Lecavalier, L. (2006). Behavioral and emotional problems in young people with pervasive developmental disorders: Relative prevalence, effects of subject characteristics, and empirical classification. Journal of Autism and Developmental Disorders,
36, 1101–1114.
Article
PubMed
Google Scholar
Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behaviour problems on caregiving stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research,
50, 172–183.
Article
PubMed
Google Scholar
Liptak, G. S., Benzoni, L. B., Mruzek, D. W., Nolan, K. W., Thingvoll, M. A., Wade, C. M., et al. (2008). Disparities in diagnosis and access to health services for children with autism: Data from the national survey of children’s health. Journal of Developmental and Behavioral Pediatrics,
29, 152–160.
Article
PubMed
Google Scholar
Lord, C., & Bailey, A. (2002). Autism spectrum disorders. In M. Rutter & E. Taylor (Eds.), Child and adolescent psychiatry (pp. 664–681). Oxford: Blackwell Scientific.
Google Scholar
Lord, C., Pickles, A., McLennan, J., Rutter, M., Bregman, J., Folstein, S., et al. (1997). Diagnosing autism: Analyses of data from the autism diagnostic interview. Journal of Autism and Developmental Disorders,
27, 501–517.
Article
PubMed
Google Scholar
Lord, C., Rutter, M., & Le Couteur, A. (1994). Autism diagnostic interview-revised: A revised version of a diagnostic interview for caregivers of individuals with possible pervasive developmental disorders. Journal of Autism and Developmental Disorders,
24, 659–685.
Article
PubMed
Google Scholar
Lounds, J., Seltzer, M. M., Greenberg, J. S., & Shattuck, P. T. (2007). Transition and change in adolescents and young adults with autism: Longitudinal effects on maternal well-being. American Journal on Mental Retardation,
112, 401–417.
Article
PubMed
Google Scholar
Luckasson, R., Borthwick-Duffy, S., Buntinx, W. H. E., Coulter, D. L., Craig, E. M., Reeve, A., et al. (2002). Mental retardation: Definition, classification, and systems of supports (10th ed.). Washington, DC: American Association on Mental Retardation.
Google Scholar
Marmot, M., Ryff, C. D., Bumpass, L. L., Shipley, M., & Marks, N. F. (1997). Social inequalities in health: Next questions and converging evidence. Social Science and Medicine,
44, 901–910.
Article
PubMed
Google Scholar
Mawhood, L., Howlin, P., & Rutter, M. (2000). Autism and developmental receptive language disorder—a comparative follow-up in early adult life. I: Cognitive and language outcomes. Journal of Child Psychology and Psychiatry and Allied Disciplines,
41, 547–559.
Article
Google Scholar
McGovern, C. W., & Sigman, M. (2005). Continuity and change from early childhood to adolescence in autism. Journal of Child Psychology and Psychiatry,
46(4), 401–408.
Article
PubMed
Google Scholar
Piven, J., Harper, J., Palmer, P., & Arndt, S. (1996). Course of behavioral change in autism: A retrospective study of high-IQ adolescents and adults. Journal of the Academy of Child and Adolescent Psychiatry,
35, 523–529.
Article
Google Scholar
Raudenbush, S. W., & Bryk, A. S. (2002). Hierarchical linear models: Applications and data analysis methods (2nd ed.). Thousand Oaks, CA: Sage.
Google Scholar
Rodrigue, J. R., Morgan, S. B., & Geffken, G. R. (1990). Families of autistic children: Psychological functioning of mothers. Journal of Clinical Psychology,
19, 371–379.
Google Scholar
Ryff, C. D., & Singer, B. H. (2008). Know thyself and become what you are: A eudaimonic approach to psychological well-being. Journal of Happiness Studies,
9, 13–39.
Article
Google Scholar
Seltzer, M. M., Krauss, M. W., Shattuck, P. T., Orsmond, G., Swe, A., & Lord, C. (2003). The symptoms of autism spectrum disorders in adolescence and adulthood. Journal of Autism and Developmental Disorders,
33, 565–581.
Article
PubMed
Google Scholar
Shattuck, P. T., Seltzer, M. M., Greenberg, J. S., Orsmond, G. I., Kring, S., Bolt, D., et al. (2007). Changes in autism symptoms and maladaptive behaviors among adolescents and adults with an autism spectrum disorder. Journal of Autism and Developmental Disorders,
37, 1735–1747.
Article
PubMed
Google Scholar
Shea, S., Turgay, A., Carroll, A., Schulz, M., Orlik, H., Smith, I., et al. (2004). Risperidone in the treatment of disruptive behavioral symptoms in children with autistic and other pervasive developmental disorders. Pediatrics,
114, 634–641.
Article
Google Scholar
Shea, V., & Mesibov, G. B. (2005). Adolescents and adults with autism. In F. R. Volkmar, R. Paul, A. Klin, & D. J. Cohen (Eds.), Handbook of autism and pervasive developmental disorders, vol. 1: Diagnosis, development, neurobiology, and behavior (3rd ed., pp. 288–311). Hoboken, NJ: Wiley.
Google Scholar
Shepperdson, B. (1995). Two longitudinal studies of the abilities of people with Down’s syndrome. Journal of Intellectual Disability Research,
39, 419–431.
Article
PubMed
Google Scholar
Singer, J. D., & Willett, J. B. (2003). Applied longitudinal data analysis: Modeling change and event occurrence. Oxford, England: Oxford University Press.
Google Scholar
Sparrow, S. S., Carter, A. S., & Cicchetti, D. V. (1993). Vineland screener: Overview, reliability, validity, administration, and scoring. New Haven: Yale University Child Study Center.
Google Scholar
Taylor, J. L. (2009). The transition out of high school and into adulthood for individuals with autism and for their families. International Review of Research in Mental Retardation,
38, 1–32.
Article
Google Scholar
Taylor, J. L., & Seltzer, M. M. (2010). The transition to adulthood for individuals with ASD and their families. In P. Howlin (Chair), What really matters: Measuring outcome and addressing the needs of adolescents and adults with ASD. Invited Educational Symposium conducted at the International Meetings for Autism Research, Philadelphia, PA.
Thomas, K. C., Ellis, A. R., McLaurin, C., Daniels, J., & Morrissey, J. P. (2007). Access to care for autism-related services. Journal of Autism and Developmental Disorders,
37, 1902–1912.
Article
PubMed
Google Scholar
Tobing, L. E., & Glenwick, D. S. (2002). Relation of the childhood autism rating scale-parent version to diagnosis, stress, and age. Research in Developmental Disabilities,
23, 211–223.
Article
PubMed
Google Scholar
Tomanik, S., Harris, G. E., & Hawkins, J. (2004). The relationship between behaviours exhibited by children with autism and maternal stress. Journal of Intellectual and Developmental Disability,
29, 16–26.
Article
Google Scholar
Tonge, B. J., & Einfeld, S. (2003). Psychopathology and intellectual disability: The Australian child to adult longitudinal study. International Review of Research in Mental Retardation,
26, 61–91.
Article
Google Scholar
Wheaton, B., & Gotlib, I. H. (1997). Trajectories and turning points over the life course: Concepts and themes. In I. H. Gotlib & B. Wheaton (Eds.), Stress and adversity over the life course: Trajectories and turning points (pp. 1–28). UK: Cambridge Press.
Chapter
Google Scholar
Wolf, L. C., Noh, S., Fisman, S. N., & Speechley, M. (1989). Psychological effects of parenting stress on parents of autistic children. Journal of Autism and Developmental Disorders,
19, 157–166.
Article
PubMed
Google Scholar