Abstract
Autism spectrum disorder (ASD) is increasingly prevalent, intervention costs are high, and long-term outcomes are poor. Proactive implementation of evidence-based practices (EBPs; Steinbrenner et al., Evidence-Based Practices for Children, Youth, and Young Adults with Autism, 2020) through an assessment or planning process can lead to more effective services (Rubin et al., Admin Policy Mental Health Mental Health Serv Res 43(6), 1023–1028, 2016). The objective of this study is (a) to identify factors associated with the use of proactive versus reactive strategies for school-based services for students with ASD and (b) to examine school personnel perceptions of the use of proactive versus reactive strategies. Data were from a larger project in which 6 semi-structured focus groups were conducted to understand school personnel perceptions of how school districts implement new programs for ASD. Transcripts were coded using an iterative coding and review process. In the present study, primary themes were identified and classified as proactive or reactive. Participants reported both proactive and reactive allocation of district resources for intervention implementation. Reactive implementation was associated with litigation or due process, escalated student behavior, and non-public school placement, whereas proactive implementation was associated with ASD-specific programming, grants, personnel experience with EBPs, and prospective needs assessment. Participants perceived the reactive strategies as disadvantageous, and yet these strategies were sometimes still employed. Understanding the role of proactive and reactive strategies and the factors that influence their use could enable more effective planning for EBP use to improve both cost savings and student outcomes. This study is an important first step to explore resource allocation for school-based services for students with ASD.
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Aarons, G. A., Hurlburt, M., & Horwitz, S. M. (2011). Advancing a conceptual model of evidence-based practice implementation in public service sectors. Administration and Policy in Mental Health and Mental Health Services Research, 38(1), 4–23.
Anderson, K. A., Shattuck, P. T., Cooper, B. P., Roux, A. M., & Wanger, M. (2014). Prevalence and correlates of postsecondary residential status among young adults with an autism spectrum disorder. Autism, 18, 562–570. https://doi.org/10.1177/1362361313481860
Barnett, W. S., & Escobar, C. M. (2002). Research on the cost effectiveness of early educational intervention: Implications for research and policy. In T. A. Revenson (Ed.), Ecological Research to Promote Social Change (pp. 63–92). Springer.
Bhutta, Z. A., Das, J. K., Rizvi, A., Gaffey, M. F., Walker, N., Horton, S., …, Maternal and Child Nutrition Study Group. (2013). Evidence-based interventions for improvement of maternal and child nutrition: what can be done and at what cost? The lancet, 382(9890), 452–477.
Buescher, A. V., Cidav, Z., Knapp, M., & Mandell, D. S. (2014). Costs of autism spectrum disorders in the United Kingdom and the United States. JAMA Pediatrics, 168(8), 721–728.
Bitterman, A., Daley, T. C., Misra, S., Carlson, E., & Markowitz, J. (2008). A national sample of preschoolers with autism spectrum disorders: Special education services and parent satisfaction. Journal of Autism and Developmental Disorders, 38(8), 1509–1517.
Brock, M. E., Dynia, J. M., Dueker, S. A., & Barczak, M. A. (2020). Teacher-reported priorities and practices for students with autism: Characterizing the research-to-practice gap. Focus on Autism and Other Developmental Disabilities, 35(2), 67–78.
Brookman-Frazee, L., Baker-Ericzén, M., Stahmer, A., Mandell, D., Haine, R. A., & Hough, R. L. (2009). Involvement of youths with autism spectrum disorders or intellectual disabilities in multiple public service systems. Journal of Mental Health Research in Intellectual Disabilities, 2(3), 201–219.
Burke, M. M., & Goldman, S. E. (2015). Identifying the associated factors of mediation and due process in families of students with autism spectrum disorder. Journal of Autism and Developmental Disorders, 45(5), 1345–1353.
California Department of Education. (2020a). Special Education- CalEd Facts. Retrieved from https://www.cde.ca.gov/sp/se/sr/cefspeced.asp
California Department of Education. (2020b). California Special Education Local Plan Areas. Retrieved from https://www.cde.ca.gov/sp/se/as/caselpas.asp
Chasson, G. S., Harris, G. E., & Neely, W. J. (2007). Cost comparison of early intensive behavioral intervention and special education for children with autism. Journal of Child and Family Studies, 16(3), 401–413.
