Romanian adoptees have a background of severe neglect. International research has shown that this can give rise to symptoms of autistic behavior. Rutter et al. (1999, Journal of Child Psychology Psychiatry, 40(4), 537–549.) refers to “quasi-autistic patterns”, and Federici (1998, Help for the hopelss child: A guide for families. Alexandria: Federici & Assocoates.) to Post-Institutional Autistic Syndrome (PIAS). Eighty Romanian adoptees, averaging 8 years of age, who had resided in the Netherlands for 5 years were studied. Parent interviews and the Auti-R scale showed the extent to which the children exhibited PIAS. In one third of these children we observed (in addition to other behavioral problems) stereotypic behaviors and communication and language disorders. Our findings resembled the Rutter et al. (1999, Journal of Child Psychology Psychiatry, 40(4), 537–549). data. Six of the children were classified within the autistic spectrum pursuant to the Auti-R, and seven within the so-called intermediate group. No difference was found between the girls and the boys. Children who had been in their adoptive families for 5 years or more showed fewer behavior problems than children who had been in their adoptive families for four or less years.
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References
Achenbach T. M., Edelbrock C. S., (1983). Manual for the child behavior checklist and revised profile. University of Vermont, Department of Psychiatry, Burlington, VT
American Psychiatric Association, (1994). Diagnostic and statistical manual of mental disorders. Author, Washington D.C
Ames E. W., Fraser S., Burnaby B. C., (1997). The development of romanian orphanage children adopted to canada: Final report. Human Resources Development, Canada
Bowlby J., (1946). Forty-four juvenile thieves: Their characteristics and home life. Bailliere, Tindall & Cox, London
Bowlby J., (1971). Attachment and loss. Vol. 1 Attachemnt. Penquin Books, Harmondsworth
Buitelaar J. K., Willemsen-Swinkels S. H. N., (2000). Autism current theories regarding its pathogenesis and implications for rational pharmacotherapy Peadiatric Drugs 2(1):67–81
Cohen D. J., Volkmar F. R., (1997). Handbook of autism and pervasive developmental disorders. Wiley & Sons, New York
Dahl K., Cohen D. J., Provence S., (1986). Clinical and multivariate approaches to nosology of pervasive developmental disorders Journal of the American Academy of Child and Adolescent Psychiatry 25: 170–180
Eisenmajer R., Prior M., Leekman S., Wing L., Gould J., Welham M., Ong B., (1996). Comparison of clinical symptoms in autism and Asperger’s syndrome Journal of the American Academy of child and adolescent Psychiatry 35:1523–1531
Federici F., (1998). Help for the hopeless child: A guide for families. Federici & Associates, Alexandria
Fraiberg S., (1977). Insights from the blind. Basic Books, New York
Groenendaal H., Dekovic M., (2000). Risicofactoren voor kwaliteit van de opvoeding Pedagogiek, wetenschappelijk forum voor opvoeding, vorming en onderwijs 20(1):3–22
Hoksbergen R. A. C., Walenkamp H., (Red., 1983). Adoptie uit de Kinderschoenen. Bohn Stafleu Van Loghum, Houten
Hoksbergen R. A. C., Walenkamp H., (Red., 1991). Kind van andere ouders. Bohn Stafleu Van Loghum, Houten
Hoksbergen R. A. C., (1996). Traumabeleving door geadopteerden Tijdschrift voor orthopedagogiek 35:279–293
Hoksbergen, R. A. C. en de medewerkers van het Roemeniëproject. (1999). Adoptie van Roemeense kinderen: Ervaringen van ouders die tussen 1990 en medio 1997 een kind uit Roemenië adopteerden. Utrecht: Afdeling Adoptie
Hoksbergen R. A. C., Walenkamp H., (Red, 2000), Adoptie: een levenslang dilemma. Bohn Stafleu Van Loghum, Houten
Hoksbergen R. A. C., (2000). De Nederlandse adoptiepraktijk, 1956–2000. In: René Hoksbergen, Hans Walenkamp, (Red.), Adoptie: een levenslang dilemma. Bohn Stafleu Van Loghum, Houten
Hoksbergen R. A. C., Stoutjesdijk F., Rijk S., van Dijkum C., Rijk K., (2003). Posttraumatic Stress Disorder in adopted children from Romania American Journal of Orthopsychiatry 73(3):255–265
Hoksbergen R. A. C., Van Dijkum C., (2001). Trauma experienced by children adopted from abroad Adoption & Fostering 25(2):1–8
Human Rights Watch, (1998). Abandoned to the state, cruelty and neglect in Russian orphanages. Human Rights Watch, New York
Jenista J. A., (1992). Disease in adopted children from Romania Journal of the American Medical Association 268:601
