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PESOS-Fragebogen für Menschen mit Epilepsie—

Psychometrische Eigenschaften der Skalen zur Beeinträchtigung durch die Epilepsie und zu emotionalen Aspekten der Lebensqualität

PESOS questionnaire for persons with epilepsy—psychometric properties of the PESOS scales restrictions due to epilepsy and to emotional aspects of quality of life

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Abstract

The PESOS questionnaire was developed at the Epilepsy Center Bethel in order to assess individual problems of patients with epilepsy in social and occupational surroundings (diagnostic function) and to investigate effects of treatment and counselling on quality of life (evaluative function). Clinical and demographic data, objective and subjective indicators of quality of life and modules (subscales) for specific patient groups (e. g. for students, employees) are included. The psychometric properties of the PESOS scales ‘Restrictions in daily life due to epilepsy’ ‘Epilepsy-related fear’, ‘Stigma’, and ‘Emotional adaptation’ were investigated in a multi-center study. The results indicate that the investigated subscales of the PESOS are reliable, valid and sensitive regarding effects of seizure frequency and tolerability of antiepileptic drugs.

Zusammenfassung

Der PESOS-Fragebogen wurde im Epilepsiezentrum Bethel entwickelt, um die individuellen Auswirkungen von Epilepsien auf soziale und berufliche Bereiche zu erfassen (diagnostische Funktion) und Effekte der Behandlung und Beratung auf die Lebensqualität der Betroffenen zu untersuchen (evaluierende Funktion). Erfasste Bereiche: medizinische und demographische Daten, objektive und subjektive Indikatoren der Lebensqualität sowie Module für spezielle Patientengruppen (z. B. Schüler/Studenten, Beschäftigte/Arbeitslose). Die psychometrischen Eigenschaften der PESOS-Skalen ‚Beeinträchtigungen im täglichen Leben durch die Epilepsie‘, ‚Epilepsiespezifische Angst‘, ‚Stigma‘ und ‚Emotionale Adaption an Epilepsie‘) wurden in einer multizentrischen Studie überprüft. Die Ergebnisse zeigen, dass die untersuchten Skalen des PESOS reliabel, valide und sensitiv hinsichtlich der Anfallsfrequenz sowie der Verträglichkeit der Antiepileptika-Therapie sind.

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Authors and Affiliations

  1. Gesellschaft für Epilepsieforschung, Maraweg 13, 33617, Bielefeld, Germany

    T. W. May & M. Pfäfflin

  2. Epilepsie-Zentrum Bethel, Bielefeld, Germany

    M. Pfäfflin, R. Thorbecke & U. Specht

  3. Epilepsiezentrum Berlin-Brandenburg, Berlin, Germany

    N. van Kampen

  4. Universitätsklinikum Charité, Neurologische Klinik und Poliklinik, Berlin, Germany

    I. Coban

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  1. T. W. May
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May, T.W., Pfäfflin, M., Thorbecke, R. et al. PESOS-Fragebogen für Menschen mit Epilepsie—. Z Epileptol 17, 287–300 (2004). https://doi.org/10.1007/s10309-004-0087-z

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  • DOI: https://doi.org/10.1007/s10309-004-0087-z

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