Cidav, Z., Munson, J., Estes, A., Dawson, G., Rogers, S., & Mandell, D. (2017). Cost offset associated with Early Start Denver Model for children with autism. Journal of the American Academy of Child & Adolescent Psychiatry, 56(9), 777–783.
Cook, B. G., & Odom, S. L. (2013). Evidence-based practices and implementation science in special education. Exceptional Children, 79(2), 135–144.
Counsell, S. R., Callahan, C. M., Tu, W., Stump, T. E., & Arling, G. W. (2009). Cost analysis of the geriatric resources for assessment and care of elders care management intervention. Journal of the American Geriatrics Society, 57(8), 1420–1426.
Damschroder, L. J., Aron, D. C., Keith, R. E., Kirsh, S. R., Alexander, J. A., & Lowery, J. C. (2009). Fostering implementation of health services research findings into practice: A consolidated framework for advancing implementation science. Implementation Science, 4(1), 1–15.
Deckers, A., Muris, P., & Roelofs, J. (2017). Being on your own or feeling lonely? Loneliness and other social variables in youths with autism spectrum disorders. Child Psychiatry & Human Development, 48(5), 828–839.
Dhaliwal, I., Duflo, E., Glennerster, R., & Tulloch, C. (2013). Comparative cost-effectiveness analysis to inform policy in developing countries: a general framework with applications for education. Education Policy in Developing Countries. https://doi.org/10.7208/chicago/9780226078854.003.0008
Fixsen, D. L., & Fixsen, A. A. (2016). An Integration and Synthesis of Current Implementation Frameworks. National Implementation Research Network.
Fixsen, D., Ward, C., & Sims, B. (2014). Exploration Stage Scaling-Up Brief (Report No. 4). State Implementation and Scaling-up of Evidence-based Practices Center.
Gibbs, A. (1997). Focus groups. Social Research Update, 19(8), 1–8.
Goldman, H. H., Ganju, V., Drake, R. E., Gorman, P., Hogan, M., Hyde, P. S., & Morgan, O. (2001). Policy implications for implementing evidence-based practices. Psychiatric Services, 52(12), 1591–1597.
Gray, S. A., Zraick, R. I., & Atcherson, S. R. (2019). Readability of individuals with disabilities education act part B procedural safeguards: An update. Language, Speech, and Hearing Services in Schools, 50(3), 373–384.
Hall, L. J. (2015). Sustaining evidence-based practices by graduated special educators of students with ASD: Creating a community of practice. Teacher Education and Special Education, 38(1), 28–43.
Hamilton, A. B., & Finley, E. P. (2019). Qualitative methods in implementation research: an introduction. Psychiatry Research, 280, 112516.
Hollands, F.M., Levin, H. M., (2017). The critical importance of costs for education decisions Washington, DC: U.S. Department of Education, Institute of Education Sciences, National Center for Education Evaluation and Regional Assistance, Analytic Technical Assistance and Development. Retrieved from https://ies.ed.gov/ncee/pubs/REL_2017274/pdf/REL_2017274.pdf
Individuals with Disabilities Education Act (IDEA), 20 U.S.C. § 1400 (2004).
Karoly, L. A., Kilburn, M. R., & Cannon, J. (2005). Proven benefits of early childhood interventions (Report No. MG-341-PNC). Rand Corporation.
Klonoff, D. C., & Schwartz, D. M. (2000). An economic analysis of interventions for diabetes. Diabetes Care, 23(3), 390–404.
Kratz, H. E., Stahmer, A., Xie, M., Marcus, S. C., Pellecchia, M., Locke, J., …, Mandell, D. S. (2019). The effect of implementation climate on program fidelity and student outcomes in autism support classrooms. Journal of Consulting and Clinical Psychology, 87(3), 270.
