Abstract
Advance care planning (ACP) is essential in managing serious and chronic illnesses to ensure that patients receive care aligned with their personal values, goals, and preferences. This review focuses on integrating ACP in the treatment of patients receiving implantable left ventricular assist devices (VADs). The heart failure palliative care team developed a unique advance directive form and pamphlet to facilitate ACP discussions, emphasizing not only medical treatment preferences but also patients’ values and life goals.
The study highlights the distinction between bridge to transplantation (BTT) and destination therapy (DT) in VAD patients, with different goals and considerations for ACP. The use of decision aids developed especially for DT candidates as a communication tool helps in sharing patients’ wishes and facilitates shared decision-making, particularly in the complex decisions surrounding DT therapy.
Challenges in implementing ACP, such as time constraints due to urgent medical conditions, difficulties in patient communication, and the recent COVID-19 pandemic, are addressed. The need for a comprehensive healthcare system capable of supporting patients’ ACP wishes, especially in the community setting, is also pointed out.
Future directions include not only developing materials to ease ACP discussions and ensuring that ACP content is shared among healthcare providers to foster collaborative and detailed planning, but also a call for widespread adoption of ACP in Japan.
This is a translation of a paper written in Japanese Journal of Artificial Organs (Vol. 52, No. 1, pp. 89–92) with additions and corrections.
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References
Sudore RL, Lum HD, You JJ, Hanson LC, Meier DE, Pantilat SZ, et al. Defining advance care planning for adults: a consensus definition from a multidisciplinary Delphi panel. J Pain Symptom Manage. 2017;53:821–32.e1.
McMahan RD, Knight SJ, Fried TR, Sudore RL. Advance care planning beyond advance directives: perspectives from patients and surrogates. J Pain Symptom Manage. 2013;46:355–65.
O’Connor AM. Validation of a decisional conflict scale. Med Decis Making. 1995;15:25–30.
Shared decision making, NICE guidelines, NICE (National Institute for Health and Clinical Excellence). https://www.nice.org.uk/about/what-we-do/our-programmes/nice-guidance/nice-guidelines/shared-decision-making.
Stacey D, Volk RJ, IPDAS Evidence Update Leads (Hilary Bekker, Karina Dahl Steffensen, Tammy C. Hoffmann, Kirsten McCaffery, Rachel Thompson, Richard Thomson, Lyndal Trevena, Trudy van der Weijden, and Holly Witteman) (2021) The International Patient Decision Aid Standards (IPDAS) Collaboration: Evidence Update 2.0. Med Decis Making 41(7):729–733. https://doi.org/10.1177/0272989X211035681
Department of Cardiovascular Medicine, Osaka University Graduate School of Medicine. http://www.cardiology.med.osaka-u.ac.jp/?page_id=106. Accessed 16 Mar 2023, Written in Japanese.
Teuteberg W, Maurer M. Palliative care throughout the journey of life with a left ventricular assist device. Circ Heart Fail. 2016;9:e003564.
The Japanese Circulation Society, The Japanese Heart Failure Society, The Japan Stroke Society et al. JCS/JHFS 2021 statement on palliative care in cardiovascular diseases. https://www.j-circ.or.jp/cms/wp-content/uploads/2021/03/JCS2021_Anzai.pdf. Accessed 16 Mar 2023, Written in Japanese.
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Sakamoto, Y., Matsuura, R., Yoshioka, D. et al. Advance care planning in the treatment of implantable left ventricular assist device: a republication of the review published in Japanese Journal of Artificial Organs. J Artif Organs (2024). https://doi.org/10.1007/s10047-024-01443-1
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DOI: https://doi.org/10.1007/s10047-024-01443-1