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Experience of care for mental health problems in the antenatal or postnatal period for women in the UK: a systematic review and meta-synthesis of qualitative research

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Abstract

Purpose

Pregnancy and the first postnatal year can be a difficult and distressing period for women with mental health problems, particularly if they are not able to access appropriate and timely assessment and treatment. The aim of this systematic review was to synthesise qualitative evidence on experiences of care for women with (or at risk of developing) antenatal or postnatal mental health problems across a range of disorders (including non-psychotic mental disorders).

Methods

Six electronic databases were searched for papers published from 2000 to April 2014. Thirty-nine studies were identified that met the inclusion criteria. Findings were synthesised using secondary framework and thematic analysis approaches.

Results

Seven key themes were identified across mental disorder groups: an unmet need for collaborative and integrated care; stigma and fears about loss of custody; healthcare professionals unable or unwilling to address psychological needs; focus on babies over mothers; importance of non-judgemental and compassionate support; an unmet need for information; importance of service user involvement in treatment decisions.

Conclusions

Women’s experience of accessing and engaging with care for mental health problems could be improved if given the opportunity to develop trusting relationships with healthcare professionals who acknowledge and reinforce the woman’s role in caring for her baby in a non-judgemental and compassionate manner, and foster hope and optimism about treatment. Information for women, their families and healthcare professionals, and the provision of individualised care and treatment, are also crucial to enable full implementation of a person-centred programme of care.

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References

  • Antonysamy A, Wieck A, Wittkowski A (2009) Service satisfaction on discharge from a psychiatric mother and baby unit: a representative patient survey. Arch Womens Ment Health 12:359–362. doi:10.1007/s00737-009-0085-2

    Article  PubMed  Google Scholar 

  • Ayers S, Eagle A, Waring H (2006) The effects of childbirth-related post-traumatic stress disorder on women and their relationships: a qualitative study. Psychol Health Med 11:389–398

    Article  PubMed  Google Scholar 

  • Baumgartner LM (2007) The incorporation of HIV/AIDS into identity over time. Qual Health Res 17:919–931

    Article  PubMed  Google Scholar 

  • BMJ (2011) Consolidated criteria for reporting qualitative research., http://bmjopen.bmj.com/content/suppl/2011/02/21/bmjopen-2010-000017.DC1/bmjopen_research_checklist_000017.pdf . Accessed 25 August 2014

  • Boath E, Bradley E, Henshaw C (2004) Women's views of antidepressants in the treatment of postnatal depression. J Psychosom Obstet Gynecol 25:221–233

    Article  CAS  Google Scholar 

  • Breustedt S, Puckering C (2013) A qualitative evaluation of women's experiences of the mellow bumps antenatal intervention. Br J Midwifery 21:187–194

    Article  Google Scholar 

  • Campbell R, Pound P, Pope C, Britten N, Pill R, Morgan M et al (2003) Evaluating meta ethnography: a synthesis of qualitative research on lay experiences of diabetes and diabetes care. Soc Sci Med 56:671–684

    Article  PubMed  Google Scholar 

  • Carroll C, Booth A, Cooper K (2011) A worked example of “best fit” framework synthesis: a systematic review of views concerning the taking of some potential chemopreventive agents. BMC Med Res Methodol 11:29. doi:10.1186/1471-2288-11-29

    Article  PubMed Central  PubMed  Google Scholar 

  • CASP: Critical Appraisal Skills Programme (2013) Qualitative checklist., http://media.wix.com/ugd/dded87_951541699e9edc71ce66c9bac4734c69.pdf . Accessed 25 August 2014

  • Chew-Graham CA, Sharp D, Chamberlain E, Folkes L, Turner KM (2009) Disclosure of symptoms of postnatal depression, the perspectives of health professionals and women: a qualitative study. BMC Fam Pract 10:7. doi:10.1186/1471-2296-10-7

    Article  PubMed Central  PubMed  Google Scholar 

  • Cooke S, Smith I, Turl E, Arnold E, Msetfi RM (2012) Parent perspectives of clinical psychology access when experiencing distress. Community Pract 85:34–37

    PubMed  Google Scholar 

  • de Jonge A (2001) Support for teenage mothers: a qualitative study into the views of women about the support they received as teenage mothers. J Adv Nurs 36:49–57

