Abstract
Purpose
Describe spirituality’s role in a sample of Hispanic adolescent and young adult (AYA) cancer survivors.
Methods
This phenomenology-informed convergent parallel mixed-methods study aimed to explore participants’ lived experiences with hope during cancer treatments and cancer survivorship. A purposive sample of Hispanic AYAs who completed cancer treatments 2–5 years ago were virtually recruited for participation. Participants completed virtual semi-structured interviews about their experiences with hope during cancer treatments and cancer survivorship and prepared narratives about their experiences. Thematic analyses were iteratively performed across the data set to identify final themes.
Results
Ten Hispanic AYA cancer survivors (mean age 30.2, SD = 4.5) years participated in this pilot study. Seven participants (70%) were female, and three participants (30%) were male. Six participants (60%) experienced non-hematologic malignancies, and four participants (40%) experienced hematologic malignancies. Eight (80%) participants’ language preference was Spanish, while two (20%) participants’ language preference was English. The theme spirituality and subthemes living by faith, god as a resource, and spiritual gratitude were identified as concepts participants linked to their conceptualization of hope during cancer treatment and survivorship.
Conclusions
Hope and spirituality may be conceptually linked to coping behaviors among Hispanic AYA cancer survivors. Hope through faith may be a learned spiritual value in Hispanic AYAs and might play a role in their spiritual and cognitive development. Further research is needed to explore the potentially protective value of hope and spirituality for the Hispanic AYA population.
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Data availability
Deidentified qualitative data can be shared with interested parties who wish to review the data or conduct further analyses. Please contact the corresponding author with inquiries.
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Acknowledgements
We wish to thank Ms. Sandra Garcia-Hernandez for her assistance with this study. The authors want to acknowledge and thank the participants for graciously sharing their stories.
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All authors contributed to the study conception and design. Material preparation, data collection and analysis were performed by CRB and SGH. The first draft of the manuscript was written by CRB. KD, JGB, CT, PG, HLC, and VHF commented on previous versions of the manuscript. All authors read and approved the final manuscript.
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Protocol COMIRB# 21–4823 for this study was determined on 4/28/2022 to be low risk and exempt from IRB review.
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Bennett, C.R., Doyon, K., Barnard, J.G. et al. “God is going to help me get through this”: spirituality perspectives from Hispanic adolescent and young adult cancer survivors. Support Care Cancer 32, 348 (2024). https://doi.org/10.1007/s00520-024-08550-y
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DOI: https://doi.org/10.1007/s00520-024-08550-y