Iadarola, S., Hetherington, S., Clinton, C., Dean, M., Reisinger, E., Huynh, L., …, Kasari, C. (2015). Services for children with autism spectrum disorder in three, large urban school districts: Perspectives of parents and educators. Autism, 19(6), 694–703.
Institute of Education Sciences. (2020). Cost Analysis: A Stater Kit (Report No. 2020–001rev). U.S. Department of Education. Retrieved from https://ies.ed.gov/seer/pdf/IES_Cost_Analysis_Starter_Kit_V
Legislative Analyst’s Office (LAO). (2019). Overview of special education in California. Retrieved from https://lao.ca.gov/reports/2019/4110/overview-spec-ed-110619.pdf
Lavelle, T. A., Weinstein, M. C., Newhouse, J. P., Munir, K., Kuhlthau, K. A., & Prosser, L. A. (2014). Economic burden of childhood autism spectrum disorders. Pediatrics, 133(3), e520–e529.
Leigh, J. P., & Du, J. (2015). Brief report: Forecasting the economic burden of autism in 2015 and 2025 in the United States. Journal of Autism and Developmental Disorders, 45(12), 4135–4139.
Locke, J., Kang-Yi, C., Frederick, L., & Mandell, D. S. (2020). Individual and organizational characteristics predicting intervention use for children with autism in schools. Autism, 24(5), 1152–1163.
Locke, J., Wolk, C. B., Harker, C., Olsen, A., Shingledecker, T., Barg, F., …, Beidas, R. (2017). Pebbles, rocks, and boulders: The implementation of a school-based social engagement intervention for children with autism. Autism, 21(8), 985–994.
Maenner, M. J., Shaw, K. A., & Baio, J. (2020). Prevalence of autism spectrum disorder among children aged 8 years—autism and developmental disabilities monitoring network, 11 sites, United States, 2016. MMWR Surveillance Summaries, 69(4), 1.
Merton, R. K. (1987). The focussed interview and focus groups: Continuities and discontinuities. The Public Opinion Quarterly, 51(4), 550–566.
Merton, R. K., & Kendall, P. L. (1946). The focused interview. American Journal of Sociology, 51(6), 541–557.
Montes, G., Halterman, J. S., & Magyar, C. I. (2009). Access to and satisfaction with school and community health services for US children with ASD. Pediatrics, 124(Supplement 4), S407–S413.
Mueller, T. G., & Carranza, F. (2011). An examination of special education due process hearings. Journal of Disability Policy Studies, 22(3), 131–139.
National Council on Disability. (2018). Broken Promises: The Underfunding of IDEA. National Council on Disability. Retrieved from https://ncd.gov/sites/default/files/NCD_BrokenPromises_508.pdf
No Child Left Behind Act of 2001, P.L. 107–110, 20 U.S.C. § 6319 (2002).
Orsmond, G. I., Shattuck, P. T., Cooper, B. P., Sterzing, P. R., & Anderson, K. A. (2013). Social participation among young adults with an autism spectrum disorder. Journal of Autism and Development Disorders, 43, 2710–2719. https://doi.org/10.1007/s10803-013-1833-8
Roux, A. M., Rast, J. E., Anderson, K. A., & Shattuck, P. T. (2017). National Autism Indicators Report: Developmental Disability Services and Outcomes in Adulthood. Life Course Outcomes Program, AJ Drexel Autism Institute, Drexel University.
Rubin, R. M., Hurford, M. O., Hadley, T., Matlin, S., Weaver, S., & Evans, A. C. (2016). Synchronizing watches: The challenge of aligning implementation science and public systems. Administration and Policy in Mental Health and Mental Health Services Research, 43(6), 1023–1028.
Sam, A. M., Odom, S. L., Tomaszewski, B., Perkins, Y., & Cox, A. W. (2021). Employing evidence-based practices for children with autism in elementary schools. Journal of Autism and Developmental Disorders, 51(7), 2308–2323.
Schensul, S. L., Schensul, J. J., & LeCompte, M. D. (1999). Essential Ethnographic Methods: Observations, Interviews, and Questionnaires (Vol. 2). Rowman Altamira.