Johnson A., Miller I., Iverson S., Thomas W., Franchino B., Dole K., Kierman M., Georgieff M., Hostetter M., (1992). The health of children adopted from Romania Journal of the American Medical Association, 268(24):3446–3451
Johnson D., (1999). Adopting a Post-Institutionalized Child: What are the Risks? In: T. Tepper, L. Hannon, D. Sanstrom, (Eds), Parent network for the post-institutionalized child. international adoption: Challenges and opportunities. PNPIC, Meadow Lands 8–12
Justitie, 2001. U wilt een kind uit het buitenland adopteren. Ministerie van Justitie, Den Haag
Kreppner, J. M., O’Connor, T. G., Rutter, M., & The English and Romanian Adoptees Study Team (2001). Can inattention/overactivity be an institutional deprivation syndrome? Journal of Abnormal Child Psychology, 29(6), 513–528
Ladee-Levy J. D., (1990). Psychische Problemen bij Somatisch Zieke Kinderen. In: J. A. R. Sanders-Woudstra, H. F. J. Witte, (Red), Leerboek Kinder- en Jeugdpsychiatrie. Van Gorcum, Assen/Maastricht 246–270
McGlone K., Santos L., Kazama L., Fong R., Mueller C., (2002). Psychological Stress in Adoptive Parents of Special-Needs Children Child Welfare League of America LXXXI(2):151–171
Miller B. C., Fan X., Christensen M., Grotevant H. D., Van Dulmen M., (2000). Comparisons of adopted and nonadopted adolescents in a large, nationally representative sample Child Development 71(5):1458–1473
O’Connor, T. G., Rutter, M., & The English and Romanian Adoptees Study Team. (1999). Attachment disorder behavior following early severe deprivation: Extension and longitudinal follow-up. Journal American Academy Child Adolescent Psychiatry, 39(6), 703–712
O’Connor, T. G., Bredenkamp, D., Rutter, M., & The English and Romanian Adoptees Study Team. (1999). Attachment disturbances and disorders in children exposed to early severe deprivation. Infant Mental Health Journal, 20(1), 10–29
Peters B. R., Atkins M. S., McKernan McKay M., (1999). Adopted children’s behavior problems: A review of five explanatory models Clinical Psychological Review 19(3):297–328
Rutter M., (1979). Verwaarlozing van jonge kinderen. Het Spectrum. Utrecht
Rutter, M., Andersen-Wood, L., Beckett, C., Bredenkamp, D., Castle, J., Groothues, C., Kreppner, J., Keaveney, L., Lord, C., O’Connor, T. G., & The English and Romanian Adoptees (ERA) Study Team. (1999). Quasi-autistic patterns following severe early global privation. Journal Child Psychology Psychiatry, 40(4), 537–549
Rutter M., (1991). Autism as a genetic disorder. In: P. McGuffin, R. Murray, (Eds), The new genetics of mental illness. Butterworth-Heineman, Oxford 225–244
Sorgedrager N., (1988). Oriënterend medisch onderzoek en groeistudie van buitenlandse adoptiekinderen. Cicero, Haren
Spitz R. A., (1945). Hospitalism: An inquiry into the genesis of psychiatric conditions in early childhood The psychoanalytic study of the child 1:53–74
Van Berckelaer-Onnes, I. A., & van der Gaag R. J. (1999). Pervasieve ontwikkelingsstoornissen: een spectrum van autistische stoornissen. In: Handboek kinderen & Adolescenten, December 1999, B 030–1 tot B 030–16
Van Berckelaer-Onnes I. A., Hoekman J., (1991). Handleiding en verantwoording van de Auti-R schaal ten behoeve van de onderkenning van vroegkinderlijk autisme. Swets & Zeitlinger, Lisse
Verhulst F. C., Althaus M., Versluis-den Bieman H. J. M., (1992). Damaging backgrounds: Later adjustment of international adoptees Journal of the American academy of child and adolescent psychiatry 31(3):518–524
Verschure, J., (2001). Roemeense adoptiekinderen binnen het speciaal onderwijs. Utrecht: Afd. Adoptie, Thesis
Verrier N. N., (1993). The Primal Wound, understanding the adopted child. Gateway Press, inc, Baltimore
Wierzbicki M., (1993). Psychological adjustment of adoptees: A meta-analysis Journal of Clinical Child Psychology 22(4):447–454
Wing L., Gould J., (1979). Severe impairments of social interaction and associated abnormalities in children Journal of Autism and Developmental Disorders 9:11–29
Wing J., (2000). Leven met Uw autistische kind. Een gids voor ouders en begeleiders. Lisse-Swets & Zeitlinger
Zeanah C. H., (2000). Disturbances of attachment in young children adopted from Institutions Developmental and Behavioral Pediatrics 21:230–236
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Hoksbergen, R., Laak, J.t., Rijk, K. et al. Post-Institutional Autistic Syndrome in Romanian Adoptees. J Autism Dev Disord 35, 615–623 (2005). https://doi.org/10.1007/s10803-005-0005-x
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DOI: https://doi.org/10.1007/s10803-005-0005-x