Intervention and Support for Siblings of Youth with Developmental Disabilities: A Systematic Review
- 1.6k Downloads
Both the population of siblings of youth with developmental disabilities (DDs) and the popularity of clinical services designed for these youth are on the rise. However, the research base for such services has yet to be evaluated. A systematic review of studies on intervention and support for siblings of youth with DDs was conducted in order to evaluate the current state of the literature and provide recommendations for research and practice. Sixteen articles were selected and reviewed in terms of their experimental design, participant characteristics, measurement, intervention or support group protocol, outcomes, and dissemination of findings. Results indicate substantial variability in both methodology and outcomes across sibling-focused intervention and support group studies, which put the overall effects and utility of these services into question. Recommendations for future research are outlined, with a focus on advancing a more systematic and careful approach to asking and effectively answering questions about siblings, their families, and meaningful services for both.
KeywordsSiblings Developmental disabilities Autism Intervention Support Systematic review
The first author wishes to thank Drs. Daniel O’Leary, John Robinson, Lauren Moskowitz, and Caitlin Walsh for their invaluable feedback on an earlier version of this systematic review. Susie McHugh, Laura Mankuski, Grace (EunJin) Lee, James Rankin, and Patricia Medina are also thanked for their immense help as research assistants.
Conflict of interest
The authors declare that they have no conflict of interest.
- Baker, B. L., Blacher, J., Crnic, K. A., & Edelbrock, C. (2002). Behavior problems and parenting stress I families of three-year-old children with and without developmental delays. American Journal on Mental Retardation, 107, 433–444. doi: 10.1352/0895-8017(2002)107<0433:BPAPSI>2.0.CO;2.CrossRefPubMedGoogle Scholar
- Baker, B. L., McIntyre, L. L., Blacher, J., Crnic, K., Edelbrock, C., & Low, C. (2003). Pre-school children with and without developmental delay: Behaviour problems and parenting stress over time. Journal of Intellectual Disability Research, 47, 217–230. doi: 10.1046/j.1365-2788.2003.00484.x.CrossRefPubMedGoogle Scholar
- Centers for Disease Control and Prevention. (2014). Prevalence of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2010. Morbidity and Mortality Weekly Report: Surveillance Summaries, 63, 1–22.Google Scholar
- Chambless, D. L., Sanderson, W. C., Shoham, V., Johnson, B., Woods, S. R., Sue, S., et al. (1996). An update on empirical validated therapies. The Clinical Psychologist, 49, 5–18.Google Scholar
- Chorpita, B. F., Daleiden, E. L., Ebesutani, C., Young, J., Becker, K. D., Nakamura, B. J., et al. (2011). Evidence-based treatments for children and adolescents: An updated review of indicators of efficacy and effectiveness. Clinical Psychology: Science and Practice, 18, 154–172.Google Scholar
- Constantino, J. N., Lajonchere, C., Lutz, M., Gray, T., Abbacchi, A., McKenna, K., et al. (2006). Autistic social impairment in the siblings of children with pervasive developmental disorders. The American Journal of Psychiatry, 163, 294–296. doi: 10.1176/appi.ajp.163.2.294.CrossRefPubMedGoogle Scholar
- *Cooke, J., & Semmens, C. (2010). The development and evaluation of a support group for siblings of children on the autism spectrum. Good Autism Practice, 11, 23–30.Google Scholar
- Davis, K. E. (2010). The psychological adjustment of siblings of children with disabilities: The role of the family and the wider social community (Unpublished doctoral dissertation). RMIT University, Melbourne, Australia.Google Scholar
- Dumas, J. E., Wolf, L. C., Fisman, S. N., & Culligan, A. (1991). Parenting stress, child behavior problems, and dysphoria in parents of children with autism, down syndrome, behavior disorders, and normal development. Exceptionality: A Special Education Journal, 2, 97–110. doi: 10.1080/09362839109524770.CrossRefGoogle Scholar
- *Dyson, L. L. (1998). A support program for siblings of children with disabilities: What siblings learn and what they like. Psychology in the Schools, 35, 57–65. doi: 10.1002/(SICI)15206807(199801)35:1<57:AID-PITS5>3.0.CO;2-R.CrossRefGoogle Scholar
- Eisenhower, A. S., Baker, B. L., & Blacher, J. (2005). Preschool children with intellectual disability: Syndrome specificity, behaviour problems, and maternal well-being. Journal of Intellectual Disability Research, 49, 657–671. doi: 10.1111/j.1365-2788.2005.00699.x.CrossRefPubMedCentralPubMedGoogle Scholar
- Fisman, S., Wolf, L., Ellison, D., Gillis, B., Freeman, T., & Szatmari, P. (1996). Risk and protective factors affecting the adjustment of siblings of children with chronic disabilities. Child and Adolescent Psychiatry, 35, 1532–1541.Google Scholar
- Gold, N. (1993). Depression and social adjustment in siblings of boys with autism. Journal of Autism and Developmental Disorders, 23, 147–163.Google Scholar
- Harris, S. L., & Glasberg, B. A. (2012). Siblings of children with autism: A guide for families (3rd ed.). Bethesda: Woodbine House.Google Scholar
- Hartling, L., Milne, A., Tjosvold, L., Wrightson, D., Gallivan, J., & Newton, A. S. (2010). A systematic review of interventions to support siblings of children with chronic illness or disability. Journal of Pediatrics and Child Health, 10, 1–13.Google Scholar
- Higgins, J. P. T. & Greene, S. (Ed.). (2008). Cochrane handbook for systematic reviews of interventions. Version 5.0.1 [updated September 2008]. The Cochrane Collaboration, 2008. doi: 10.1176/appi.ps.52.9.1179.
