AIDS and Behavior

, Volume 21, Issue 9, pp 2774–2783 | Cite as

Diagnosed HIV Infection in Transgender Adults and Adolescents: Results from the National HIV Surveillance System, 2009–2014

  • Hollie ClarkEmail author
  • Aruna Surendera Babu
  • Ellen Weiss Wiewel
  • Jenevieve Opoku
  • Nicole Crepaz
Original Paper


Publications on diagnosed HIV infection among transgender people have been limited to state- or local-level data. We analyzed data from the National HIV Surveillance System and present results from the first national-level analysis of transgender people with diagnosed HIV infection. From 2009 to 2014, HIV surveillance jurisdictions from 45 states plus the District of Columbia identified and reported at least one case of newly diagnosed HIV infection for transgender people; jurisdictions from 5 states reported no cases for transgender people. Of 2351 transgender people with newly diagnosed HIV infection during 2009–2014, 84.0% were transgender women (male-to-female), 15.4% were transgender men (female-to-male), and 0.7% were additional gender identity (e.g., gender queer, bi-gender). Over half of both transgender women (50.8%; 1002/1974) and men (58.4%; 211/361) with newly diagnosed HIV infection were non-Hispanic black/African American. Improvements in data collection methods and quality are needed to gain a better understanding of HIV burden among transgender people.


Transgender HIV Surveillance AIDS Blacks/African Americans Hispanics or Latinos 


Las publicaciones sobre el diagnóstico de la infección por VIH entre personas transgénero se han limitado a los datos estatales o locales. Analizamos los datos del Sistema Nacional de Vigilancia del VIH y presentamos los resultados del primer análisis a nivel nacional de personas transgénero con diagnóstico de infección por VIH. Del 2009 al 2014, las jurisdicciones de vigilancia del VIH de 45 estados más el Distrito de Columbia identificaron y reportaron al menos un caso de infección de VIH recientemente diagnosticada en personas transgénero; Jurisdicciones de 5 estados no reportaron casos en personas transgénero. De las 2.351 personas transgénero con infección por el VIH recién diagnosticada durante el período 2009-2014, el 84,0% eran mujeres transgénero (hombre a mujer), el 15,4% hombres transgéneros (mujer a hombre) y el 0,7% (género queer, bi-género). Más de la mitad de las mujeres (50,8%; 1002/1974) y los hombres (58,4%; 211/361) transgénero con infección por el VIH recientemente diagnosticada eran negros/afroamericanos. Se necesitan mejoras en los métodos de recopilación de datos y en la calidad de los datos para comprender mejor la cantidad de VIH en la población transgénero.



The authors would like to thank the staff of HIV surveillance programs within state and city health departments. Publication of this manuscript would not have been possible without their dedication towards HIV surveillance activities and data collection. The authors thank Dr. Eduardo Valverde of CDC’s National Center for HIV, Viral Hepatitis, STD, and TB Prevention, Division of HIV/AIDS Prevention for his assistance with Spanish translation. For their review and commentary, the authors thank Dr. Deb Karch, Mrs. Anna Satcher Johnson, Dr. Azfar Sidiqi, and Dr. H. Irene Hall of CDC’s National Center for HIV, Viral Hepatitis, STD, and TB Prevention, Division of HIV/AIDS Prevention, and Dr. Sara Braunstein, Mr. Sonny Ly, and Dr. Lucia Torian of the New York City Department of Health and Mental Hygiene. Finally, the authors would like to acknowledge the dedication, work, and contribution of healthcare providers, community groups, and the transgender community.

Compliance with Ethical Standards

Conflicts of interest

The authors declare no conflicts of interest.

Ethical approval

This article does not contain any studies with human participants or animals performed by any of the authors. The findings and conclusions in this manuscript are those of the authors and do not necessarily represent the views of the Centers for Disease Control and Prevention.


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Copyright information

© Springer Science+Business Media New York (outside the USA)  2016

Authors and Affiliations

  • Hollie Clark
    • 1
    Email author
  • Aruna Surendera Babu
    • 2
  • Ellen Weiss Wiewel
    • 3
  • Jenevieve Opoku
    • 4
  • Nicole Crepaz
    • 1
  1. 1.National Center for HIV, Viral Hepatitis, STD and TB Prevention, Division of HIV/AIDS PreventionCenters for Disease Control and PreventionAtlantaUSA
  2. 2.ICF InternationalAtlantaUSA
  3. 3.Division of Disease ControlNew York City Department of Health and Mental HygieneNew York CityUSA
  4. 4.District of Columbia Department of Health, HIV/AIDS, Hepatitis, STD and TB Administration, Strategic Information DivisionGovernment of the District of ColumbiaWashingtonUSA

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