    Article  PubMed  Google Scholar 

  • Dixon-Woods M, Bonas S, Booth A, Jones D, Miller T, Sutton A et al (2006) How can systematic reviews incorporate qualitative research? A critical perspective. Qual Res 6:27–44

    Article  Google Scholar 

  • Dixon-Woods M, Sutton A, Shaw R, Miller T, Smith J, Young B et al (2007) Appraising qualitative research for inclusion in systematic reviews: a quantitative and qualitative comparison of three methods. J Health Serv Res Policy 12:42–47

    Article  PubMed  Google Scholar 

  • Dolman C, Jones I, Howard LM (2013) Pre-conception to parenting: a systematic review and meta-synthesis of the qualitative literature on motherhood for women with severe mental illness. Arch Womens Ment Health 16:173–196. doi:10.1007/s00737-013-0336-0

    Article  PubMed  Google Scholar 

  • Edge D (2007) Perinatal depression and Black Caribbean women: lessons for primary care. Prim Health Care 17:32–35

    Article  Google Scholar 

  • Edge D (2008) 'We don't see Black women here': an exploration of the absence of Black Caribbean women from clinical and epidemiological data on perinatal depression in the UK. Midwifery 24:379–389

    Article  PubMed  Google Scholar 

  • Edge D (2011) 'It's leaflet, leaflet, leaflet then, "see you later"': black Caribbean women's perceptions of perinatal mental health care. Br J Gen Pract 61:256–262. doi:10.3399/bjgp11X567063

    Article  PubMed Central  PubMed  Google Scholar 

  • Edge D, Rogers A (2005) Dealing with it: Black Caribbean women's response to adversity and psychological distress associated with pregnancy, childbirth, and early motherhood. Soc Sci Med 61:15–25

    Article  PubMed  Google Scholar 

  • Edwards E, Timmons S (2005) A qualitative study of stigma among women suffering postnatal illness. J Ment Health 14:471–481

    Article  Google Scholar 

  • Einarson A, Selby P, Koren G (2001) Abrupt discontinuation of psychotropic drugs during pregnancy: fear of teratogenic risk and impact of counselling. J Psychiatry Neurosci 26:44–48

    PubMed Central  CAS  PubMed  Google Scholar 

  • Hall P (2006) Mothers' experiences of postnatal depression: an interpretative phenomenological analysis. Community Pract 79:256–260

    PubMed  Google Scholar 

  • Hanley J, Long B (2006) A study of Welsh mothers' experiences of postnatal depression. Midwifery 22:147–157

    Article  PubMed  Google Scholar 

  • Heron J, Gilbert N, Dolman C, Shah S, Beare I, Dearden S et al (2012) Information and support needs during recovery from postpartum psychosis. Arch Womens Ment Health 15:155–165. doi:10.1007/s00737-012-0267-1

    Article  PubMed  Google Scholar 

  • Howard LM, Molyneaux E, Dennis C-L, Rochat T, Stein A et al (2014) Non-psychotic mental disorders in the perinatal period. Lancet 384:1775–1788. doi:10.1016/S0140-6736(14)61276-9

    Article  PubMed  Google Scholar 

  • Hunt K, France E, Ziebland S, Field K, Wyke S (2009) 'My brain couldn't move from planning a birth to planning a funeral': a qualitative study of parents' experiences of decisions after ending a pregnancy for fetal abnormality. Int J Nurs Stud 46:1111–1121. doi:10.1016/j.ijnurstu.2008.12.004

    Article  PubMed  Google Scholar 

  • Jones I, Chandra PS, Dazzan P, Howard LM (2014) Bipolar disorder, affective psychosis, and schizophrenia in pregnancy and the post-partum period. Lancet 384:1789–1799. doi:10.1016/S0140-6736(14)61278-2

    Article  PubMed  Google Scholar 

  • Lawton J, Rankin D, Peel E, Douglas M (2009) Patients’ perceptions and experiences of transitions in diabetes care: a longitudinal qualitative study. Health Expect 12:138–148. doi:10.1111/j.1369-7625.2009.00537.x

    PubMed  Google Scholar 

  • Mapp T (2005) Feelings and fears post obstetric emergencies, part 2. Br J Midwifery 13:36–40