- Khajehpour, M., Ghazvini, S. D., Memari, E., & Rahmani, M. (2011). Social cognitive theory of gender development and differentiation. Procedia—Social and Behavioral Sciences, 3rd World Conference on Educational Sciences, 15, 1188–1198.Google Scholar
- Lipsey, M. W., & Wilson, D. B. (2001). Practical meta-analysis. Thousand Oaks, CA: SAGE.Google Scholar
- McHugh, M. (2002). Special siblings: Growing up with someone with a disability. Baltimore: Brookes Publishing Company.Google Scholar
- *McLinden, S. E., Miller, L. M., & Deprey, J. M. (1991). Effects of a support group for siblings of children with special needs. Psychology in the Schools, 28, 230–237. doi: 10.1002/1520-6807(199107)28:3<230:AID-PITS2310280308>3.0.CO;2-D.CrossRefGoogle Scholar
- Meadan, H., Stoner, J. B., & Angell, M. E. (2010). Review of the literature related to the social, emotional, and behavioral adjustment of siblings of individuals with autism spectrum disorder. Journal of Developmental and Physical Disabilities, 22, 82–100.Google Scholar
- Meyer, D. (2014). The Sibshop standards of practice. Retrieved from: www.siblingsupport.org/sibshops/the-sibshop-standards-of-practice.
- Meyer, D. J., & Vadasy, P. F. (1994). Sibshops: Workshops for siblings of children with special needs. Baltimore: Paul H. Brookes Publishing Company.Google Scholar
- Piers, E. V. (1984). Piers-Harris children’s self-concept scale, revised manual. Los Angeles: Western Psychological Services.Google Scholar
- Piers, E. V., & Harris, D. B. (1969). The Piers-Harris Children’s Self-Concept Scale. Nashville, TN: Counselor Recordings and Tests.Google Scholar
- Rodrigue, J. R., Geffken, G. R., & Morgan, S. B. (1993). Perceived competence and behavioral adjustment of siblings of children with autism. Journal of Autism and Developmental Disorders, 23, 665–674.Google Scholar
- Rowlison, R. T., & Felner, R. D. (1988). Major life events, hassles, and adaptation in adolescence: Confounding in the conceptualization and measurement of life stress and adjustment revisited. Journal of Personality and Social Psychology, 55, 432–444. doi: 10.1037/0022-3518.104.22.1682.CrossRefPubMedGoogle Scholar
- Singer, G. H. S., Ethridge, B. L., & Aldana, S. I. (2002). Primary and secondary effects of parenting and stress management interventions for parents of children with developmental disabilities: A meta-analysis. Mental Retardation and Developmental Disabilities Research Reviews, 13, 357–369. doi: 10.1002/mrdd.20175.CrossRefGoogle Scholar
- *Smith, T., & Perry, A. (2005). A sibling support group for brothers and sisters of children with autism. Journal on Developmental Disabilities, 11, 77–88.Google Scholar
- Task Force on Promotion and Dissemination of Psychological Procedures. (1995). Training in and dissemination of empirically-validated psychosocial treatments: Report and recommendations. The Clinical Psychologist, 48, 3–23.Google Scholar
- Verte, S., Roeyers, H., & Buysse, A. (2003). Behavioral problems, social competence, and self-concept in siblings of children with autism. Child: Care, Health and Development, 29, 193–205.Google Scholar
- *Williams, P. D., Williams, A. R., Graff, C., Hanson, S., Stanton, A., Hafeman, C., et al. (2003). A community based intervention for siblings and parents of children with chronic illness or disability: The ISEE study. The Journal of Pediatrics, 14, 386–393. doi: 10.1067/S0022-3476(03)00391-3.CrossRefGoogle Scholar
- World Health Organization. (1993). ICD-10, the ICD-10 classification of mental and behavioural disorders: Diagnostic criteria for research. Geneva: World Health Organization.Google Scholar