Shattuck, P. T., Narendorf, S. C., Cooper, B., Sterzing, P. R., Wagner, M., & Taylor, J. L. (2012). Postsecondary education and employment among youth with an autism spectrum disorder. The American Academy of Pediatrics, 129, 1042–1049. https://doi.org/10.1542/peds.2011-2864
Steinbrenner, J. R., Hume, K., Odom, S. L., Morin, K. L., Nowell, S. W., Tomaszewski, B., ... & Savage, M. N. (2020). Evidence-Based Practices for Children, Youth, and Young Adults with Autism. FPG Child Development Institute.
Spoth, R. L., Guyll, M., & Day, S. X. (2002). Universal family-focused interventions in alcohol-use disorder prevention: Cost-effectiveness and cost-benefit analyses of two interventions. Journal of Studies on Alcohol, 63(2), 219–228.
Stadnick, N. A., Meza, R. D., Suhrheinrich, J., Aarons, G. A., Brookman-Frazee, L., Lyon, A. R., …, Locke, J. (2019). Leadership profiles associated with the implementation of behavioral health evidence-based practices for autism spectrum disorder in schools. Autism, 23(8), 1957–1968.
Stahmer, A. C., Suhrheinrich, J., Schetter, P. L., & Hassrick, E. M. (2018). Exploring multi-level system factors facilitating educator training and implementation of evidence-based practices (EBP): A study protocol. Implementation Science, 13(1), 1–11.
Stewart, R. E., Adams, D. R., Mandell, D. S., Hadley, T. R., Evans, A. C., Rubin, R., … Beidas, R. S. (2016). The perfect storm: Collision of the business of mental health and the implementation of evidence-based practices. Psychiatric Services, 67(2), 159–161.
Suhrheinrich, J., Melgarejo, M., Root, B., Aarons, G. A., & Brookman-Frazee, L. (2021a). Implementation of school-based services for students with autism: Barriers and facilitators across urban and rural districts and phases of implementation. Autism, 25(8), 2291–2304. https://doi.org/10.1177/13623613211016729
Suhrheinrich, J., Root, B. V., Melgarejo, M., Dickson, K., Vejnoska, S., & Reith, S. R. (2021b). Exploring differences and disparities in school-based services received by students with autism: A systematic review. Research in Autism Spectrum Disorders, 85, 101791.
U.S. Census Bureau. (2019). Income in the past 12 months (in 2018 Inflation-Adjusted Dollars), 2014–2018 American Community Survey 5-year estimates. Retrieved from https://data.census.gov/cedsci/table?q=median%20income
Wei, X., Yu, J. W., Wagner, M., Hudson, L., Roux, A. M., Shattuck, P., & Blackorby, J. (2018). Job searching, job duration, and job loss among young adults with autism spectrum disorder. Journal of Vocational Rehabilitation, 48(1), 1–10.
Willis, J., Doutre, S.M., Krausen, K., Barret, T., Ripma, T., & Caparas, R., (2020). California special education funding system study: A descriptive analysis of special education funding in California. WestEd. Retrieved from https://www.wested.org/wp-content/uploads/2020/10/WestEd_SpecialEdFundingReport_Final_508.pdf
Willging, C. E., Green, A. E., Gunderson, L., Chaffin, M., & Aarons, G. A. (2015). From a “perfect storm” to “smooth sailing”: Policymaker perspectives on implementation and sustainment of an evidence-based practice in two states. Child Maltreatment, 20(1), 24–36. https://doi.org/10.1177/1077559514547384
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This study follows guidelines for qualitative methods listed on the Administration and Policy in Mental Health and Mental Health Services Research guidelines.
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This work was generously funded by NIMH K01MH109574 and IES R324A170063.
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Root, B.V., Melgarejo, M. & Suhrheinrich, J. Proactive versus Reactive: Strategies in the Implementation of School-based Services for Students with ASD. Adm Policy Ment Health 49, 575–586 (2022). https://doi.org/10.1007/s10488-021-01184-w
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DOI: https://doi.org/10.1007/s10488-021-01184-w