Abstract
This study explores the feelings, experiences, and coping strategies of people living with HIV (PLHIV) in Liuzhou, China. In a southwestern Chinese city with high HIV prevalence, we conducted semi-structured in-depth interviews with 47 PLHIV selected to represent individuals who had acquired HIV via different acquisition routes. Many participants felt severely stigmatized; they commonly reported having very low self-esteem and feelings of despair. Based on style of coping and whether it occurred at the interpersonal or intrapersonal level, four types of coping that participants used to deal with HIV-associated stigma were identified: (1) Compassion (Passive/Avoidant—Interpersonal); (2) Hiding HIV status (Passive/Avoidant—Intrapersonal); (3) Social support (Active/Problem-focused—Interpersonal; and (4) Self-care (Active/Problem-focused—Intrapersonal). Educational and stigma-reduction interventions targeting potential social support networks for PLHIV (e.g., family, close friends, and peers) could strengthen active interpersonal PLHIV coping strategies. Interventions teaching self-care to PLHIV would encourage active intrapersonal coping, both of which may enhance PLHIV quality of life in Liuzhou, China.
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References
Zhou YR. Help-seeking in a context of AIDS stigma: understanding the healthcare needs of people with HIV/AIDS in China. Health Soc Care Community. 2009;17(2):202–8.
Hua J, Emrick CB, Golin CE, et al. HIV and stigma in Liuzhou, China. AIDS Behav. 2013. doi:10.1007/s10461-013-0637-3.
Abler L, Henderson GE, Wang X, Avery M, Zhang YX, Pan S. Affected by HIV stigma: interpreting results from a population survey of an urban center in Guangxi, China. AIDS Behav. 2013. doi:10.1007/s10461-013-0556-3.
Yan Z, Wu Z. Stigma and discrimination have negative effects on AIDS control and prevention. Chin J AIDS STD. 2005;11(4):310–31.
Crandall CS, Glor J, Britt TW. AIDS-related stigmatization: instrumental and symbolic attitudes. J Appl Soc Psychol. 1997;27(2):95–123.
MacQuarrie K, Eckhaus T, Nyblade L. HIV-related stigma and discrimination: a summary of recent literature: report submitted by the International Center for Research on Women to UNAIDS;2009.
Mahajan AP, Sayles JN, Patel VA, et al. Stigma in the HIV/AIDS epidemic: a review of the literature and recommendations for the way forward. AIDS. 2008;22(Sup2):S67–79.
Nyblade L, Stangl A, Weiss E, Ashburn K. Combating HIV stigma in health care settings: what works? J Int AIDS Soc. 2009;12:15.
Nyblade L, Measuring HIV. Stigma: existing knowledge and gaps. Psychol Health Med. 2006;11(3):335–45.
Ogden J, Nyblade L. Common at its core: HIV-related stigma across contexts. Washington, DC: International Center for Research on Women (US); 2005.
Carr D, Nyblade L, eds. Taking action against HIV stigma and discrimination. Department for International Development. 2007.
Varni SE, Miller CT, Solomon SE. Sexual behavior as a function of stigma and coping with stigma among people with HIV/AIDS in rural New England. AIDS Behav. 2012;16(8):2330–9.
Chaudoir SR, Norton WE, Earnshaw VA, Moneyham L, Mugavero MJ, Hiers KM. Coping with HIV stigma: do proactive coping and spiritual peace buffer the effect of stigma on depression? AIDS Behav. 2012;16(8):2382–91.
Sun HM, Zhang J, Fu X. Psychological status, coping, and social support of people living with HIV/AIDS in central China. Public Health Nurs. 2007;24(2):132–40.
Mak WWS, Cheung RYM, Law RW, Woo J, Li PCK, Chung RWY. Examining attribution model of self-stigma on social support and psychological well-being among people with HIV+/AIDS. Soc Sci Med. 2007;64(8):1549–59.
Blashill AJ, Perry N, Safren SA. Mental health: a focus on stress, coping, and mental illness as it relates to treatment retention, adherence, and other health outcomes. Curr HIV/AIDS Rep. 2011;8(4):215–22.
Emlet CA, Brennan DJ, Brennenstuhl S, et al. Protective and risk factors associated with stigma in a population of older adults living with HIV in Ontario, Canada. AIDS Care. 2013;25(10):1330–9.
Kotze M, Visser M, Makin J, Sikkema K, Forsyth B. Psychosocial variables associated with coping of HIV-positive women diagnosed during pregnancy. AIDS Behav. 2013;17(2):498–507.
Poindexter CC, Shippy RA. HIV diagnosis disclosure: stigma management and stigma resistance. J Gerontol Soc Work. 2010;53(4):366–81.
Hult JR, Wrubel J, Branstrom R, Acree M, Moskowitz JT. Disclosure and nondisclosure among people newly diagnosed with HIV: an analysis from a stress and coping perspective. AIDS Patient Care STDS. 2012;26(3):181–90.
Jin C, Zhao G, Zhang F, Feng L, Wu N. The psychological status of HIV-positive people and their psychosocial experiences in eastern China. HIV Med. 2010;11(4):253–9.
Meade CS, Wang J, Lin X, Wu H, Poppen PJ. Stress and coping in HIV-positive former plasma/blood donors in China: a test of cognitive appraisal theory. AIDS Behav. 2010;14(2):328–38.
Li L, Liang L-J, Ding YY, Ji G. Facing HIV as a family: predicting depressive symptoms with correlated responses. J Fam Psychol. 2011;25(2):202–9.
Wang B, Li X, Barnett D, Zhao G, Zhao J, Stanton B. Risk and protective factors for depression symptoms among children affected by HIV/AIDS in rural China: a structural equation modeling analysis. Soc Sci Med. 2012;74(9):1435–43.