    Article  Google Scholar 

  • Mapp T, Hudson K (2005) Feelings and fears during obstetric emergencies, part 1. Br J Midwifery 13:30–35

    Article  Google Scholar 

  • McCreight BS (2008) Perinatal loss: a qualitative study in Northern Ireland. Omega 57:1–19

    PubMed  Google Scholar 

  • McGrath L, Peters S, Wieck A, Wittkowski A (2013) The process of recovery in women who experienced psychosis following childbirth. BMC Psychiatry 13:341. doi:10.1186/1471-244X-13-341

    Article  PubMed Central  PubMed  Google Scholar 

  • NCCMH (2012) Service User Experience in Adult Mental Health: Improving the experience of Care for People Using Adult NHS Mental Health Services. Clinical guideline 136 [Full guideline]. The British Psychological Society and the Royal College of Psychiatrists, Leicester and London

    Google Scholar 

  • NCGC (2012) Patient Experience in Adult NHS Services: Improving the Experience of Care for People Using Adult NHS Services. Clinical guideline 138 [Full guideline]. Royal College of Physicians, London

    Google Scholar 

  • NICE (2011) Service User Experience in Adult Mental Health: Improving the Experience of Care for People Using Adult NHS Mental Health Services. NICE Clinical Guideline 136. NICE, London, http://www.nice.org.uk/guidance/cg136

    Google Scholar 

  • NICE (2012) Patient Experience in Adult NHS Services: Improving the Experience of Care for People Using Adult NHS Services. NICE, London, http://www.nice.org.uk/guidance/cg138

    Google Scholar 

  • NICE (2014) Antenatal and Postnatal Mental Health: Clinical Management and Service Guidance. NICE Clinical Guideline 192. NICE, London, http://www.nice.org.uk/guidance/cg192

    Google Scholar 

  • Nicholls K, Ayers S (2007) Childbirth-related post-traumatic stress disorder in couples: a qualitative study. Br J Health Psychol 12:491–509

    Article  PubMed  Google Scholar 

  • Parvin A, Jones CE, Hull SA (2004) Experiences and understandings of social and emotional distress in the postnatal period among Bangladeshi women living in Tower Hamlets. Fam Pract 21:254–260

    Article  PubMed  Google Scholar 

  • Patel S, Wittkowski A, Fox JR, Wieck A (2013) An exploration of illness beliefs in mothers with postnatal depression. Midwifery 29:682–689. doi:10.1016/j.midw.2012.06.012

    Article  PubMed  Google Scholar 

  • Peel E, Douglas M, Lawton J (2007) Self-monitoring of blood glucose in type 2 diabetes: longitudinal qualitative study of patients’ perspectives. BMJ 335:493–498

    Article  PubMed Central  PubMed  Google Scholar 

  • Raymond JE (2009) 'Creating a safety net': women's experiences of antenatal depression and their identification of helpful community support and services during pregnancy. Midwifery 25:39–49

    Article  PubMed  Google Scholar 

  • Robertson E, Lyons A (2003) Living with puerperal psychosis: a qualitative analysis. Psychol Psychother 76:411–431

    Article  PubMed  Google Scholar 

  • Ryninks K, Roberts-Collins C, McKenzie-McHarg K, Horsch A (2014) Mothers’ experience of their contact with their stillborn infant: an interpretative phenomenological analysis. BMC Pregnancy Childbirth 14:203. doi:10.1186/1471-2393-14-203

    Article  PubMed Central  PubMed  Google Scholar 

  • Shakespeare J, Blake F, Garcia J (2003) A qualitative study of the acceptability of routine screening of postnatal women using the Edinburgh Postnatal Depression Scale. Br J Gen Pract 53:614–619

    PubMed Central  PubMed  Google Scholar 

  • Shakespeare J, Blake F, Garcia J (2006) How do women with postnatal depression experience listening visits in primary care? A qualitative interview study. J Reprod Infant Psychol 24:149–162

    Article  Google Scholar 

  • Simmons RK, Singh G, Maconochie N, Doyle P, Green J (2006) Experience of miscarriage in the UK: qualitative findings from the National Women's Health Study. Soc Sci Med 63:1934–1946

