There are, as we explored in the previous section, organizational processes that greatly differ in their degree of more or less standardized processes. In this section, we will explore in more depth the processes of how the CLP is being created and transformed in written form in order to bring about the change towards a client-centred organization. We will show that the choices that the organizations made in the design of the CLP, created different consequences for reflexive use. The design was, as we will point out, generally leaving many aspects ‘open’, which required from its users different reflexive capacities.
When the CLP was introduced in the field of care for older people, several of the national healthcare improvement agencies published supportive material such as prototype models, instructions and implementation suggestions to help care organizations realize the change. ActiZ focussed explicitly on the fact that the CLP should not be a ‘rigid’ device. Instead it should be used as a device that guides the actors in certain directions without prescribing in detail what to do. As one of their supporting documents read:
The model is not accidentally flexibly designed. Users find their own ways to get familiar with the vision behind the model and the way of working. So the texts in the model are for supportive purposes and the forms are examples. [2]
And they go on explaining:
The Model CLP is explicitly not a fixed questionnaire that is to be filled out by certain staff members, who would thereby have a client-centred CLP. What it does is to give an as overview that is as complete as possible of all the subjects that could be relevant for a client to do the right things (given the circumstances). (ibid.)
By emphasising the flexibility of the CLP model, the model is believed to be suited to the diversity in caring for older people. The choice that the texts are only mere suggestions instead of instructions, has the consequence that development of the organizational CLP is a reflexive activity. After all, the prototype is only one way of making a CLP and care organizations should reflect on what content is most suitable for their own organization.
When following different care organizations for older people in their ways of changing and developing the CLP, noticeably all organizations seemed to strive for a uniform CLP for their whole organization. As the organizations that were part of this study were often merged facilities, serving many different forms of care (e.g. day treatment, home care, 24-hrs. care) to older persons with various and diverse health needs, the different wards within the organization have quite specific characteristics: they vary in sorts of clients, work methods, tools to support their work and require different aspects to be observed, taken action upon and report on. Consequently these wards have created their ways of providing ‘good care’ also through their own forms, files, and supportive materials. It is this variety that reflects different sorts of good care. Interestingly, despite all these differences, organizations strived to create one uniform CLP for all care groups within their organization, whereby the CLP substituted some of these local ways of working. This choice for uniformity, supports internal work processes such as centralised administration and meets ICT requirements for the electronic patient record. Adherence to external norms like specific quality standards and quality control were also reasons to strive for a uniform CLP. The uniformity of the CLP however seemed to produce frictions by allowing for these local diversities and had implications for the positioning of reflexivity.
The strive for uniformity was not easily accepted by all. In one of the care organizations, the content of the CLP was discussed in a working group with representatives of all different nursing home locations within the organization. The group, mostly consisting of managers and central staff members, decided on the content of the CLP through discussion, debate, consensus, and collaboration. The organizational project leader emphasized that it was important that the working group searched for shared ‘aspects’. These shared aspects were then included in the CLP. This caused confrontation in the working group. The project leader remarked:
They repeatedly say ‘yes, but we are used to…’ [referring to their own wards] and all of the time I had to correct them by saying there is no ‘we’. You know, you have to forget the old to be able to tolerate something new.
The point that there was no longer a ‘we’ suggested that the space for those aspects not commonly shared by all representatives of the wards, in other words those aspects that were not uniform, were reduced in the CLP. Those aspects that did not fit into the general picture became somewhat problematic to include in the CLP. Allowing for reflexivity in the development of the CLP was bounded to a specific type of reflexivity, namely the reflexivity that was part of the uniform ‘we’ and not the specific and localized ‘we’ of the individual wards. All these differences between the locations were, in a way, blinded out by the uniform CLP. The requirement of only including the commonly shared ‘we’ led to tensions that, according to some representatives, followed from important differences not being inscribed in the CLP. The project leader explained:
you are faced with a lot of differences per unit. Some units have, for example, many clients with a multi-cultural background and things just go differently there. So we had to emphasize constantly, it’s not about the individual; it’s about the common denominator. What do we all have in common? That was a great barrier.
She explained that there are differences in how care is being provided, for example older persons with a multi-cultural background have other traditions and other ways of dealing with disease and illness than other clients, but still the CLP should capture only those elements that are of shared concern for all the different care groups. Likewise, the variety in health status of older people is also not specifically acknowledged in the uniform CLP. Older people, especially frail older persons, who are often admitted to these care facilities, are faced with a complex diversity of health needs. As a physician, specialized in the care for older people described to us: when you start to change something in the life of frail older people, the effects are often unforeseen. This complexity of their total medical and wellness needs makes it by definition an individualized assessment. Although the design of the CLP acknowledges this diversity in health needs, by not specifying too much, the other side of the coin is that by focusing solely on the commonalities, many specific elements are not included. This choice had consequences in terms of the use of the CLP and the reflexivity of the users.