Ho C, Twinn S, Cheng KKF. Quality of life constructs of Chinese people living with HIV/AIDS. Psychol Health Med. 2010;15(2):210–9.
Goffman E. Stigma: notes on the management of spoiled identity. New York and London: Simon & Schuster; 1963.
Link BG, Phelan JC. Stigma and its public health implications. Lancet. 2006;367(9509):528–9.
Deacon H. Towards a sustainable theory of health-related stigma: lessons from the HIV/AIDS literature. J Community Appl Soc Psychol. 2006;16(6):418–25.
Deacon H, Boulle A. Commentary: factors affecting HIV/AIDS-related stigma and discrimination by medical professionals. Int J Epidemiol. 2007;36(1):185–6.
Berger BE, Ferrans CE, Lashley FR. Measuring stigma in people with HIV: psychometric assessment of the HIV stigma scale. Res Nurs Health. 2001;24(6):518–29.
Clark HJ, Lindner G, Armistead L, Austin BJ. Stigma, disclosure, and psychological functioning among HIV-infected and non-infected African-American women. Women Health. 2004;38(4):57–71.
Derlega VJ, Winstead BA, Greene K, Serovich J, Elwood WN. Perceived HIV-related stigma and HIV disclosure to relationship partners after finding out about the seropositive diagnosis. J Health Psychol. 2002;7(4):415–32.
Preston DB, D’Augelli AR, Kassab CD, Cain RE, Schulze FW, Starks MT. The influence of stigma on the sexual risk behavior of rural men who have sex with men. AIDS Educ Prev. 2004;16(4):291–303.
Swendeman D, Rotheram-Borus MJ, Comulada S, Weiss R, Ramos ME. Experienced and perceived HIV-related stigma among young people living with HIV: implications for preventive and supportive interventions. Washington, DC: American Public Health Association Annual Meeting; 2004.
Asia Pacific Network of people living with HIV/AIDS. AIDS discrimination in Asia 2004.
Fife BL, Wright ER. The dimensionality of stigma: a comparison of its impact on the self of persons with HIV/AIDS and cancer. J Health Soc Behav. 2000;41(1):50–67.
Holtz CS, Sowell R, Velasquez G. Oaxacan women with HIV/AIDS: resiliency in the face of poverty, stigma, and social isolation. Women Health. 2012;52(6):517–35.
Lazarus R, Folkman S. Stress, appraisal and coping. New York: Springer; 1984.
de Ridder D, Geenen R, Kuijer R, van Middendorp H. Psychological adjustment to chronic disease. Lancet. 2008;372(9634):246–55.
McIntosh R, Rosselli M. Stress and coping in women living with HIV: a meta-analytic review. AIDS Behav. 2012;16(8):2144–59.
Salter ML, Go VF, Minh NL, et al. Influence of perceived secondary stigma and family on the response to HIV infection among injection drug users in Vietnam. AIDS Educ Prev. 2010;22(6):558–70.
Zhou YR. The phenomenology of time: lived experiences of people with HIV/AIDS in China. Health (London). 2010;14(3):310–25.
Makoae LN, Greeff M, Phetlhu RD, et al. Coping with HIV-related stigma in five African countries. J Assoc Nurses AIDS Care. 2008;19(2):137–46.
Jin W. Analysis of the findings of a survey regarding discrimination against HIV/AIDS among government and party officials. Chin J AIDS STD. 2005;11(2):88–90.
Ding S, Ma Y, Wang C, et al. Analysis on parents’ discrimination attitudes towards AIDS orphans and vulnerable children. Chin J Public Health. 2008;24(4):395–7.
Zhou YR. “If you get AIDS… You have to endure it alone”: understanding the social constructions of HIV/AIDS in China. Soc Sci Med. 2007;65(2):284–95.
Youchun Z, Brown JD, Muessig KE, Xianxiang F, Wenzhen H. Sexual health knowledge and health practices of female sex workers in Liuzhou, China, differ by size of venue. AIDS Behav. 2013. doi:10.1007/s10461-013-0474-4.
Makin JD, Forsyth BW, Visser MJ, Sikkema KJ, Neufeld S, Jeffery B. Factors affecting disclosure in South African HIV-positive pregnant women. AIDS Patient Care STDS. 2008;22(11):907–16.
Huang Y, Abler L, Pan S, et al. Population-based sexual behavior surveys in China: Liuzhou compared with other prefectures. AIDS Behav. 2013. doi:10.1007/s10461-013-0645-3.
Harding R, Liu L, Catalan J, Sherr L. What is the evidence for effectiveness of interventions to enhance coping among people living with HIV disease? A systematic review. Psychol Health Med. 2011;16(5):564–87.
Acknowledgments
This project was supported by NIH R24 HD056670 (PIs: Gail Henderson and Pan Suiming). Dr. Huang Yingying has been instrumental in the success of this project and paper. Editing assistance was provided by Malena Rousseau and funded by the UNC Center for AIDS Research (NIH P30 AI50410). We would like to thank the local organizations that made recruitment possible, including the needle exchange centers, methadone treatment centers, MSM NGOs, women’s health clinic, and Longtan Hospital. Most of all, we appreciate the participants who generously shared their time and experiences with us.
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Ying-Xia, Z., Golin, C.E., Jin, B. et al. Coping Strategies for HIV-Related Stigma in Liuzhou, China. AIDS Behav 18 (Suppl 2), 212–220 (2014). https://doi.org/10.1007/s10461-013-0662-2
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DOI: https://doi.org/10.1007/s10461-013-0662-2