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Leben mit psychogenen nichtepileptischen Anfällen

Wie wirken sich die Anfälle auf die Lebensqualität aus?

Living with psychogenic nonepileptic seizures

How do seizures affect quality of life?

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Zusammenfassung

Die häufig eigene Dynamik dissoziativer bzw. psychogener nichtepileptischer Anfälle (PNEA) sowie vielleicht auch das Sich-dagegen-Sträuben mögen dazu beitragen, dass die inneren und äußeren Lebensumstände der betroffenen Patienten leicht ausgeblendet werden. Daher sind Untersuchungen zu begrüßen, die die Lebensqualität solcher Patienten erfassen und in Beziehung zu der von Epilepsiepatienten setzen. Im Folgenden werden Ergebnisse einzelner Studien – ohne Anspruch auf Vollständigkeit – berichtet, methodische Problematiken angesprochen und denkbare Weiterentwicklungen des gängigen Selbstbeurteilungsinstruments (QOLIE-89) aufgeführt. Anhand zweier Kasuistiken wird der Unterschied zwischen dem, was in Fragebögen über PNEA-Patienten in Erfahrung gebracht werden kann, und dem, was Betrachtungen von Einzelfällen zu erkennen erlauben, aufgezeigt.

Abstract

The frequently dramatic appearance of dissociative or psychogenic nonepileptic seizures (PNES) and perhaps an inner struggle against it might contribute to the fact that the internal and external life circumstances of these patients are easily masked. Therefore, studies are welcome which are focused on the quality of life of patients with PNES and compare it with that of epileptic patients. In the following paper, we report a few of these studies and list some methodological problems in them. Possibilities for further development of the self-assessment instrument QOLIE-89 for people with PNES are presented. Finally, using two case reports, we want to show that the complexity of backgrounds of dissociative disorders can only be grasped in an individual therapeutic relationship.

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Literatur

  1. Auxèry Y, Hubsch C, Fidelle G (2011) Psychogenic non epileptic seizures: a review. Encephale 37(2):153–158

    Article  Google Scholar 

  2. Benbadis SR, Allen HW, Hauser WA (2000) An estimate of the prevalance of psychogenic non-epileptic seizures. Seizure 9:280–281

    Article  CAS  PubMed  Google Scholar 

  3. Birbeck GL, Vickrey BG (2003) Determinants of health-related quality of life in adults with psychogenic nonepileptic seizures: are there implications for clinical practice? Epilepsia 44(2):141–142

    Article  PubMed  Google Scholar 

  4. Bodde NM, Brooks JL, Baker GA et al (2009) Psychogenic non-epileptic seizures – definition, etiology, treatment and prognostic issues: a critical review. Seizure 18:543–553

    Article  CAS  PubMed  Google Scholar 

  5. Bowman ES, Markand ON (1999) The contribution of life events to pseudoseizure occurrence in adults. Bull Menninger Clin 63:70–88

    CAS  PubMed  Google Scholar 

  6. Brown RJ, Syed TU, Benbadis S et al (2011) Psychogenic nonepileptic seizures. Epilepsy Behav 22:85–93

    Article  PubMed  Google Scholar 

  7. De Paola, Marchetti RL, Teive HAG, LaFrance WC Jr (2014) Psychogenic nonepileptic seizures and psychogenic movement disorders: two sides of the same coin? Arq Neuropsiquiatr 72(10):793–802

    Google Scholar 

  8. De Timary P, Fouchet P, Sylin M (2002) Non-epileptic seizures: delayed diagnosis in patients presenting with electroencephalograpic (EEG) or clinical signs of epileptic seizures. Seizure 11:193–197

    Article  Google Scholar 

  9. Driver-Dunckley E, Stonnington CM, Locke DEC, Noe K (2011) Comparison of psychogenic movement disorders and psychogenic nonepilepstic seizures: is phenotype clinically important? Psychosomatics 52(4):337–345

    Article  PubMed  Google Scholar 

  10. Duncan R, Oto M, Martin E, Pelosi A (2006) Late onset psychogenic nonepileptic attacks. Neurology 66:1644–1647

    Article  PubMed  Google Scholar 

  11. Duncan R, Oto M (2008) Psychogenic seizures in patients with learning disability: comparison with patients with no learning disability. EpiIepsy Behav 12:183–186

    Article  CAS  Google Scholar 

  12. Hiitris N, Leach JP, Mohanrav R et al (2005) Usefulness of investigation in a first seizure clinic. J Neurol Neurosurg Psychiartry 76:1316

    Google Scholar 

  13. Hopp JL, Anderson KE, Krumholz A et al (2012) Psychogenic seizures and psychogenic movement disorders: are they the same patients? Epilepsy Behav 25(4):666–669

    Article  CAS  PubMed  Google Scholar 

  14. La France WC Jr, Baker GA, Duncan R et al (2013) Minimum requirements for the diagnosis of psychogenic nonepileptic seizures: a staged approach: a report from the International League against Epilepsy Nonepileptic Seizure Task Force. Epilepsia 54:2005–2018

    Article  Google Scholar 

  15. Lawton G, Mayor RJ, Howlett S, Reuber M (2009) Psychogenic nonepileptic seizures and health-related quality of life: the relationship with psychological distress and other physical symptoms. Epilepsy Behav 14(1):167–171

    Article  PubMed  Google Scholar 

  16. Lesser RP (1996) Psychogenic seizures. Neurology 46:1499–1507

    Article  CAS  PubMed  Google Scholar 

  17. Oto M, Conway P, McGonial A et al (2005) Gender differences in psychogenic non-epileptic seizures. Seizure 14:33–39

    Article  CAS  PubMed  Google Scholar 

  18. Reuber M, Fernandez G, Bauer J et al (2002) Diagnostic delay in psychogenic nonepileptic seizures. Neurology 58:493–495

    Article  CAS  PubMed  Google Scholar 

  19. Reuber M (2008) Psychogenic nonepileptic seizures: answers and questions. Epilepsy Behav 12:622–635

    Article  PubMed  Google Scholar 

  20. Schulze-Bonhage A, Fritzsche K (2009) Koexistenz von Epilepsie und dissoziativen Anfällen. Z Epileptol 22:156–162

    Article  Google Scholar 

  21. Szaflarski JP, Hughes C, Ficker DM et al (2003) Quality of life in psychogenic nonepileptic seizures. Epilepsia 44(2):236–242

    Article  PubMed  Google Scholar 

  22. Testa SM, Schefft BK, Szaflarski JP et al (2007) Mood, personality, and health-related quality of life in epileptic and psychogenic seizure disorder. Epilepsia 48(5):973–982

    Article  PubMed  Google Scholar 

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Einhaltung ethischer Richtlinien

Interessenkonflikt. N. Füratsch und M. Schöndienst geben an, dass kein Interessenkonflikt besteht.

Dieser Beitrag beinhaltet keine Studien an Menschen oder Tieren.

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Authors and Affiliations

  1. Epilepsie-Zentrum Berlin-Brandenburg, Evangelisches Krankenhaus Königin Elisabeth Herzberge, Herzbergsgtr. 79, 10365, Berlin, Deutschland

    N. Füratsch

  2. -, Bielefeld, Deutschland

    M. Schöndienst

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  1. N. Füratsch
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  2. M. Schöndienst
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Correspondence to N. Füratsch.

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Füratsch, N., Schöndienst, M. Leben mit psychogenen nichtepileptischen Anfällen. Z. Epileptol. 28, 148–152 (2015). https://doi.org/10.1007/s10309-015-0427-1

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  • DOI: https://doi.org/10.1007/s10309-015-0427-1

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