One of the consequences of the uniformity of the CLP was that the care staff using the CLP had to decide for themselves which matters are relevant to address in the conversation with their clients. The uniformity results in openness in the CLP that, as the project leader explained was to be filled in by the users of the CLP:
They [the users] are guided in a particular direction in such a way that you can determine the things that they should take into consideration. But how deep they address these things is up to the caregiver. It gives them more responsibility, I think this is a good thing. We have given it [the CLP] so much flexibility that you can use it for all different client groups. So that is a lot. But this results, for example, in a Care Living Plan in which the subjects of orientation and disorientation are mentioned only briefly, [though these are] things that are very important on wards with many psycho-geriatric clients.
By guiding the users without prescribing, the CLP thus acknowledged that there are local differences and there is variation in how to deal with these differences, but this variation is to be ‘added by’ the caregivers and client in interactions with each other and the device. It thereby requires new capacities of the caregivers as they ought to capture the specific complexities of the situation in the device themselves, whereas the same counts for the clients. Although client-centeredness was not perceived to be new for nurses, to articulate specifically what wishes of clients were and how these should be written down in the device asked for different competencies, as was acknowledged by one of the project leaders in an organization:
Most nurses know very well what is important; I must say I’m not so well informed about that […] It is the professional behaviour that you are to expect from nurses. Most nurses are used to this personal balancing and judging of things. They have been doing this before. For example at the wards for psycho-geriatric clients we had observation-lists, these were lists that they had to fill out and they could choose between three options: client can do it independently, with some help or with a lot of help. But these were very predetermined. This [pointing at the CLP] demands that people have to keep asking questions, it is much more focused on the conversation instead of the observation.
An important difference between the high mark for client-centred care professionals gave their own wards and the notion of client-centred care that was being built into the CLP, was that now client-centred care could not be achieved without the inclusion of clients themselves in a conversation. The clients thereby have to (learn to) articulate their wishes, and the nurses have to find ways to unravel these wishes, which is particularly challenging as this assumes a cognitively coherent self that is not always to be found on psycho-geriatric wards. This is an intended but at times problematic addition to depending mainly on the observational skills of nurses alone. The model of ActiZ, the umbrella organization of care institutions, emphasized how specific ‘accents’ were captured in the CLP through the clients who are to express their wishes:
The model does not differentiate in different care groups: it does not distinguish in diagnose groups or somatic or psycho-geriatric care. For all quality of live is strived for. What is important is to observe, listen and collaborate - with clients, their families and amongst each other (all that are involved). Based on the model organizations can make their own specific models suiting different care groups. The model is applicable for the whole care spectrum from low to high complex care work and from care at home to intramural care. Accents will evolve by itself guided by the perspective of the client.
It is interesting how ActiZ and the care organization argue how the accents and the local aspects that are of importance will emerge in and off themselves, simply by using the CLP. By developing the CLP in these ways, reflexivity is not only embedded in the device, it is also at the same time allowing for the device to be used in reflexive ways. This approach is likely to reinforce the variation that is necessary to realize good care, but provides little articulation of good quality that is hampered by reflecting on the issues that may not be in the interest of clients – but that for example stem from pressured staff agenda’s. There is an assumption that any variability that emerges in the reflexive dialogue between care worker and client is also desired.
The CLP often served as a means to reform the paper record of the care organization into a uniform system. All the current different files and forms that can be there for good reasons, for example by supporting care staff in their observations, were in a way ignored to make place for one new and uniform CLP. Interestingly, it seemed that local complexities of the different locations were often being silenced instead of being challenged in the device. Tensions between local diversity and the idea of organizational uniformity were often solved by either leaving the specific local aspects out of the model completely as far as these were not shared among all, or it was solved by naming all the possibilities in the model. To include the ‘couleur locale’, the specific individualized and localized aspects, in the new way of working, demanded reflexive action from the users of the CLP. Unsurprisingly, the uniformity of the CLP sometimes led to the use of alternative devices on the work floor, which had a effect that was contrary to the intentions to reduce the variation in files and forms and which certainly was not the kind of reflexivity that was appreciated by those promoting the CLP. A team leader explained that she worked at a short-stay ward where clients could stay for a maximum of 12 weeks to recover from a hospital stay; on wards such as these, some items of the CLP (e.g. an extensive description of the clients life history) were not necessary to know. So this team leader took the initiative to reform the CLP together with colleagues from the same kind of ward. This initiative was critiqued by the organization that urged to keep the device uniform and its development centralized.
The choice for a uniform device as such was not a discussion item in the project meetings, although the decision what should be the content was. All actors agreed that the model helped to realize client-centred work, but there seemed to be different matters at stake in this decision to stick to uniformity. It facilitated comparability between wards, which was deemed relevant for external accountability of the organization; uniformity was also seen as an important prerequisite for integration with the organizations’ information system and for the transition to the electronic client record. Although the caregivers requested that the CLP supported their work routines, the management and staff were troubled with the fact that the model had to fit in other developments and requirements of the organization, and therefore needed to be standardized. The frictions seem to stem from the fact that the model serves many purposes and makes clear that the reflexivity pursued here can no longer be seen as contributing to client-centred care alone. Instead, when there is less space for local specification of the issues that are key in various wards, this means that specific ways in which reflexivity used to be reinforced are now reduced. As the CLP is not merely a tool for realizing client-centeredness at an individual level, but also an accountability tool, a communication tool, and a part of the health record and as these different purposes are hard to reconcile, the CLP risks the possibility that incompatible forms of reflexivity are combined.