Techniques in Coloproctology

, Volume 22, Issue 5, pp 395–399 | Cite as

The Pediatric Colorectal and Pelvic Learning Consortium (PCPLC): rationale, infrastructure, and initial steps

  • Ron W. Reeder
  • Richard J. Wood
  • Jeffrey R. Avansino
  • Marc A. Levitt
  • Megan M. Durham
  • Jonathan Sutcliffe
  • Paola Midrio
  • Casey M. Calkins
  • Ivo de Blaauw
  • Belinda Hsi Dickie
  • Michael D. Rollins
  • For the Pediatric Colorectal and Pelvic Learning Consortium (PCPLC)
Congress Report
  • 23 Downloads

Notes

Funding

This work was supported in part by Primary Children’s Foundation.

Compliance with ethical standards

Conflict of interest

The authors declare that they have no conflict of interest.

Ethical approval

The data coordinating center and each participating clinical center obtained approvals for participation in the registry through their local institutional review boards.

Informed consent

A waiver of consent was granted because the registry is an observational study with minimal risk and because the scientific validity of the study may be compromised if certain subject groups were not represented.

References

  1. 1.
    Herman RS, Teitelbaum DH (2012) Anorectal malformations. Clin Perinatol 39(2):403–422CrossRefPubMedGoogle Scholar
  2. 2.
    Langer JC (2013) Hirschsprung disease. Curr Opin Pediatr 25(3):368–374CrossRefPubMedGoogle Scholar
  3. 3.
    Grano C et al (2012) Long-term disease-specific quality of life in children and adolescent patients with ARM. J Pediatr Surg 47(7):1317–1322CrossRefPubMedGoogle Scholar
  4. 4.
    Hashish MS et al (2010) Long-term functional outcome and quality of life in patients with high imperforate anus. J Pediatr Surg 45(1):224–230CrossRefPubMedGoogle Scholar
  5. 5.
    Levitt MA, Pena A (2010) Pediatric fecal incontinence: a surgeon’s perspective. Pediatr Rev Am Acad Pediatr 31(3):91–101CrossRefGoogle Scholar
  6. 6.
    Rintala RJ, Pakarinen MP (2010) Outcome of anorectal malformations and Hirschsprung’s disease beyond childhood. Semin Pediatr Surg 19(2):160–167CrossRefPubMedGoogle Scholar
  7. 7.
    Hartman EE et al (2011) Quality of life and disease-specific functioning of patients with anorectal malformations or Hirschsprung’s disease: a review. Arch Dis Child 96(4):398–406CrossRefPubMedGoogle Scholar
  8. 8.
    Rintala RJ, Pakarinen MP (2012) Long-term outcomes of Hirschsprung’s disease. Semin Pediatr Surg 21(4):336–343CrossRefPubMedGoogle Scholar
  9. 9.
    Siminas S, Losty PD (2015) Current surgical management of pediatric idiopathic constipation: a systematic review of published studies. Ann Surg 262(6):925–933CrossRefPubMedGoogle Scholar
  10. 10.
    de Blaauw I et al (2013) First results of a European multi-center registry of patients with anorectal malformations. J Pediatr Surg 48(12):2530–2535CrossRefPubMedGoogle Scholar

Copyright information

© Springer International Publishing AG, part of Springer Nature 2018

Authors and Affiliations

  • Ron W. Reeder
    • 1
  • Richard J. Wood
    • 2
  • Jeffrey R. Avansino
    • 3
  • Marc A. Levitt
    • 2
  • Megan M. Durham
    • 4
  • Jonathan Sutcliffe
    • 5
  • Paola Midrio
    • 6
  • Casey M. Calkins
    • 7
  • Ivo de Blaauw
    • 8
  • Belinda Hsi Dickie
    • 9
  • Michael D. Rollins
    • 10
  • For the Pediatric Colorectal and Pelvic Learning Consortium (PCPLC)
  1. 1.Department of PediatricsUniversity of UtahSalt Lake CityUSA
  2. 2.The Center for Colorectal and Pelvic ReconstructionNationwide Children’s HospitalColumbusUSA
  3. 3.Department of Pediatric SurgerySeattle Children’s HospitalSeattleUSA
  4. 4.Division of Pediatric SurgeryEmory University School of Medicine and Children’s Healthcare of AtlantaAtlantaUSA
  5. 5.Department of Paediatric SurgeryLeeds Children’s HospitalLeedsUK
  6. 6.Pediatric SurgeryCà Foncello Regional HospitalTrevisoItaly
  7. 7.Children’s Hospital of WisconsinMilwaukeeUSA
  8. 8.Department of SurgeryRadboudumc-Amalia Children’s HospitalNijmegenThe Netherlands
  9. 9.Department of Pediatric SurgeryBoston Children’s HospitalBostonUSA
  10. 10.Division of Pediatric Surgery, Primary Children’s HospitalUniversity of UtahSalt Lake CityUSA

Personalised recommendations