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Familien von anfallskranken Kindern

Auswirkungen der Epilepsie auf das familiäre Zusammenleben

Families of children with epilepsy

Impact of epilepsy on family life

  • Leitthema
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Zusammenfassung

Hintergrund

Die Epilepsie eines Kinds hat nicht nur unmittelbare Auswirkungen auf das erkrankte Kind selbst, sondern beeinflusst seine gesamte Familie, insbesondere die Eltern.

Ziel der Arbeit

Es wird ein Überblick zu den verschiedenen psychosozialen Auswirkungen der Epilepsie von Kindern auf deren Familien gegeben.

Methode

Der Überblick basiert auf einer Auswahl an Primärstudien, die v. a. durch eine PubMed-Literaturrecherche ermittelt wurden.

Ergebnisse

Neben unterschiedlichsten Sorgen, einem hohen Unterstützungsbedarf und psychischen Beeinträchtigungen auf Seiten der Eltern führt die Epilepsie eines Kinds oft auch zu Belastungen der Geschwisterkinder und der intrafamiliären Beziehungen. Zudem finden sich sehr häufig Einschränkungen im Alltags- und Sozialleben der betroffenen Familien. Ein wichtiger Einflussfaktor für die familiären Belastungen sind zusätzliche Verhaltens- oder Gesundheitsprobleme des Kinds.

Schlussfolgerung

Ein interdisziplinäres Behandlungskonzept für Kinder und Jugendliche mit Epilepsie sollte die erkrankungsbedingten Belastungen der Familie berücksichtigen und gegebenenfalls psychosoziale Unterstützung anbieten.

Abstract

Background

Epilepsy has an impact on not only the affected child, but also the whole family, especially the parents.

Aim of the study

To give an overview of the psychosocial impact of a child’s epilepsy on his/her family.

Methods

This overview is based on a selection of primary studies, which were mainly identified by a PubMed search.

Results

Besides various worries, high support needs, and mental health problems on the part of the parents, the epilepsy of a child also leads to stress for their siblings and strains in the relationships within the family. Furthermore, there are several limitations both in everyday life and in the social activities of the affected families. The presence of additional behavioral or health problems in children has been found to be an important factor influencing the impact of epilepsy on families.

Conclusion

In a comprehensive treatment approach for children and adolescents with epilepsy, the disease-related burdens of the family should be taken into account and psychosocial support should be provided.

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Einhaltung ethischer Richtlinien

Interessenkonflikt. L.B. Dehn gibt an, dass kein Interessenkonflikt besteht.

Dieser Beitrag beinhaltet keine Studien an Menschen oder Tieren.

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Authors and Affiliations

  1. Gesellschaft für Epilepsieforschung e.V., Epilepsie-Zentrum Bethel, Maraweg 21, 33617, Bielefeld, Deutschland

    L.B. Dehn M.Sc.

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  1. L.B. Dehn M.Sc.
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Correspondence to L.B. Dehn M.Sc..

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Dehn, L. Familien von anfallskranken Kindern. Z. Epileptol. 28, 140–147 (2015). https://doi.org/10.1007/s10309-015-0428-0

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