    Article  PubMed  Google Scholar 

  • Slade P, Morrell CJ, Rigby A, Ricci K, Spittlehouse J, Brugha TS (2010) Postnatal women's experiences of management of depressive symptoms: a qualitative study. Br J Gen Pract 60:e440–e448. doi:10.3399/bjgp10X532611

    Article  PubMed Central  PubMed  Google Scholar 

  • Smith L, Gibb S (2007) Postnatal support for drug users: evaluation of a specialist health visiting service. Community Pract 80:24–29

    PubMed  Google Scholar 

  • Snowdon C, Elbourne D, Forsey M, Alfirevic Z (2012) Information-hungry and disempowered: a qualitative study of women and their partners' experiences of severe postpartum haemorrhage. Midwifery 28:791–799. doi:10.1016/j.midw.2011.12.012

    Article  PubMed  Google Scholar 

  • Stanley N, Borthwick R, Macleod A (2006) Antenatal depression: mothers' awareness and professional responses. Prim Health Care Res Dev 7:257–268

    Google Scholar 

  • Stapleton H, Fielder A, Kirkham M (2008) Breast or bottle? eating disordered childbearing women and infant-feeding decisions. Matern Child Nutr 4:106–120. doi:10.1111/j.1740-8709.2007.00121.x

    Article  PubMed  Google Scholar 

  • Templeton L, Velleman R, Persaud A, Milner P (2003) The experiences of postnatal depression in women from black and minority ethnic communities in Wiltshire, UK. Ethn Health 8:207–221

    Article  PubMed  Google Scholar 

  • Thomas J, Harden A (2008) Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Med Res Methodol 8:45. doi:10.1186/1471-2288-8-45

    Article  PubMed Central  PubMed  Google Scholar 

  • Thomson G, Downe S (2008) Widening the trauma discourse: the link between childbirth and experiences of abuse. J Psychosom Obstet Gynecol 29:268–273. doi:10.1080/01674820802545453

    Article  Google Scholar 

  • Thomson G, Downe S (2013) A hero's tale of childbirth. Midwifery 29:765–771. doi:10.1016/j.midw.2012.07.008

    Article  PubMed  Google Scholar 

  • Thurtle V (2003) First time mothers' perceptions of motherhood and PND. Community Pract 76:261–265

    Google Scholar 

  • Tsartsara E, Johnson MP (2002) Women’s experience of care at a specialised miscarriage unit: an interpretive phenomenological study. Clin Eff Nurs 6:55–65

    Article  Google Scholar 

  • Turner KM, Sharp D, Folkes L, Chew-Graham C (2008) Women's views and experiences of antidepressants as a treatment for postnatal depression: a qualitative study. Fam Pract 25:450–455. doi:10.1093/fampra/cmn056

    Article  PubMed  Google Scholar 

  • Turner KM, Chew-Graham C, Folkes L, Sharp D (2010) Women's experiences of health visitor delivered listening visits as a treatment for postnatal depression: a qualitative study. Patient Educ Couns 78:234–239. doi:10.1016/j.pec.2009.05.022

    Article  PubMed  Google Scholar 

  • Vesga-López O, Blanco C, Keyes K, Olfson M, Grant BF et al (2008) Psychiatric disorders in pregnant and postpartum women in the United States. Arch Gen Psychiatry 65:805–815. doi:10.1001/archpsyc.65.7.805

    Article  PubMed Central  PubMed  Google Scholar 

  • Whitehead L (2006) Towards a trajectory of identity reconstruction in chronic fatigue syndrome/myalgic encephalomyelitis: a longitudinal qualitative study. Int J Nurs Stud 43:1023–1031

    Article  PubMed  Google Scholar 

  • Wittkowski A, Zumla A, Glendenning S, Fox JRE (2011) The experience of postnatal depression in South Asian mothers living in Great Britain: a qualitative study. J Reprod Infant Psychol 29:480–492

    Article  Google Scholar 

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Correspondence to Odette Megnin-Viggars.

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Megnin-Viggars, O., Symington, I., Howard, L.M. et al. Experience of care for mental health problems in the antenatal or postnatal period for women in the UK: a systematic review and meta-synthesis of qualitative research. Arch Womens Ment Health 18, 745–759 (2015). https://doi.org/10.1007/s00737-015-0548-6

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  • DOI: https://doi.org/10.1007/s00737-015-0548-6

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